Daughter
hi everyone, just need to vent, oh f..... oh s... oh f..... I was diagnosed earlier this year with Mets, son had testicular cancer in 2017, he all clear which is awesome. Youngest daughter who is 29 rings me today, mum I found a lump, have been to the doctors got an ultra sound tomorrow, doctor has put on the referral it’s auxillary tail. I’m frightened and really scared for her, I have everything I can crossed and I’m hopeful it’s only a fat lump as she has a few of those as well around different parts of her body which her dad also has. Please please be that. OMG what have I passed onto my kids.Faslodex/Fulvestrant
Hi everyone, anyone been able to get this on compassionate grounds. My onc wants me to take it. However, the first injections is free, the next three months you have too pay for and then it is free for life. it is $900 a month. Being on a pension, I dont have that sort of money to throw away. I still have other options. Dx 5 years ago MBC, the only treatment I have had so far is Arimidex, Xgeva bi-monthly and Aromasin. I dont want my family paying for a treatment that may not even work. Best i go straight to Xeloda methinks.
secondary bc - new journey
Although i read regular blogs have not posted before. In 2012 i had a partial mastectomy, fec and doxi chemo, radio therapy. Over the last couple of months i have been feeling unwell and short of breath. Now i am starting chemo again tomorrow for secondary in my liver and lungs. Not good, but have to fight again. Very scary for myself and my lovely family. I have a 11month old grand daughter i want to see grow up. I am not sure if this has actually sunk in yet. But here we go again on the bc roller coaster. Love to everyone. ??
Dealing with secondary TNBC
Hi there My name is Jenny. I'm 36 and have just been diagnosed with secondary TNBC in my lungs. I was originally diagnosed with breast cancer early August and have just completed 3 rounds of TC to find out that recent scans show some nodes on my lungs have grown - aka secondary cancer. Something no one, including my medical team, expected. I am now about to start EC to see if we can find a chemo which will reduce the tumours. My doctor has several others up his sleeves too. Thankfully (if I can say that) it's low-volume disease and the plan is to get me through the next few years but it sounds like I'll be lucky to make it to 40. Typically I'm a very glass half-full type of person and always look for the optimistic side of things but the hard part is that you don't hear many long-term survivor stories for TNBC and magic wand aside, it's a hope we really need. My husband is obviously devastated and whilst my 3yo daughter is blissfully unaware, I know that a future we didn't predict for her will unfold. Any words of advice, encouragement, hope, any other secondary TNBC survivors out there would be greatfully appreciated. I'm trying to get on with living with cancer but the news is still so raw. Thanks so much, Jenny
Diagnosed stage 4
Hello, I am mother of 2 young girls and just diagnosed stage 4, six months after completing all the adjunctive treatment for stage 1 early breaststroke cancer. I am trying hard to get my head around it all, especially after all signs were good. I was wondering how long any one has survived stage 4, I have just started chemo therapy again, it's hard not knowing whether it will work or not.
My mum has been diagnosed with secondary breast cancer in the liver
I found out that my mum has been diagnosed with secondary breast cancer in the liver. There are no words to describe just how devastated I am. She was diagnosed with primary breast cancer last year in June and went through 8 rounds of chemo, surgery to remove her left breast and further radio treatment. I cant bear to see her go through the pain again. I love her so much. She is my best friend, my soulmate. My father past away two years ago after 12 years of living with the effects of a stroke. Not being able to speak or walk. She is my rock. She brought two kids up on her own. I don't know how to get through this. I feel so lonely. I am tired of being strong and brave. It is so hard. I just love her so much and cannot think of life without her. I have no purpose if she is gone. She was my purpose in life. I live for her. I am scared to think she won't see me get married, she won't be there when I have kids. What is the meaning of all of this? I feel so lost. I pray everyday that she can stay here with me as long as possible and cherish every single second I am with her.
Feeling scared and uncertain
3 years ago I was diagnosed with stage 3 breast cancer and underwent a right mastectomy, chemo radiotherapy and then started on tamoxifen. Whilst always living in the shadow of it returning, I got on with life, saw my stepson marry, my son become a father and my daughter is just completing year 12. I thought I was ok. Then 5 weeks ago my world crumbled around me when I discovered the cancer had returned in my scar tissue and I have now been told I have advanced breast cancer. I consider myself lucky it hasn't spread to my bones or organs but I am terrified that it will. My oncologist is putting me on levistol along with a new clinical trial which she says has amazing results in the USA. She sounds very optimistic and assures me that if my cancer doesn't respond to these drugs there are plenty of others. So why do I feel so scared this time round? I guess I am now facing my own mortality and that scares me. I am only 52 and have so much more living to do. I understand that many women live with secondaries for years, I would love to hear from you and how you coped with this news. I am a positive person, I have to keep fighting as I don't fancy the alternative, but realistically I feel I have just been handed a death sentence. I am sorry if this sounds blunt, but this is how I am feeling right now. Any guidance or words of support would be greatly appreciated. Also, I live in Perth so if anyone can recommend any good support groups that may be a help to me. Thank you xx
My partner has secondary breast cancer
Hi, As the title explains, my partner Shelagh has very recently been diagnosed with secondary breast cancer in the bones and liver. We moved to Adelaide 6 months ago from the UK with our two boys, (5 & 13 yrs). Shelagh was diagnosed with breast cancer in 2011 and had a left masectomy with chemotherapy and radiotherapy. A reconstruction in 2013 hearalded the start of a new life, that has come crashng down at our feet. We moved from the UK to follow my dream, but find ourselves far from what was safe and familiar. Just writing this pains me to think I have dragged her away from such support. We begin chemotherapy on Friday at Flinders cancer centre, which gives us some ray of hope and the possibility to fight. From there though who knows. Sorry to be so down, and I haven't got the disease, but needed to say something somehwere. Thank you, Sean
Secondary
Hi All, I was diagnosed with IBC on 18/10/11. Had the usual treatment, including Herceptin & Tamoxifen. Was going well until I was diagnosed with brain mets on 20/6/14. I had a 3cm tumour removed on 24/6/14 and 10 treatments of WBRT. I have a few lesions on my meninges and 2 on my spinal cord. My prognosis isn't very good but I have hope. A doctor told my mum because I had such a good response to radiotherapy to my breast there's no reason not to expect a good response to my brain. I'm currently very weak because of the steroids and nauseous from the WBRT. I'm just waiting for normal to kick in so I can have my quality of life back. I'm over being sick and tired and my kids who are on 13, 10 & 3 deserve a mum who can take them to school/daycare, come to their sport and help them at home. SueHelping Mum
Hi Everybody I posted a few weeks ago about my 81 year old mother who had been diagnosed with HER2 positive (hormone negative) breast cancer. She had a left breast mastectomy on 8 January. We have been to the oncologist and after a lot of tests, we were told today that she has secondaries in her lungs. I am gutted. She has gone from an early breast cancer diagnosis to advanced breast cancer in the blink of an eye. He is going to treat her with chemo and Herceptin and is very optomistic that she will respond well to it and will be treating her for "a long time to come". Of course my brain is running away and saying what if she doesn't respond. I know I won't have her forever but would like a few more quality years with her. Has anyone had this type of diagnosis and had success with Herceptin. We are hoping she starts treatment on Tuesday and I know it is going to be a hard road for her. I look at her and can't believe she has cancer as she looks so well. Any comments/suggestions of ways to help her would be appreciated. I am my elderly parents main support system and like most elderly people, they don't want to accept outside help. Thank you in advance