-
Kisqali, blood tests and scans
I just started on Fulvestrant and Kisqali. First round of Kisqali at 600mg. Bloods show liver enzymes up so oncologist dropped to 400mgs for second round. Oncologist said my blood tests are ineffective at showing tumour markers and this happens sometimes and it's just unlucky for me and one of those unusable things. So the…
-
Scar tissue pain
Hi 3 years on from a mastectomy and a metastatic cancer diagnosis (in my bones) I’m experiencing pain and soreness under my arm, in the chest wall and around the surgery site which seems to be related to scar tissue issues. Can’t seem to find any answers from the medical world. Just wondering if this is normal and what…
-
pain and fatigue and having a whinge
hi everyoneI've come online to have a whinge. My femurs are aching a lot in the last couple of days. I have nails inserted in both of them. Recently had radiation to the left femur and pelvis to help with pain. Now my right femur seems to be giving me heaps of jip now. I think I overdid it the other day - did all the…
-
Prosthetics slipping in bras
Hi Everyone, I've haven't been on this site since January after my double mastectomy. Dealing with the healing, I also lost my husband in April and haven't felt like doing anything or seeing many people. So today I feel a bit better and need to get more energy into my body and start doing things again. I bought a pair of…
-
Enhertu now on PBS list for MBC patients
GREAT NEWS BCNA welcomes the listing of Enhertu (trastuzumab deruxtecan) on the Pharmaceutical Benefits Scheme (PBS) for those with metastatic breast cancer. BCNA supported the process for Enhertu to be considered for listing on the PBS and we welcome the government subsidy for this exciting new drug. “This is a…
-
Kisqali & Letrozole - thankful & fearful...
Hi, I was diagnosed 7 months ago with metastatic breast cancer and am very thankful for Kisqali and Letrozole (which is working!) having been clear for many years after an original diagnosis of lobular breast cancer. Whilst I am very fortunate to be able to get on with life I do fear what happens once the medication stops…
-
Spread to tummy lining and adrenal gland
Hi everyone, had a Petscan on Saturday results today, spread to my stomach lining and adrenal gland now very small but there, has anyone else been in this position? If so how was it treated? I have to have a biopsie done to confirm same cancer then possible infused chemo again,
-
Long term Herceptin
Hi was just wondering how long people have been on Herceptin and how they are doing? I have celebrated 14 years this January and will have my 238th infusion next week. I have had a mastectomy and am waiting to have the other one removed as I hate the lopsided feel and having all my clothes moving to the left very annoying…
-
Inavolisib vs Alpelisib
Hello Thrivers I was diagnosed last September stage 4 de-nova. The cancer had spread from my breast to lymph nodes, to spine and right hip. Pr,er positive her2 negative. I started on Tamoxifin, then Lextrozle with Riboclicib, progression more in my spine, rib and liver. I was tested for the pik3ca mutation. I then went on…
-
New member - Question re oral chemotherapy capecitabine
Original post created by member @Brondocs - moved to Metastatic breast cancer discussions
-
On herceptin and perjeta , stage 4 , itchy skin and now itchy scalp -anyone treated itch sucessfully
I’ve been on H&P for over 12 months -experiencing itchy skin for last 4 months or so. Mostly red spots on chest and shoulders/back Told oncologist and am using cortisone cream on chest and shoulders; also getting DEX with each three weekly H&P infusions . NOW have developed itchy scalp - last night I ended up getting a…
-
Starting Letrozole & palbociclib tomorrow
This discussion was created from comments split from: Metastatic Breast Cancer & avoiding weight gain while on Letrozole ?.
-
pain & metastatic Breast Cancer
@Mez_BCNA and everyone involved in putting the webcast together That was a very helpful discussion tonight I particularly liked the how to measure pain part 1to 10 never really been sure how to answer that one it has always confused me. that needs to shown to me each time I'm asked and then tell me to pick which one best…
-
Mestatic breast cancer
Hello ive forgotten how to get on this site nothing unusual for me lately goin through lot ok here goes I’m on Kisqali / Letrozole and injection once month mine is extensive mestatic disease in my bones plus very mild emphysema need to stop smoking so in the last 9-12 months me and my daughter have been homeless bout five…
-
Kisquali
FYI - I did post in private group last night but no response so thought I'd try here as well. :-) Hi there all, Strange question for you all for a Sunday night - I'm on my 13th round of Kisqali, still on 3 tablets which is highest dose. I'm taking in combination with Letrozole and the bone strengthening injection every 2-3…
