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CT scan results
Hi. I'm into my 6th year after having surgery, chemo and radiation treatment for estrogen positive breast cancer. My recent scan says that I have sclerotic changes in my ribs consistent with Paget's disease. I don't get to see my oncologist for about 6 weeks and I was wondering if anyone really understands what that means…
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Inspiration from Nightbird
For those of you who need some inspiration. This link takes you to a segment of America's Got Talent where a beautiful 30 year old woman sings her own song about her MBC journey over the last 12 months. The song, her voice, and her attitude is truly beautiful and inspiring (although a little bit sad).…
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Triple Negative Breast Cancer Stage 4
Hi everyone, I just joined as I got diagnosed officially yesterday with triple negative breast cancer with Mets in chest wall, liver and a few on lungs. I had back pain, which is apparently not really related as no Mets in my bones showed up on the PET. So it’s a shock. I am 36yrs old and have a beautiful 2 year old…
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Trple neg mets bones and lungs
Hi, my BC is now triple neg, mets in bones and lungs, have had 15 rounds of chemo which was to be ongoing but canceled this week due to ca markers jumping from 72 to 360, anybody else had such a jump, l dont know what if any my next treatment options are. Having a very anxious week waiting for my next round of scans…
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COVID 19 jab
Hi everyone just wondering what everyone is doing about get the COVID 19 jab? I’m booked in for my first dose but having second thoughts with the blood clotting that’s happening, I am over 60 so I’m ok to get it but unsure.
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Capecitabine
Hi everyone, I’ve been on the kisqali/letrozole mix of medications since April 2019, they are starting to not fully work now so they are putting me Capecitabine (chemotherapy) tablets, is anyone else on these if so how’s things on them, side effects ect
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Breast Cancer Trials Q&A with Annabel Crabb - Metastatic Breast Cancer. Feb 7, 2022
This link came thru my emails today and may be of interest to you. In this upcoming Q&A event, moderated by TV presenter Annabel Crabb, we will be discussing the latest in research for metastatic breast cancer with leading researchers, as well as the psychological impacts of this disease and participating in clinical…
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Is anyone under Professor Arlene Chan Onc (WA)? Mets BC treatment
The Annabel Crabb Q&A on Metastatic Breast Cancer is on tonight - starting 5pm East Coast time (I've just received the link.) https://www.breastcancertrials.org.au/qa-registration? On the FB page, lots of other Top Mets BC Oncs are being mentioned too - as having 'turned around Mets BC' ..... giving hope to many of…
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Trying to Stay Positive my journey
"You look so well, lost weight" comments from people l may have not seen for a little while. Thank you l say with a beaming smile, they don't know, should I tell them or not, I don't. l have stage 4 metastatic breast cancer incurable and aggressive l've been told, the little devils have been having a great road trip…
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Webinair on the use of Medicinal Cannabis Oil on Bone Mets & gynaecological cancer
Counterpart has this webinair on NEXT WED at 11am - you will need to register if you'd like to attend. https://counterpart.org.au/events/trial-using-medicinal-cannabis-for-bone-metastases/ Trial using medicinal cannabis for bone metastases Date: Wednesday, 15/09/2021 Time: 11.00am–12.00pm Location: Webinar PLEASE NOTE:…
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Upfront About Breast Cancer PODCAST 'Advance Care Planning - Taking Control of Your Future'
Hi everyone, Please find below information on BCNA's latest Upfront About Breast Cancer Podcase E37: Living with metastatic breast cancer often means you need to make decisions about your treatment and care. As well as working with your treating team to work out decisions surrounding your current care, it’s also good to…
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Dealing with metastatic breast cancer diagnosis
Original post created by member @Opoho moved to own thread in ‘Metastatic breast cancer’ category:
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Bad pains in legs
Original post created by member @Not_good_63_57 moved to own thread in ‘Metastatic breast cancer’ category:
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TUMOUR MARKERS DECREASED BUT SCAN SHOWS INCREASE
Hi all, I have received my mothers results from her cancer markers and they have decreased quite alot but we are so confused because her CT scan shows that theres new cancer spots on her bones and its increased since last scan. This doesnt make any sense and we cant see her oncologist till t=next week. Any advice or help…
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Routine blood tests when on perjeta and herceptin targeted therapy
can anyone on this regime tell me whether they’re getting routine blood tests done prior to each treatment ? Perjeta is suppose to affect white cells and can cause neutropenia according to EViQ protocols Ill be seeing oncologist in a few weeks and will of course discuss with her again but was surprised today at onc ward…