Wow, thats interesting. As mine was completly missed 19mm, they only picked up I had BC as DCIS showed on Mamogram. My ultrsound came back clear!. The mixed mucinous was only identified after my bilateral mastectomy, which I opted for as there is some family history. I had 4 x TC, then was on Tamoxifen. Again I had a check up at Oncology, which was all good, then one week later check up with surgical which was different department who picked up the enlarged lymph nodes. I keep thinking if I had missed that second appointment I would have been none the wiser! I have a different Oncologist now, who is very onto everything. Thank you for sharing..
Hi, just after my BC surgery my daughter had a tiny breast lump that was mucinous that needed biopsy and then removal, and we were not sure if she was about to go through the whole breast cancer trip along side me. Luckily it turned out to be not cancer, but at the time we did a lot of reading about it.
It is a very unusual form of cancer, and hard to get information about, but I remember they talked about pure mucinous type and mixed mucinous type. The pure form is pure mucinos tissue, is slow growing and unlikely to metastasise and has very good results. But if it is "mixed" they have to treat mucinous cancer cells plus whatever the other sort, often IDC that are mixed with it.
Also my daughter found research that showed that this sort of cancer is harder to spot than many. They are often multiple but the surgeons don't discover that until surgery, and radiographers are more likely to miss metastases on the initial scan for them. The researchers also said oncologists often undertreat them when it comes to chemotherapy,.
The bone scan and body scan we have before surgery to check for metastases only show lesions over 1cm across, so maybe yours was already there but too small to show up on the scan, and did not get hit hard enough with the original chemo. If they wallop it hard this time, it is highly likely they will clear it out for once and for all. Which would mean you have an excellent chance of having several more decades of life ahead of you.
best wishes
Hi Sharon1111,
I hope so much that you will be there to see your daughters grow up and marry and have children of their own.
This diagnosis is understandably really scary. But it does not necessarily mean anything more than that you will need more and possibly ongoing chemo/targetted therapy/hormone therapy to kick it out of your system if possible or at least to hold it stable for years. Is/was your cancer ER+/-, PgR+/-, HER2+/- ? What sort of chemo/ and other treatments did you have initially, and what sort are you having now and how often?
Have you found a good support group for women with secondary breast cancer?- those are the people who have learnt the best ways to get past the fear and can help you in this distressing stage. Friends in that position say this makes the world of difference. BCNA have PYNKS, and here in Perth they are a brilliant group run by a very competent woman.
The book about how Herceptin was developed interviewed women who have survived over 20years at Stage 4 and are living well. I have a good friend who is ER+, PgR-, HER2+ whose dozen golf-ball-sized stage-4 tumors in her liver and lungs vanished completely after about a year on Paclitaxel and Herceptin.
best wishes, let us know how you are going and how we can help
Hi Sharon1111,
I hope so much that you will be there to see your daughters grow up and marry and have children of their own.
This diagnosis is understandably really scary. But it does not necessarily mean anything more than that you will need more and possibly ongoing chemo/targetted therapy/hormone therapy to kick it out of your system if possible or at least to hold it stable for years. Is/was your cancer ER+/-, PgR+/-, HER2+/- ? What sort of chemo/ and other treatments did you have initially, and what sort are you having now and how often?
Have you found a good support group for women with secondary breast cancer?- those are the people who have learnt the best ways to get past the fear and can help you in this distressing stage. Friends in that position say this makes the world of difference. BCNA have PYNKS, and here in Perth they are a brilliant group run by a very competent woman.
The book about how Herceptin was developed interviewed women who have survived over 20years at Stage 4 and are living well. I have a good friend who is ER+, PgR-, HER2+ whose dozen golf-ball-sized stage-4 tumors in her liver and lungs vanished completely after about a year on Paclitaxel and Herceptin.
best wishes, let us know how you are going and how we can help
