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eddiek's avatar
eddiek
Member
4 months ago

Abemaciclib and hair loss/thinning

Hi lovely ladies

I have metastatic BC (adenocarcinomas in chest wall) and have recently switched from Pablociclib (as my immunity was being significantly impacted and ended up with cellulitis and sepsis as a result) to now Abemaciclib with the monthly Fulvestrant injection.

I have only been on abemaciclib now for 4-5 weeks and my hair has thinned significantly all of a sudden...after losing my hair twice with two lots of chemo in 10 years I am now quite fond of the hair I have grown since my last chemo.  Sounds silly but with everything else I don't want to lose my hair again.

My beautiful BC nurse advised this would likely happen but everything you read suggests it will only stop thinning/disappearing when you stop the abemaciclib..potentially that won't happen.

Can anyone share what has happened to them please in this regard - much appreciated thank you :)

side effects

2 Replies

  • eddiek's avatar
    eddiek
    Member
    3 months ago

    Hi Katie x apologies for late reply! Thank you very much for your informative response, I really appreciate it and you gave me some hope! Take care and I wish you well x

  • Katie46's avatar
    Katie46
    Member
    4 months ago

    eddiek​ I've been on abemaciclib for about 10 months now of a 2 year cycle. My hair goes through phases of shedding, but I still seem to have plenty of it at this stage. I have noticed I have baby hair regrowth at my temples. I'm not sure if the shedding is caused by the abemaciclib, letrozole or just naturally sorting out it's new shedding patterns as its only been growing back for a year or so.

    It can be alarming at times, as I am fond of my new hair too. My old hair did shed quite a bit, so I'm hoping it will settle down.