Living with metastatic breast cancer

Forum Widgets

Recent Discussions

From bad to worse, but getting better.
I remember writing in these forums when I first had early breast cancer. I’m back! I was diagnosed MBC last year in March. It’s been a crazy roller coaster! My original cancer was triple positive IBC...
kabash
15 hours ago
coping
metastases
progression
recurrence
107Views
0likes
4Comments
Abemaciclib and hair loss/thinning
Hi lovely ladies I have metastatic BC (adenocarcinomas in chest wall) and have recently switched from Pablociclib (as my immunity was being significantly impacted and ended up with cellulitis and se...
eddiek
5 days ago
side effects
37Views
0likes
1Comment
Whats going to happen next
as the heading states what next. I want to be the mum I was before metastatic BC came along tonight I just want to find somewhere to roll up into a ball and cry with the unfairness of it all. If i...
cranky_granny
30 days ago
coping
263Views
0likes
10Comments
Living with metastatic breast cancer in QLD?
Good afternoon, I hope this message finds you well. We're looking for individuals living with metastatic breast cancer (MBC) in Qld who may wish to participate or share a quote for a BCNA press rel...
Emma_BCNA
2 months ago
advocacy
metastases
88Views
1like
1Comment
Online / Dating pools for people living with MBC - How…where…what?!
MBC Sisters I need your help…please read ahead of this resonates! I am completely at a loss on how to navigate finding people I’d be interested in dating when I personally feel that the fact I am so...
Bowie2015
3 months ago
dating
Finding love
Meeting new people
metastatic breast cancer
126Views
2likes
2Comments
Palbociclib Side effects back
That didn’t take long to have all the side effects back. i sure enjoyed the break maybe too much did heaps and had lots happening Just finished my 21 days and it's been like i didn’t get a break at al...
cranky_granny
4 months ago
620Views
0likes
30Comments
I just found out today
I had my first appointment with my oncologist this afternoon. I had had a PET scan and MRI earlier in the week. I received the results today that the cancer has metastasised. They found a spot on my s...
charliegirl
5 months ago
metastatic-breast-cancer
510Views
0likes
10Comments
Allergic reaction to chemo
Hi All, I'm interested to hear if anyone has had an allergic reaction to their an intravenous chemo infusion and how this affected their treatment plan? What symptoms did you experience? and did you c...
Smiley_Van_Wink
5 months ago
339Views
0likes
11Comments
Fulvestrant pain - any suggestions?
Hi everyone I’ve just started on Fulvestrant & was wondering if anyone has any tips on decreasing the pain on injection & the sore bum afterwards. I’ve been advised to use a heat pack & massage wit...
vickfromvic
6 months ago
pain
270Views
0likes
11Comments
6 month update TNBC Stage 4
Hi everyone, bit of a flat day, thought I would post an update, writing my journey out helps me. It's also so hard to find anyone with a similar diagnosis to talk to...on this site. TNBC Stage 4 M...
TrishV
7 months ago
468Views
0likes
6Comments
Kisqali & Letrozole - thankful & fearful...
Hi, I was diagnosed 7 months ago with metastatic breast cancer and am very thankful for Kisqali and Letrozole (which is working!) having been clear for many years after an original diagnosis of lobula...
MargaretTurner
7 months ago
1.4KViews
1like
20Comments
Rash on letrozole
good morning everyone. I've developed a rash on my body on day 4 of starting Letrozole. Anyone else had this side effect? I rang my oncologist last night who recommend antihistamine to get me through ...
Judy_M
8 months ago
198Views
0likes
9Comments
Treatment in Australia
Hi there, I am a New Zealander and I am wondering if I would be eligible to receive treatment in Australia. I am very disappointed in the care I have received in NZ, it hasn't always been like this ...
Helenesylvia
9 months ago
209Views
0likes
4Comments
ERIBULIN/CLINICAL TRIAL
Hi all, just an update on @ter1969 me. At the moment on Eribulin after previous treatment not fully working as have new mets and am on home oxygen as my oxygen sats have gone down so a big shift in ho...
ter1969
9 months ago
125Views
0likes
4Comments
Enhertu working
CT Pet scan and MRI results in. No active cancer anywhere. Previous test showed cancer in brain, bones and adrenal gland. Onco started me on Enhertu five cycles ago and the results are amazing. Feelin...
Blossom1961
9 months ago
enhertu
metastatic-breast-cancer
678Views
2likes
21Comments
Support groups for metastatic breast cancer
Hi, I'm looking for a support group for people with metastatic breast cancer in the eastern suburbs of Sydney preferably face-to-face but Zoom is OK also. Appreciate any info members may be aware of -...
MargaretTurner
9 months ago
176Views
0likes
3Comments
New member
Hi. I was diagnosed with mbc in 2021. An MRI done of my hip (me thinking I needed a hip replacement) revealed a bone lesion and further scans showed I had lesions in my skull, breast bone and right sh...
joyalick6
10 months ago
letrozole
metastatic-breast-cancer
survivorship
treatment
199Views
2likes
3Comments
Choosing to stop treatment
I was diagnosed with metastases in October last year and was given ~12 months. We tried Trodelvy but it was too hard on my body. Tried Eribulen but a recent CT scan showed it’s not working. my onc ...
ilovewhenitrain
10 months ago
890Views
0likes
11Comments
Hot spa's and stage 4 breast cancer?
Hi ladies, I am about to head down to warrnambool with my breast cancer support group for long weekend retreat. We are visiting hot spa's on Sunday and my question is can I go into hot spa? I don't ha...
Ktre
11 months ago
168Views
0likes
4Comments
Dupuytren Contracture
Moderator moved @jaynie_000 comment to dedicated discussion post: This is my first post on this platform. I see my oncologist tomorrow, but I have developed a painful and growing nodule on my ring ...
Mez_BCNA
12 months ago
metastatic-breast-cancer
side-effects
77Views
0likes
1Comment

Tags

metastatic-breast-cancer148 Topics
coping89 Topics
metastases72 Topics
chemotherapy51 Topics
side-effects46 Topics
emotions35 Topics
inspiration27 Topics
herceptin23 Topics
family22 Topics
anxiety19 Topics