Living with metastatic breast cancer

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Grief & emotions
Hi all, I'm 14 mths since my diagnosis of de nova metastatic breast cancer. I thought i was doing quite well coping with it all, but the last few weeks have really been a struggle. I am done with ha...
mel51
13 days ago
coping
90Views
0likes
2Comments
How to cope
Hi I was diagnosed with metastatic breastcancer ER positive in late January. I get injections every month for hormones and take a tablet everyday. I am on Letrozole, gosserelin and denosumab. I was...
akaye76
21 days ago
hormone therapies
metastases
655Views
2likes
15Comments
67 Male Metastatic Breast Cancer
Good Morning My 67 year old dad was diagnosed at the end of February with Her2 negative breast cancer. He had a mastectomy of the left breast and sentinel lymph nodes removal in March. A week later...
Kk21kk
25 days ago
chemotherapy
clinical trials and research
hormone therapies
metastases
progression
85Views
0likes
3Comments
Capecitibane
Hi there I now have secondary breast lung cancer nodules. My oncologist has trialed me on Pablociclib and Abemaciclib however nodules have continued to grow and increase in number. They are now sug...
eddiek
2 months ago
chemotherapy
progression
recurrence
side effects
178Views
2likes
2Comments
New to the Team- not exactly happy about it
Hi, 03Dec had a lump checked- invasive lobular cancer, left breast. 09Dec- MRI and spot detected right breast followed by biopsy- same cancer although non-palpable. 19Dec bilateral partial masectomy...
CocoBean71
3 months ago
coping
metastases
progression
364Views
0likes
8Comments
A Qld based Mets Group called Advanced Breast Cancer Group
I've just found this Advanced Breast Cancer group online - it is 'based in Qld' but I would think it could be a useful group for anyone with Mets? "We are a Queensland- wide service specifically de...
arpie
4 months ago
metastases
70Views
0likes
0Comments
Abemaciclib and hair loss/thinning
Hi lovely ladies I have metastatic BC (adenocarcinomas in chest wall) and have recently switched from Pablociclib (as my immunity was being significantly impacted and ended up with cellulitis and se...
eddiek
4 months ago
side effects
292Views
0likes
3Comments
Dupuytren Contracture
Moderator moved @jaynie_000 comment to dedicated discussion post: This is my first post on this platform. I see my oncologist tomorrow, but I have developed a painful and growing nodule on my ring ...
Mez_BCNA
4 months ago
metastatic-breast-cancer
side-effects
241Views
0likes
2Comments
Whats going to happen next
as the heading states what next. I want to be the mum I was before metastatic BC came along tonight I just want to find somewhere to roll up into a ball and cry with the unfairness of it all. If i...
cranky_granny
4 months ago
coping
704Views
3likes
25Comments
Christmas emotions
This was my first Christmas with cancer and it definitely felt different. I have been pretty good lately about not worrying about the future but I was quite emotional Christmas morning. I kept thinki...
mel51
4 months ago
coping
emotions
178Views
4likes
6Comments
‼️Tomorrow is the day.
No one knows how many people are living with metastatic breast cancer, not just in Australia, but around the world - something that BCNA has been advocating to change for over 27 years. Together, ...
Christina_BCNA
5 months ago
advocacy
metastatic
48Views
2likes
0Comments
November 27th is almost here..... 🥳🥳
Metastatic breast cancer (MBC) is treatable but incurable. No one knows how many people are living with MBC not just in Australia, but around the world, something that BCNA has been advocating to cha...
Christina_BCNA
5 months ago
advocacy
metastatic
104Views
3likes
5Comments
November 27 🚨 Big News Coming! 🚨Counting Metastatic Breast Cancer
In 2022, BCNA began the Making Metastatic Breast Cancer Count initiative - a vital step toward ensuring every person living with metastatic breast cancer is counted and supported. After years of ad...
Christina_BCNA
6 months ago
advocacy
metastatic
54Views
1like
0Comments
Thursday Girls - a weekly Metastatic support group in Melbourne ...
l've just received a BC newsletter that includes information on the Thursday Girls in Melbourne - Thursday Girls provides a safe supportive space for members (and their partners) who are dealing with...
arpie
6 months ago
metastases
84Views
3likes
1Comment
🗣️Help keep metastatic breast cancer on the national agenda
As we continue to push for change to ensure that people living with metastatic breast cancer are counted in Australia’s cancer registries, we’d love your input through a short survey. The survey as...
BCNA_Mod
6 months ago
metastatic breast cancer
61Views
3likes
1Comment
🗣️ Share your views: Finding My Way Advanced+
Finding My Way-Advanced was one of the first self-guided web-based programs designed to improve wellbeing for people with metastatic breast cancer. Flinders University are now seeking participants ...
BCNA_Mod
7 months ago
clinical trials and research
metastatic breast cancer
research
survey
71Views
3likes
0Comments
📣 Survey Invitation: Tucatinib (Tukysa) and Metastatic Breast Cancer
Dear members, We'd like to invite you to take part in a short survey about tucatinib (Tukysa) for people with human epidermal growth factor receptor 2 positive (HER2+) metastatic breast cancer. T...
BCNA_Mod
8 months ago
clinical trials and research
metastatic-breast-cancer
survey
tag
treatment
73Views
1like
0Comments
Vaginal dryness
Hi all, I'm on letrozole and have noticed increasing vaginal discomfort. I have tried a few vaginal moisturisers already but aren't happy with them. Just wondering if anyone has any good ones they c...
mel51
8 months ago
side effects
374Views
1like
11Comments
It’s been awhile . Lobular and scans
I just wanted to touch base and say hello. I was diagnosed 2018 Denovo ILC to GI tract. First line of treatment Ribociclib/ Letrozole was on this for just over 5 years . Well tolerated until I cou...
Mimand
9 months ago
side effects
175Views
0likes
1Comment
University of Qld study encourages women to exercise & pay attention to their nutrition.
Recruiting NOW until end of 2025. After being diagnosed with stage 4 breast cancer, Sharon Oakley felt her world fall apart. Now, she's finding new strength through a UQ study examining how diet an...
arpie
9 months ago
exercise
Mets
nutrition
Stage 4
121Views
1like
0Comments

Tags

metastatic-breast-cancer149 Topics
coping92 Topics
metastases77 Topics
chemotherapy53 Topics
side-effects46 Topics
emotions36 Topics
inspiration27 Topics
herceptin23 Topics
family22 Topics
treatment20 Topics