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Stage 1 hormone sensitive to Stage IV
Diagnosed last week with stage 1, hormone sensitive BC in my left breast after I came across a lump. I am 41 with 2 little sons, 4 & 6- it was a massive shock. After CT, bone scans & MRIs this week, my diagnosis has now changed to stage IV oligometastatic BC after finding it had spread to one vertebrae. To say I’m…
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Season 2: Podcast Series "What You Don’t Know Until You Do, with Dr Charlotte Tottman"
Charlotte is back with an 'unlimited' season! Season 2 of our popular Upfront About Breast Cancer podcast What You Don’t Know Until You Do with Clinical Psychologist Dr Charlotte Tottman is available now (You have direct access via the bottom of the Online Network homepage) With over 58,000 listens, Season 1…
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Brain Mets
It’s a long time since I posted here. Herceptin has been doing a great job as scans 6 months ago came back NED! In July I had a nasty fall and needed skin graft on right knee area, 3 weeks in public hospital, then another 3 in private hospital for wound care and rehab. All good until scan 14 Feb. new spots on a rib and…
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Long term Herceptin
Hi was just wondering how long people have been on Herceptin and how they are doing? I have celebrated 14 years this January and will have my 238th infusion next week. I have had a mastectomy and am waiting to have the other one removed as I hate the lopsided feel and having all my clothes moving to the left very annoying…
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Lived Experience Panel: Rockhampton Information Forum
Hi All, We recently created a video snippet of our lived experience panel from BCNA's Rockhampton forum for the Online Network. The video captures key discussion topics: 'Side Effects, 'Communication', 'Sexual health' and 'What I learnt'. Hope you enjoy hearing from BCNA members Michelle Peters and Tracey…
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Questions around removal of the primary in metastatic treatment
I am VERY new here so I hope this is not a silly question..... I have been diagnosed and one of my first shocks was they were no longer going to remove the primary cancer. I understand they say the data does not indicate significant impact on survival however this data is also questionable on integrity as its so old too.…
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Are you a member of the private Living With Metastatic Cancer group?
My name is Rachelle and I am based in Melbourne. I have MBC and joined the newly formed MBC Advisory Group to help BCNA, at this stage, with the revision of the Hope & Hurdles hardcopy guide and to inform BCNA of emerging issues affecting people with metastatic breast cancer. I have also put my hand up to be a group leader…
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S E QUEENSLAND SUPPORT GROUPS
If YOU live in SE Qld from Northern NSW to Mackay I have compiled a list of face to face support groups. I started local support group on the Gold Coast back in 2019 and we now have 630 members - We opened our support group to include Ovarian due to the BRCA gene then gradually to ALL cancers for women on the Gold Coast.…
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Ribociclib/Letrozole Combo - How long have you been on this plse?
Hi Everyone, I've been on the Ribociclib/Letrozole/Denosumab combo now, successfully since Nov 2018. I take only a low dose of Ribociclib, 200mg daily and so far so good. However, I'm heading towards the 18th month mark now and starting to get a little apprehensive about how much longer it will be effective for. I've read…