Living with metastatic breast cancer

Recent Discussions

Thursday Girls - a weekly Metastatic support group in Melbourne ...
l've just received a BC newsletter that includes information on the Thursday Girls in Melbourne - Thursday Girls provides a safe supportive space for members (and their partners) who are dealing with...
arpie
3 days ago
metastases
29Views
1like
1Comment
How to cope
Hi I was diagnosed with metastatic breastcancer ER positive in late January. I get injections every month for hormones and take a tablet everyday. I am on Letrozole, gosserelin and denosumab. I was...
akaye76
3 days ago
hormone therapies
metastases
175Views
1like
6Comments
🗣️Help keep metastatic breast cancer on the national agenda
As we continue to push for change to ensure that people living with metastatic breast cancer are counted in Australia’s cancer registries, we’d love your input through a short survey. The survey as...
BCNA_Mod
18 days ago
metastatic breast cancer
38Views
3likes
1Comment
Whats going to happen next
as the heading states what next. I want to be the mum I was before metastatic BC came along tonight I just want to find somewhere to roll up into a ball and cry with the unfairness of it all. If i...
cranky_granny
2 months ago
coping
442Views
1like
19Comments
🗣️ Share your views: Finding My Way Advanced+
Finding My Way-Advanced was one of the first self-guided web-based programs designed to improve wellbeing for people with metastatic breast cancer. Flinders University are now seeking participants ...
BCNA_Mod
2 months ago
clinical trials and research
metastatic breast cancer
research
survey
47Views
3likes
0Comments
📣 Survey Invitation: Tucatinib (Tukysa) and Metastatic Breast Cancer
Dear members, We'd like to invite you to take part in a short survey about tucatinib (Tukysa) for people with human epidermal growth factor receptor 2 positive (HER2+) metastatic breast cancer. T...
BCNA_Mod
3 months ago
clinical trials and research
metastatic-breast-cancer
survey
tag
treatment
41Views
1like
0Comments
Vaginal dryness
Hi all, I'm on letrozole and have noticed increasing vaginal discomfort. I have tried a few vaginal moisturisers already but aren't happy with them. Just wondering if anyone has any good ones they c...
mel51
3 months ago
side effects
203Views
1like
11Comments
It’s been awhile . Lobular and scans
I just wanted to touch base and say hello. I was diagnosed 2018 Denovo ILC to GI tract. First line of treatment Ribociclib/ Letrozole was on this for just over 5 years . Well tolerated until I cou...
Mimand
4 months ago
side effects
124Views
0likes
1Comment
University of Qld study encourages women to exercise & pay attention to their nutrition.
Recruiting NOW until end of 2025. After being diagnosed with stage 4 breast cancer, Sharon Oakley felt her world fall apart. Now, she's finding new strength through a UQ study examining how diet an...
arpie
4 months ago
exercise
Mets
nutrition
Stage 4
97Views
1like
0Comments
Abemaciclib and hair loss/thinning
Hi lovely ladies I have metastatic BC (adenocarcinomas in chest wall) and have recently switched from Pablociclib (as my immunity was being significantly impacted and ended up with cellulitis and se...
eddiek
4 months ago
side effects
133Views
0likes
2Comments
From bad to worse, but getting better.
I remember writing in these forums when I first had early breast cancer. I’m back! I was diagnosed MBC last year in March. It’s been a crazy roller coaster! My original cancer was triple positive IBC...
kabash
4 months ago
coping
metastases
progression
recurrence
236Views
0likes
4Comments
Living with metastatic breast cancer in QLD?
Good afternoon, I hope this message finds you well. We're looking for individuals living with metastatic breast cancer (MBC) in Qld who may wish to participate or share a quote for a BCNA press rel...
Emma_BCNA
6 months ago
advocacy
metastases
132Views
1like
1Comment
Online / Dating pools for people living with MBC - How…where…what?!
MBC Sisters I need your help…please read ahead of this resonates! I am completely at a loss on how to navigate finding people I’d be interested in dating when I personally feel that the fact I am so...
Bowie2015
7 months ago
dating
Finding love
Meeting new people
metastatic breast cancer
149Views
2likes
2Comments
Palbociclib Side effects back
That didn’t take long to have all the side effects back. i sure enjoyed the break maybe too much did heaps and had lots happening Just finished my 21 days and it's been like i didn’t get a break at al...
cranky_granny
7 months ago
690Views
0likes
30Comments
I just found out today
I had my first appointment with my oncologist this afternoon. I had had a PET scan and MRI earlier in the week. I received the results today that the cancer has metastasised. They found a spot on my s...
charliegirl
9 months ago
metastatic-breast-cancer
572Views
0likes
10Comments
Allergic reaction to chemo
Hi All, I'm interested to hear if anyone has had an allergic reaction to their an intravenous chemo infusion and how this affected their treatment plan? What symptoms did you experience? and did you c...
Smiley_Van_Wink
9 months ago
373Views
0likes
11Comments
Fulvestrant pain - any suggestions?
Hi everyone I’ve just started on Fulvestrant & was wondering if anyone has any tips on decreasing the pain on injection & the sore bum afterwards. I’ve been advised to use a heat pack & massage wit...
vickfromvic
10 months ago
pain
312Views
0likes
11Comments
6 month update TNBC Stage 4
Hi everyone, bit of a flat day, thought I would post an update, writing my journey out helps me. It's also so hard to find anyone with a similar diagnosis to talk to...on this site. TNBC Stage 4 M...
TrishV
10 months ago
523Views
0likes
6Comments
Kisqali & Letrozole - thankful & fearful...
Hi, I was diagnosed 7 months ago with metastatic breast cancer and am very thankful for Kisqali and Letrozole (which is working!) having been clear for many years after an original diagnosis of lobula...
MargaretTurner
11 months ago
1.6KViews
1like
20Comments
Rash on letrozole
good morning everyone. I've developed a rash on my body on day 4 of starting Letrozole. Anyone else had this side effect? I rang my oncologist last night who recommend antihistamine to get me through ...
Judy_M
12 months ago
224Views
0likes
9Comments

Living with metastatic breast cancer

Forum Widgets

Recent Discussions

Thursday Girls - a weekly Metastatic support group in Melbourne ...

How to cope

🗣️Help keep metastatic breast cancer on the national agenda

Whats going to happen next

🗣️ Share your views: Finding My Way Advanced+

📣 Survey Invitation: Tucatinib (Tukysa) and Metastatic Breast Cancer

Vaginal dryness

It’s been awhile . Lobular and scans

University of Qld study encourages women to exercise & pay attention to their nutrition.

Abemaciclib and hair loss/thinning

From bad to worse, but getting better.

Living with metastatic breast cancer in QLD?

Online / Dating pools for people living with MBC - How…where…what?!

Palbociclib Side effects back

I just found out today

Allergic reaction to chemo

Fulvestrant pain - any suggestions?

6 month update TNBC Stage 4

Kisqali & Letrozole - thankful & fearful...

Rash on letrozole

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