Living with metastatic breast cancer

Recent Discussions

How to cope
Hi I was diagnosed with metastatic breastcancer ER positive in late January. I get injections every month for hormones and take a tablet everyday. I am on Letrozole, gosserelin and denosumab. I was...
akaye76
6 days ago
hormone therapies
metastases
368Views
2likes
15Comments
A Qld based Mets Group called Advanced Breast Cancer Group
I've just found this Advanced Breast Cancer group online - it is 'based in Qld' but I would think it could be a useful group for anyone with Mets? "We are a Queensland- wide service specifically de...
arpie
17 days ago
metastases
27Views
0likes
0Comments
Abemaciclib and hair loss/thinning
Hi lovely ladies I have metastatic BC (adenocarcinomas in chest wall) and have recently switched from Pablociclib (as my immunity was being significantly impacted and ended up with cellulitis and se...
eddiek
19 days ago
side effects
199Views
0likes
3Comments
Dupuytren Contracture
Moderator moved @jaynie_000 comment to dedicated discussion post: This is my first post on this platform. I see my oncologist tomorrow, but I have developed a painful and growing nodule on my ring ...
Mez_BCNA
20 days ago
metastatic-breast-cancer
side-effects
158Views
0likes
2Comments
New to the Team- not exactly happy about it
Hi, 03Dec had a lump checked- invasive lobular cancer, left breast. 09Dec- MRI and spot detected right breast followed by biopsy- same cancer although non-palpable. 19Dec bilateral partial masectomy...
CocoBean71
24 days ago
coping
metastases
progression
199Views
0likes
7Comments
Whats going to happen next
as the heading states what next. I want to be the mum I was before metastatic BC came along tonight I just want to find somewhere to roll up into a ball and cry with the unfairness of it all. If i...
cranky_granny
26 days ago
coping
617Views
2likes
25Comments
Christmas emotions
This was my first Christmas with cancer and it definitely felt different. I have been pretty good lately about not worrying about the future but I was quite emotional Christmas morning. I kept thinki...
mel51
1 month ago
coping
emotions
134Views
3likes
6Comments
‼️Tomorrow is the day.
No one knows how many people are living with metastatic breast cancer, not just in Australia, but around the world - something that BCNA has been advocating to change for over 27 years. Together, ...
Christina_BCNA
2 months ago
advocacy
metastatic
31Views
2likes
0Comments
November 27th is almost here..... 🥳🥳
Metastatic breast cancer (MBC) is treatable but incurable. No one knows how many people are living with MBC not just in Australia, but around the world, something that BCNA has been advocating to cha...
Christina_BCNA
2 months ago
advocacy
metastatic
68Views
3likes
5Comments
November 27 🚨 Big News Coming! 🚨Counting Metastatic Breast Cancer
In 2022, BCNA began the Making Metastatic Breast Cancer Count initiative - a vital step toward ensuring every person living with metastatic breast cancer is counted and supported. After years of ad...
Christina_BCNA
2 months ago
advocacy
metastatic
44Views
1like
0Comments
Thursday Girls - a weekly Metastatic support group in Melbourne ...
l've just received a BC newsletter that includes information on the Thursday Girls in Melbourne - Thursday Girls provides a safe supportive space for members (and their partners) who are dealing with...
arpie
2 months ago
metastases
67Views
3likes
1Comment
🗣️Help keep metastatic breast cancer on the national agenda
As we continue to push for change to ensure that people living with metastatic breast cancer are counted in Australia’s cancer registries, we’d love your input through a short survey. The survey as...
BCNA_Mod
3 months ago
metastatic breast cancer
51Views
3likes
1Comment
🗣️ Share your views: Finding My Way Advanced+
Finding My Way-Advanced was one of the first self-guided web-based programs designed to improve wellbeing for people with metastatic breast cancer. Flinders University are now seeking participants ...
BCNA_Mod
4 months ago
clinical trials and research
metastatic breast cancer
research
survey
61Views
3likes
0Comments
📣 Survey Invitation: Tucatinib (Tukysa) and Metastatic Breast Cancer
Dear members, We'd like to invite you to take part in a short survey about tucatinib (Tukysa) for people with human epidermal growth factor receptor 2 positive (HER2+) metastatic breast cancer. T...
BCNA_Mod
4 months ago
clinical trials and research
metastatic-breast-cancer
survey
tag
treatment
55Views
1like
0Comments
Vaginal dryness
Hi all, I'm on letrozole and have noticed increasing vaginal discomfort. I have tried a few vaginal moisturisers already but aren't happy with them. Just wondering if anyone has any good ones they c...
mel51
4 months ago
side effects
255Views
1like
11Comments
It’s been awhile . Lobular and scans
I just wanted to touch base and say hello. I was diagnosed 2018 Denovo ILC to GI tract. First line of treatment Ribociclib/ Letrozole was on this for just over 5 years . Well tolerated until I cou...
Mimand
5 months ago
side effects
148Views
0likes
1Comment
University of Qld study encourages women to exercise & pay attention to their nutrition.
Recruiting NOW until end of 2025. After being diagnosed with stage 4 breast cancer, Sharon Oakley felt her world fall apart. Now, she's finding new strength through a UQ study examining how diet an...
arpie
6 months ago
exercise
Mets
nutrition
Stage 4
112Views
1like
0Comments
From bad to worse, but getting better.
I remember writing in these forums when I first had early breast cancer. I’m back! I was diagnosed MBC last year in March. It’s been a crazy roller coaster! My original cancer was triple positive IBC...
kabash
6 months ago
coping
metastases
progression
recurrence
279Views
1like
4Comments
Living with metastatic breast cancer in QLD?
Good afternoon, I hope this message finds you well. We're looking for individuals living with metastatic breast cancer (MBC) in Qld who may wish to participate or share a quote for a BCNA press rel...
Emma_BCNA
8 months ago
advocacy
metastases
152Views
1like
1Comment
Online / Dating pools for people living with MBC - How…where…what?!
MBC Sisters I need your help…please read ahead of this resonates! I am completely at a loss on how to navigate finding people I’d be interested in dating when I personally feel that the fact I am so...
Bowie2015
8 months ago
dating
Finding love
Meeting new people
metastatic breast cancer
165Views
2likes
2Comments

Living with metastatic breast cancer

Forum Widgets

Recent Discussions

How to cope

A Qld based Mets Group called Advanced Breast Cancer Group

Abemaciclib and hair loss/thinning

Dupuytren Contracture

New to the Team- not exactly happy about it

Whats going to happen next

Christmas emotions

‼️Tomorrow is the day.

November 27th is almost here..... 🥳🥳

November 27 🚨 Big News Coming! 🚨Counting Metastatic Breast Cancer

Thursday Girls - a weekly Metastatic support group in Melbourne ...

🗣️Help keep metastatic breast cancer on the national agenda

🗣️ Share your views: Finding My Way Advanced+

📣 Survey Invitation: Tucatinib (Tukysa) and Metastatic Breast Cancer

Vaginal dryness

It’s been awhile . Lobular and scans

University of Qld study encourages women to exercise & pay attention to their nutrition.

From bad to worse, but getting better.

Living with metastatic breast cancer in QLD?

Online / Dating pools for people living with MBC - How…where…what?!

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