CT Pet scan and MRI results in. No active cancer anywhere. Previous test showed cancer in brain, bones and adrenal gland. Onco started me on Enhertu five cycles ago and the results are amazing. Feeling pretty happy right now. I still have MBC but it is all asleep. <3

@Pamelac One of the Onco nurses told me there are two different Enhertu they can put you on. Different chemo type. Maybe you can check up if the alternative is available. It may have lesser side effects. My main side effects are mouth ulcers and tiredness. I had nausea for the first three rounds but it has appeared to disappear in the last two rounds I have had. I also have it every three weeks for however long it works and I tolerate it. I find one coloxyl tablet for the first five days keeps the constipation under control

TY for that info Blossom1961 - this is also my year of birth 🌷Information is power.Good to know there are options.The Onc who spoke to me said we’ll decrease the dose again before we abandon it - ??!

WOO-bloody-WHOOO!!! That is the most fantastic news I've heard all year, @Blossom1961 xxx. I am SO happy for you xx. I hope that your side effects lessen soon @Pamelac (or you can try the other one) and continue with your treatment - hopefully with the same results as Blossom1961!!take care, both of you xx

Oh @ @Blossom1961 I am so happy to hear this news from you. It's just fantastic. What are you doing to celebrate 🥳? Pop that cork 🥂.

Enhertu working | BCNA Online Network

21 Replies

PollyMammary
Member
6 months ago
Congratulations! Blosson 1961, Im so happy for you :D Cheers
Glynnis
Member
7 months ago
Hi @arpie they have reduced it 1/2 doze, appparently I was 100% on first dose so the reduction should make a big difference I hope.
arpie
Member
7 months ago
Thinking of you @Glynnis - I hope they can reduce the dose & your side effects diminish xx.

take care xx
Annie_C
Member
7 months ago
@Blossom1961
So very pleased about your positive results, now that's a "play" on words in the Cancer Stakes.
Just such wonderful news. Always in my thoughts and prayers.
Wrapping you in a Big Kimberley Hug.

Annie
Glynnis
Member
7 months ago
thankyou @iserbrown
iserbrown
Member
7 months ago
Best wishes @Glynnis
Sending a virtual hug 🫂
dobsonj
Member
7 months ago
@Glynnis here for you ❤️
Glynnis
Member
7 months ago
Hi Pamelac I’m glad your dose has been reduced, that’s one question I’m going to ask when I see my onc, can’t keep going like this, I had the first dose 10 days ago, so will see what happens when we have a chat.
Glynnis
Member
7 months ago
Hi Blossom1961 I’m so pleased for you 👏👏👏

I have had a spread to my tummy lining unfortunately.

I have had 1 dose of Enhertu and have not coped really well with side effects, nausea, fatigue and especially the diahorrea, off a lot of foods so lost a lot of weight recently. seeing my oncologist next Friday 11/10 and will chat to her about lowering the dose. You get to the stage on some days you’re feeling so awful you just want to give up! But I have too much to live for so I’m trying to keep going.
ter1969
Member
7 months ago
Wonderful news @Blossom1961.