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Dolphin88's avatar
Dolphin88
Member
1 month ago

Newly diagnosed metastatic triple negative

Hi I’m new and just diagnosed with triple negative Mets to bone liver and lung- looks like I’ll be on enhertu or sasituzamab? And maybe Pembro? 
anyone else on these drugs? How are they? How do you manage?

2 Replies

  • I realise I'm late to respond. I haven't been as active on here as on Facebook groups over the last couple of years but I wanted to say I hope you have found a bit of equilibrium since your post. I have found the worst time is always when you are waiting for a plan to start. Did you end up going on enhertu or trodolvy? I haven't been on trodolvy (I'm her2+) but I was on enhertu for 2.5 years. It was tough on it but I am so grateful for the time it gave me. There is an enhertu Facebook group that has loads and loads of information about managing side effects of you ended up on that path. I'm hoping you are doing as well as you can be. Xx

  • I am so sorry to hear of your diagnosis Dolphin88​ xx   That will have been a big shock to you and the family.   But we are here to support you xx. If you feel sad or confused with 'the process', give our Help Line a call on 1800 500 258 (Mon-Fri, 9-5) for a confidential chat xx

    I hope you have plenty of support at home & from your friends and co-workers (if still working.)

    We also have a private Triple Negative group and Living with Metastatic Cancer group that you might like to join - then you have a targeted audience with the same condition xx. And a number of other groups you may like to join - you can check them out here:

    Groups | BCNA Online Network

    In the mean time, whilst we get replies from those with TNBC .... feel free to jump onto this link for some great info on BCNA and other posts that you might like to catch up on!
    A big welcome to all New Online Network Members ..... | BCNA Online Network

    Take care & wishing you all the best xx