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Enhertu working
Blossom1961
Member Posts: 2,517 ✭
CT Pet scan and MRI results in. No active cancer anywhere. Previous test showed cancer in brain, bones and adrenal gland. Onco started me on Enhertu five cycles ago and the results are amazing. Feeling pretty happy right now. I still have MBC but it is all asleep. 
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That is amazing congratulations 👏0
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Fantastic news @Blossom1961.
You have found the best treatment team for you.
A sunny day (?) so that makes one extra happy.0 -
Great news 👏I started Enhertu 3 (21 day) cycles ago.
PETscan due in October to see if it’s working.
It’s my 2nd line of treatment.
I found the 1st dose too strong - severe fatigue, nausea and all the other endless side effects of chemo.
My dose has been reduced twice and I’m hoping I can tolerate it with the increase in drugs as well.
Enhertu is very toxic.
Every 3weeks seems daughting for the foreseeable future.
I’ll be forever bald, no nails, neuropathy, fatigue on the 8th and 9th days, constipation, etc ……
How are others coping??
What’s the longest timeline someone has been on Enhertu?3 -
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@Pamelac
One of the Onco nurses told me there are two different Enhertu they can put you on. Different chemo type. Maybe you can check up if the alternative is available. It may have lesser side effects. My main side effects are mouth ulcers and tiredness. I had nausea for the first three rounds but it has appeared to disappear in the last two rounds I have had. I also have it every three weeks for however long it works and I tolerate it. I find one coloxyl tablet for the first five days keeps the constipation under control2 -
TY for that info Blossom1961 - this is also my year of birth 🌷
Information is power.
Good to know there are options.
The Onc who spoke to me said we’ll decrease the dose again before we abandon it - ??!2 -
WOO-bloody-WHOOO!!! That is the most fantastic news I've heard all year, @Blossom1961 xxx.
I am SO happy for you xx.
I hope that your side effects lessen soon @Pamelac (or you can try the other one) and continue with your treatment - hopefully with the same results as Blossom1961!!
take care, both of you xx
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Oh @ @Blossom1961 I am so happy to hear this news from you. It's just fantastic. What are you doing to celebrate 🥳? Pop that cork 🥂.1
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Awesome - great news @Blossom19610
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The best news @Blossom1961 - so very happy for you x
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these are the news we all want to hear. So happy for you Blossom1961 and thank you for sharing your experience.0
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Wonderful news @Blossom1961.0
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Hi Blossom1961 I’m so pleased for you 👏👏👏
I have had a spread to my tummy lining unfortunately.
I have had 1 dose of Enhertu and have not coped really well with side effects, nausea, fatigue and especially the diahorrea, off a lot of foods so lost a lot of weight recently. seeing my oncologist next Friday 11/10 and will chat to her about lowering the dose. You get to the stage on some days you’re feeling so awful you just want to give up! But I have too much to live for so I’m trying to keep going.5 -
Hi Pamelac I’m glad your dose has been reduced, that’s one question I’m going to ask when I see my onc, can’t keep going like this, I had the first dose 10 days ago, so will see what happens when we have a chat.2
