Living with metastatic breast cancer

Recent Discussions

‼️Tomorrow is the day.
No one knows how many people are living with metastatic breast cancer, not just in Australia, but around the world - something that BCNA has been advocating to change for over 27 years. Together, ...
Christina_BCNA
10 days ago
advocacy
metastatic
11Views
1like
0Comments
November 27th is almost here..... 🥳🥳
Metastatic breast cancer (MBC) is treatable but incurable. No one knows how many people are living with MBC not just in Australia, but around the world, something that BCNA has been advocating to cha...
Christina_BCNA
11 days ago
advocacy
metastatic
48Views
3likes
5Comments
November 27 🚨 Big News Coming! 🚨Counting Metastatic Breast Cancer
In 2022, BCNA began the Making Metastatic Breast Cancer Count initiative - a vital step toward ensuring every person living with metastatic breast cancer is counted and supported. After years of ad...
Christina_BCNA
16 days ago
advocacy
metastatic
29Views
1like
0Comments
Thursday Girls - a weekly Metastatic support group in Melbourne ...
l've just received a BC newsletter that includes information on the Thursday Girls in Melbourne - Thursday Girls provides a safe supportive space for members (and their partners) who are dealing with...
arpie
24 days ago
metastases
51Views
3likes
1Comment
How to cope
Hi I was diagnosed with metastatic breastcancer ER positive in late January. I get injections every month for hormones and take a tablet everyday. I am on Letrozole, gosserelin and denosumab. I was...
akaye76
24 days ago
hormone therapies
metastases
209Views
1like
6Comments
🗣️Help keep metastatic breast cancer on the national agenda
As we continue to push for change to ensure that people living with metastatic breast cancer are counted in Australia’s cancer registries, we’d love your input through a short survey. The survey as...
BCNA_Mod
2 months ago
metastatic breast cancer
44Views
3likes
1Comment
Whats going to happen next
as the heading states what next. I want to be the mum I was before metastatic BC came along tonight I just want to find somewhere to roll up into a ball and cry with the unfairness of it all. If i...
cranky_granny
2 months ago
coping
453Views
1like
19Comments
🗣️ Share your views: Finding My Way Advanced+
Finding My Way-Advanced was one of the first self-guided web-based programs designed to improve wellbeing for people with metastatic breast cancer. Flinders University are now seeking participants ...
BCNA_Mod
3 months ago
clinical trials and research
metastatic breast cancer
research
survey
52Views
3likes
0Comments
📣 Survey Invitation: Tucatinib (Tukysa) and Metastatic Breast Cancer
Dear members, We'd like to invite you to take part in a short survey about tucatinib (Tukysa) for people with human epidermal growth factor receptor 2 positive (HER2+) metastatic breast cancer. T...
BCNA_Mod
3 months ago
clinical trials and research
metastatic-breast-cancer
survey
tag
treatment
47Views
1like
0Comments
Vaginal dryness
Hi all, I'm on letrozole and have noticed increasing vaginal discomfort. I have tried a few vaginal moisturisers already but aren't happy with them. Just wondering if anyone has any good ones they c...
mel51
3 months ago
side effects
211Views
1like
11Comments
It’s been awhile . Lobular and scans
I just wanted to touch base and say hello. I was diagnosed 2018 Denovo ILC to GI tract. First line of treatment Ribociclib/ Letrozole was on this for just over 5 years . Well tolerated until I cou...
Mimand
4 months ago
side effects
129Views
0likes
1Comment
University of Qld study encourages women to exercise & pay attention to their nutrition.
Recruiting NOW until end of 2025. After being diagnosed with stage 4 breast cancer, Sharon Oakley felt her world fall apart. Now, she's finding new strength through a UQ study examining how diet an...
arpie
5 months ago
exercise
Mets
nutrition
Stage 4
103Views
1like
0Comments
Abemaciclib and hair loss/thinning
Hi lovely ladies I have metastatic BC (adenocarcinomas in chest wall) and have recently switched from Pablociclib (as my immunity was being significantly impacted and ended up with cellulitis and se...
eddiek
5 months ago
side effects
139Views
0likes
2Comments
From bad to worse, but getting better.
I remember writing in these forums when I first had early breast cancer. I’m back! I was diagnosed MBC last year in March. It’s been a crazy roller coaster! My original cancer was triple positive IBC...
kabash
5 months ago
coping
metastases
progression
recurrence
243Views
0likes
4Comments
Living with metastatic breast cancer in QLD?
Good afternoon, I hope this message finds you well. We're looking for individuals living with metastatic breast cancer (MBC) in Qld who may wish to participate or share a quote for a BCNA press rel...
Emma_BCNA
7 months ago
advocacy
metastases
137Views
1like
1Comment
Online / Dating pools for people living with MBC - How…where…what?!
MBC Sisters I need your help…please read ahead of this resonates! I am completely at a loss on how to navigate finding people I’d be interested in dating when I personally feel that the fact I am so...
Bowie2015
8 months ago
dating
Finding love
Meeting new people
metastatic breast cancer
155Views
2likes
2Comments
Palbociclib Side effects back
That didn’t take long to have all the side effects back. i sure enjoyed the break maybe too much did heaps and had lots happening Just finished my 21 days and it's been like i didn’t get a break at al...
cranky_granny
8 months ago
693Views
0likes
30Comments
I just found out today
I had my first appointment with my oncologist this afternoon. I had had a PET scan and MRI earlier in the week. I received the results today that the cancer has metastasised. They found a spot on my s...
charliegirl
10 months ago
metastatic-breast-cancer
581Views
0likes
10Comments
Allergic reaction to chemo
Hi All, I'm interested to hear if anyone has had an allergic reaction to their an intravenous chemo infusion and how this affected their treatment plan? What symptoms did you experience? and did you c...
Smiley_Van_Wink
10 months ago
380Views
0likes
11Comments
Fulvestrant pain - any suggestions?
Hi everyone I’ve just started on Fulvestrant & was wondering if anyone has any tips on decreasing the pain on injection & the sore bum afterwards. I’ve been advised to use a heat pack & massage wit...
vickfromvic
11 months ago
pain
323Views
0likes
11Comments

Living with metastatic breast cancer

Forum Widgets

Recent Discussions

‼️Tomorrow is the day.

November 27th is almost here..... 🥳🥳

November 27 🚨 Big News Coming! 🚨Counting Metastatic Breast Cancer

Thursday Girls - a weekly Metastatic support group in Melbourne ...

How to cope

🗣️Help keep metastatic breast cancer on the national agenda

Whats going to happen next

🗣️ Share your views: Finding My Way Advanced+

📣 Survey Invitation: Tucatinib (Tukysa) and Metastatic Breast Cancer

Vaginal dryness

It’s been awhile . Lobular and scans

University of Qld study encourages women to exercise & pay attention to their nutrition.

Abemaciclib and hair loss/thinning

From bad to worse, but getting better.

Living with metastatic breast cancer in QLD?

Online / Dating pools for people living with MBC - How…where…what?!

Palbociclib Side effects back

I just found out today

Allergic reaction to chemo

Fulvestrant pain - any suggestions?

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