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New metastatic diagnosis
I’m new to this group. I’m 43 years old and today I was told I have ER, PR negative, HER2 positive metastatic breast cancer. I have mets in lymph nodes, bones and liver. No symptoms- only had a mammogram as my Mum was diagnosed with breast cancer 2 months ago. I’m married with an 8 year old son and 11 year old daughter. It…
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Call out to all members in Ballarat (and surrounds)
I read the response from @Ktre to a post re metastatic BC. In that she mentions her fundraiser so I have looked it up. Well worth your consideration: https://fundraise.nbcf.org.au/fundraisers/katetreacy Love your pink hair Kate ! Wish I was that brave !!! 💖💖
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Palbociclib Side effects back
That didn’t take long to have all the side effects back. i sure enjoyed the break maybe too much did heaps and had lots happening Just finished my 21 days and it's been like i didn’t get a break at all, mind you day 5 in and caught the flu and haven’t been able to shake it. The worst congestion and cough ever which doesn’t…
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Kisquali
FYI - I did post in private group last night but no response so thought I'd try here as well. :-) Hi there all, Strange question for you all for a Sunday night - I'm on my 13th round of Kisqali, still on 3 tablets which is highest dose. I'm taking in combination with Letrozole and the bone strengthening injection every 2-3…
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Choosing to stop treatment
I was diagnosed with metastases in October last year and was given ~12 months. We tried Trodelvy but it was too hard on my body. Tried Eribulen but a recent CT scan showed it’s not working. my onc has said we could try liposomal doxyrubicin but I had a horrible time on doxorubicin last year. He estimates I have maybe 2 - 3…
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On herceptin and perjeta , stage 4 , itchy skin and now itchy scalp -anyone treated itch sucessfully
I’ve been on H&P for over 12 months -experiencing itchy skin for last 4 months or so. Mostly red spots on chest and shoulders/back Told oncologist and am using cortisone cream on chest and shoulders; also getting DEX with each three weekly H&P infusions . NOW have developed itchy scalp - last night I ended up getting a…
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Spread to tummy lining and adrenal gland
Hi everyone, had a Petscan on Saturday results today, spread to my stomach lining and adrenal gland now very small but there, has anyone else been in this position? If so how was it treated? I have to have a biopsie done to confirm same cancer then possible infused chemo again,
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Palbociclib -new side effects from tablets
I have MBC and have been on Palbociclib (Ibrance) and Letrozole for 30 months. I have tolerated it fairly well aside from some fatigue. Last month the Ibrance capsules were replaced by tablets. I have had severe nausea and stomach cramps with dizziness and hot flushing since changing to the tablets. Has anyone else…
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Calling out to MBC's beyond 5 years!
Hello :) I am keen to connect in person with other women in their 40's in Brisbane who are travelling well with MBC beyond five years. I find myself only with older ladies when attending MBC support groups, which is lovely, but I feel the need to form friendships with others closer to my own age who are doing well(ish) and…
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Starting Letrozole & palbociclib tomorrow
This discussion was created from comments split from: Metastatic Breast Cancer & avoiding weight gain while on Letrozole ?.
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tracy alsop
good afternoon everyone, I haven't been on here for a while but I wanted to let everyone know we lost one of our pink sisters Tracy Fearnley- Alsop on the 6th of April, I first got to know Tracy in 2015 and we fought our 1st journey together and then we both got a reocurrence in January 2022 and she fought hard for 8 years…
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Anyone noticed Ear infections on perjeta ?
Question for those who may be on perjeta treatment I’ve just come back from GP again - three ear infections now in 6 months ( first perforated ear drum , now on 3rd lot of antibiotics )Ear infections listed as a 1 in 10 side effect of perjeta when you Google side effects If you’ve had them , how did you manage them ?I’ll…
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Long term Herceptin
Hi was just wondering how long people have been on Herceptin and how they are doing? I have celebrated 14 years this January and will have my 238th infusion next week. I have had a mastectomy and am waiting to have the other one removed as I hate the lopsided feel and having all my clothes moving to the left very annoying…
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Accessing super while still working
Does anyone have experience with accessing their superannuation on terminal illness grounds while continuing to work in a reduced capacity? Is this allowed within the super rules, or do you need to give up work? Or are there no defined rules around this? Thanks for your input.
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Trodelvy - any info to share?
Hi, I am reaching out to see if anyone else has commenced Trodelvy chemotherapy and if yes, what are your side effects experiences. I am only in 1st cycle, 2 weeks on/1 week off. Main reaction has been some insomnia and bad fatigue. Wondering about hair loss and at what stage, if anyone has experienced this? Does fatigue…