Trple neg mets bones and lungs
Hi, my BC is now triple neg, mets in bones and lungs, have had 15 rounds of chemo which was to be ongoing but canceled this week due to ca markers jumping from 72 to 360, anybody else had such a jump, l dont know what if any my next treatment options are. Having a very anxious week waiting for my next round of scans results to try amd find out what's happened.Video re Mets BC .... EVERYONE needs to watch it
My sister just shared this video on Facebook - this video went viral in 2015 in the USA and around the world, currently with 54,000,000+ views on Facebook alone. Holley Kitchen passed away in January, 2016, from Mets BC, age 43. 30% of those diagnosed with 'early, treatable, non spread' BC who have been told there is NED (No Evidence of Disease) will go on to be diagnosed with Metastatic BC - whether they have had their breasts removed or not. Most with BC are not made aware of this possibility in consultations with their surgeon or Oncs - but you NEED TO KNOW - so that if you DO GET unexplained ACHES & PAINS in the coming years - GET CHECKED OUT! It COULD be an indication of a problem. https://www.youtube.com/watch?v=QDQ0FjP7J-c And her follow up video a few weeks later - a 40% increase in awareness of Mets BC due to her earlier video. https://www.youtube.com/watch?v=63yTZxj7FOk An interview with Holley Kitchen re Mets BC https://www.youtube.com/watch?v=ijN11LLteTw There needs to be more research into Mets BC - to be able to identify it earlier & treat it better.
New city, New diagnosis, Looking for support
Hi everyone, this is my first post. I was diagnosed with MBC (to bone) about 4 weeks ago. I was initially diagnosed at 36 with IDC. It was a difficult time as my daughter was only 5yrs and my son was only 5 months. But after a very difficult period during and following treatment (the whole shebang), it took around 5 years for our little family to mend itself and move on from the trauma. So my partner found work in a new city (Canberra) and we moved, looking forward to a fresh start. After my initial diagnosis I lost many friends who found it too hard to be around me as I was going through treatment, and this has lead me to be somewhat of a loner. But in a new city I felt like it was a new start, new people who didn't know what my health history was... I was getting out and meeting people, doing physical activities, and enjoying life until I began to get aches. Being my first proper winter in 10 years, I put the pains down to the cold weather, but it just didn't get any better. My 12 month review came up in August and that's when my scans came back with mets to my C2, shoulders, pelvis, ribs and femur. Needless to say I'm feeling a little overwhelmed and helpless as I don't have any support here. I have spoken with the social worker and have lined up time with the psychologist, but there isn't really anything that is on offer for someone with a now, 11 year old and a 6 year old. I don't need a cleaner, or a nanny service so I can rest. I'm working from home as well which keeps me somewhat isolated, and my employer is very understanding. I'm also quite gun shy about trying to make new friends because having to divulge my health history at some stage may drive them away. So I guess, I would like to know if there are any Mets groups in Canberra for younger women with children. I can't seem to find anything in the Canberra region. I'm really quite desperate as I feel so alone right now. Thank you :)Feeling down
Well the last couple days i have been feeling down, teary, realisation of what is happening rears it’s ugly head again someone unlocked that oh so carefully locked door I had it behind. Had a kidney stent removed and replaced on Tuesday, it’s my 3rd week on Kisqali, so I’m on my normal week now as I like to think of it, tiredness is rampant this week, think it’s a combination of the operations and just plain tired and stressed, from the past week, so took myself off for some retail therapy today, some me time, just wondering around spotlight my fav store. Couple hours away from it all and I’m feeling a little more like myself again now. I nearly got it locked behind that door again
Cancer sadness?????NO!! Empty nest syndrome thank you ☺️
Hello lovely ladies its been a long time since I’ve logged on. I enjoyed reading all the posts over brekky this morning. I’m wonderful 2 and a half years on from my her 2 Mets and my recent mri revealed no evidence what so ever of any cancer in my liver or spine. I was shocked really considering I have been in charge of my treatment and what I wanted and didn’t want from the start. No radiation no hormone blockers chemo only once no bone strengtheners so I’m very happy I’ve moved on feel great running daily and my oncologist says a complete response to treatment mmmmmm I’m not sure this is a comment to let my guard down so I will keep up exactly daily what I do. However.... mental health with cancer fabulous problem is my adored daughter my best friend in the world running and gym partner shopping partner and general bestie suddenly found the love of her life. Mum your fine look at you moving out today 😬 eek. I underestimated how lonely and terribly sad I’d feel to the point of my heart is broken. I realise I’m sad hurt lonely and really jealous to make it worse she not only ladies moves in with him but his mother who tells me she adores my daughter and she’s the daughter she never had. Ohhhhhhhh my husband who I’m sure is quite happy because he felt left out many times is sick of my tears. Help anyone been through this. She came to treatment she had my back she told me your not going anywhere on my watch Mum. I felt so secure I know this is silly but .......I’m soooooo dam sad. Shall I kick myself up the butt. Probably. There’s far worse.
Feeling numb & sad as cancer is spreading
I was diagnosed with metastatic breast cancer in 2015. I was told it had spread to my liver & lymph nodes in my chest. The cancer started slowly growing in my liver last year, so tried two different types of chemo. Abraxane didn't work at all so was taken off that within 6 weeks. I was on Eribulin for around six months. The CT scan showed that the Eribulin was keeping the cancer stable in the liver & chest, but my tumour markers were going up. So my oncologist was concerned so sent me off for a bone scan last week. Today I have been told the cancer has spread into my bones in my lower back, legs & left arm. I thought we had the cancer under control. Obviously not! I am very upset by this news. I feel numb! The reality is starting to set in for me that I will not see my kids grow into teenagers. I am sorry if this sounds morbid to some people but it is my reality. The tears are flowing now....Hair loss after 4 weeks
Hello everyone, I've been doing chemo (Abraxane) now for 4 weeks. The oncologist told me I will probably lose my hair. Last Sunday my scalp felt sore so I made an appointment with my hairdresser to get a hair cut on Monday. Felt so much better after the haircut. But I have noticed in the last few days that my hair is falling out a lot. It is on my pillowcase, on my clothes & all over my bathroom floor. It is falling into my food when I am eating! So in the last week I have gone from having a full head of very thick hair to a thin layer. I don't want to shave it yet but having hair everywhere is starting to annoy me. I had a good sook about this. I'm not a vain person but losing my hair will ensure everyone knows I'm sick. I hate breast cancer!!!! AngeDenial
Hi all, Feeling a bit perplexed today. I decided it was time for my husband & I to see a financial planner to discuss our superannuation and other financial needs. Well hubby was ok with this until the planner asked for permission to look into the life insurance policy I have within my super as I have metastatic breast cancer & some policies pay out some funds on diagnosis. When hubby heard that the planner was looking into my life insurance he was not happy. He is in complete denial that this cancer will eventually kill me (hopefully that doesn't happen for many many years!). Anyway, does anyone else have a partner who refuses to face reality? How do I make him understand that it makes me feel content knowing that all this financial stuff is in order. I've always planned ahead! AngeForgetting things
Hi all, I am very upset today. I forgot to register my family to go to my husband's work Christmas family day. We look forward to this day every year especially the kids. But I forgot to RSVP. I used to be very diligent. I never forgot anything but since diagnosed with metastatic breast cancer my brain doesn't function the way it used to. Not only has this cancer taken my health it is also taking away my mind!
ONC VISIT
Tomorrow is my 2 monthly Oncologist visit & as usual I am beside myself with fear. Had my bloods taken 2.5 weeks ago & worried that my tm's have gone up again. Every little twinge sends me into a panic mode. Dear lord how are we supposed to cope with this ongoing rollercoaster of emotions that will never stop........ The worst time of the day for me, every day, is the drive home from work when I am sitting in traffic - thats when all the what ifs start blitzing thru my mind like bombs exploding....