-
I just found out today
I had my first appointment with my oncologist this afternoon. I had had a PET scan and MRI earlier in the week. I received the results today that the cancer has metastasised. They found a spot on my sternum, back and pelvis. I need to go have a biopsy on my sternum. I was diagnosed with breast cancer on 8 February. 4 days…
-
Palbociclib Side effects back
That didn’t take long to have all the side effects back. i sure enjoyed the break maybe too much did heaps and had lots happening Just finished my 21 days and it's been like i didn’t get a break at all, mind you day 5 in and caught the flu and haven’t been able to shake it. The worst congestion and cough ever which doesn’t…
-
Allergic reaction to chemo
Hi All, I'm interested to hear if anyone has had an allergic reaction to their an intravenous chemo infusion and how this affected their treatment plan? What symptoms did you experience? and did you continue to try another chemo treatment? Thanks in advance 🙂
-
Fulvestrant pain - any suggestions?
Hi everyone I’ve just started on Fulvestrant & was wondering if anyone has any tips on decreasing the pain on injection & the sore bum afterwards. I’ve been advised to use a heat pack & massage with Hirudoid, which I’ve done. Doesn’t make any difference.
-
6 month update TNBC Stage 4
Hi everyone, bit of a flat day, thought I would post an update, writing my journey out helps me. It's also so hard to find anyone with a similar diagnosis to talk to...on this site. TNBC Stage 4 Mets to lung, lymph Started Carbo & Gem chemo 4 months ago. 1st scans showed lung spots gone, chest spots gone, tumour shrunk…
-
Kisqali & Letrozole - thankful & fearful...
Hi, I was diagnosed 7 months ago with metastatic breast cancer and am very thankful for Kisqali and Letrozole (which is working!) having been clear for many years after an original diagnosis of lobular breast cancer. Whilst I am very fortunate to be able to get on with life I do fear what happens once the medication stops…
-
Rash on letrozole
good morning everyone. I've developed a rash on my body on day 4 of starting Letrozole. Anyone else had this side effect? I rang my oncologist last night who recommend antihistamine to get me through the night and to see my GP this morning.
-
Treatment in Australia
Hi there, I am a New Zealander and I am wondering if I would be eligible to receive treatment in Australia. I am very disappointed in the care I have received in NZ, it hasn't always been like this but I am very disheartened at the fractured system we have, in communication and empathy,
-
ERIBULIN/CLINICAL TRIAL
Hi all, just an update on @ter1969 me. At the moment on Eribulin after previous treatment not fully working as have new mets and am on home oxygen as my oxygen sats have gone down so a big shift in how things look. Am very tired and struggling to do anything. Awaiting to see if this drug does anything or looking at a…
-
Enhertu working
CT Pet scan and MRI results in. No active cancer anywhere. Previous test showed cancer in brain, bones and adrenal gland. Onco started me on Enhertu five cycles ago and the results are amazing. Feeling pretty happy right now. I still have MBC but it is all asleep. <3
-
Support groups for metastatic breast cancer
Hi, I'm looking for a support group for people with metastatic breast cancer in the eastern suburbs of Sydney preferably face-to-face but Zoom is OK also. Appreciate any info members may be aware of - thank you
-
New member
Hi. I was diagnosed with mbc in 2021. An MRI done of my hip (me thinking I needed a hip replacement) revealed a bone lesion and further scans showed I had lesions in my skull, breast bone and right shoulder blade. Radiation helped with the pain in my hip and I am now able to walk unaided. I have been on letrozole and…
-
Choosing to stop treatment
I was diagnosed with metastases in October last year and was given ~12 months. We tried Trodelvy but it was too hard on my body. Tried Eribulen but a recent CT scan showed it’s not working. my onc has said we could try liposomal doxyrubicin but I had a horrible time on doxorubicin last year. He estimates I have maybe 2 - 3…
-
Hot spa's and stage 4 breast cancer?
Hi ladies, I am about to head down to warrnambool with my breast cancer support group for long weekend retreat. We are visiting hot spa's on Sunday and my question is can I go into hot spa? I don't have lymphoedema, did have auxiliary clearance on right arm. Have tried to call breast Care nurse and left message, just…
-
Dupuytren Contracture
Moderator moved @jaynie_000 comment to dedicated discussion post: