-
First post in a long time
Hi everyone! I've been busy riding the mets rollercoaster nonstop. July 2016 medical oncologist tells me my ALP level is elevated. I was still working in a very stressful & demanding job 4 days a week. I noticed I had been tired but so had my co-workers as we were under so much pressure & running at half staff. Mentioned…
-
Constipation
Has anyone got any secret formular that works for constipation. I am on I.V Abraxane which I was on 5 years ago. I was hoping that it would be only for 6 cycles but asking my oncologist this week ,she couldn't give me an answer. So I take it that I'm on it for the long haul, while its working. I guess its not too bad ,…
-
Side Effects Herceptin / Perjeta
Hi Lovely Ladies, Can anyone tell me please if you get sinus problems and headaches from either of the above drugs? Also like Chemo the more rounds you have do you get worse side effects? So far I have been quite lucky and just felt really tired in the afternoons but lately I have been experiencing bloating, sinus…
-
Hair loss whilst not having treatment
Hi ladies, Has anyone experienced hair loss even though they are not having treatment? I am currently not on chemo or doing any treatment for my mets, yet in the last few weeks my hair is falling out. I haven't done any chemo since July this year when I took Xeloda for two weeks and ended up in hospital. Anyway my…
-
Reconstruction with active bone mets?
Today I had an appointment with my oncologist to get my recent PET results. My last PET three months ago showed that my bone mets were inactive and almost resolved. So, today I thought I was going to be told the same and could get my name on the waiting list for a reconstruction. However, I was told that my bone mets…
-
Bone pain management-what works?
My dad has metastatic bone cancer from prostate which seems to be similar to the beast cancer in treatment as he has the same chemo as I did when I had breast cancer. He is currently going up in dose rates through the Norspan morphine weekly patches and is about to change from 10mg to 15mg. He has just moved to my area and…
-
What other options?
Hi ladies, Just wondering, what other remaining options are there for mum. She has ER+ BC metastasis. She has completed 6 rounds of Chemo so far, which seems to be working. She has taken Femara, Tamoxifen, Evorilimus & Exastamen, which all didn't work (except for Femara) hence she's on chemo. Her ca125 reading is 94 and…
-
Immunotherapy for er+pr+ HER2-
it's wonderful to see that there are trials for triple negative metastatic bc. Are there trials for er+pr+ HER2- happening here at all? I have just returned from the Hallwang Clinic in Germany where I was given the GP2 vaccine as the Clinic tested my tumour which they sourced from Australia and I tested positive for HLA…
-
love that liver
Well I never thought I would be posting this. 2013 first diagnosed with breast cancer. Had a mastectomy Jan 2014, reconstruction later that year. Was told that it had all been taken so no need for chemo and I didn't want it plus I saw what my sister went through with chemo for BC. Aug 2015 found out that this lovely…
-
Scared
Hi everyone I have been on falodex for one year my scan just showed a small on rib but stable my ca15/is going up still so my oncolist just sent for brain liver lung scans Friday iam soo scared really bab anxierty she isn't worried but I just have a feeling she seems to think it will stay contained in bone if anyone can…
-
Happy New Year
2016 was a very challenging year for me as I lost my mobility through fractures in my femors. I am told my condition which was caused by a bone density drug is rare. As my bone composition had changed/weakened I now have rods in both femurs which are great, but given the bone was not strong, I fractured twice which meant…
-
Embraca Clinical Trial (Talazoparib)
I was wondering if anyone out there is participating in the Embraca clinical trial - or any other trials using the drug Talazoparib (BMN-673)? I have just started (I was assigned the trial drug) and it's hard to not have anyone to talk to who is going through the same thing i.e. discuss side effects etc. The only treatment…
-
Newly inserted Port a Cath - Pain & Redness
Hi Ladies! I had a port a cath put in yesterday under a general. I am a bit concerned as I am feeling a little unwell, it is hurting and it is red on the area. This just might be because the drugs have worn off. I live a long way from an Emergency dep so have to wait until the morning. Just wondering if anyone can tell me…
-
Back on I.V Abraxane
Just come home after having my first dose of I.V Abraxaine and feeling fine so far. This was my first visit back to the oncology ward in nearly five years. Some of the nures were still there after that time but everyone was very pleasant. It took 3 goes to find a vien which brought back bad memories. Thank God I'm getting…
-
Fulvestrant/Faslodex
Hi ladies, Saw my oncologist today & he wants to put me on Faslodex injections. Is anyone else having these injections and any side effects? Thanks Ange