'Getting on with life' tips
Moderator moved @Batjam to the main discussion section of forum: Batjam Hi all - I’m new to this group. I’m 52 diagnosed St4 Breast Cancer after ending up with a fracture in my hip in Dec 2022. I’ve joint to connect with others - get any ‘getting on with life’ tips etc. Say hi if you are in a similar situation and feel like chattingUpfront About Breast Cancer PODCAST 'Advance Care Planning - Taking Control of Your Future'
Hi everyone, Please find below information on BCNA's latest Upfront About Breast Cancer Podcase E37: Living with metastatic breast cancer often means you need to make decisions about your treatment and care. As well as working with your treating team to work out decisions surrounding your current care, it’s also good to think ahead and talk about the care you may want in the future, if you are unable to communicate your preferences for care yourself. In this episode we’re joined by Dr Sonia Fullerton. Sonia is a consultant in palliative medicine who assists in patient centred decision-making and advance care plans. We’ll hear about who should consider developing an advanced care plan, what the process involves and who can assist you, where to get the advice you need and the questions you should ask. Listen via this link or wherever you get your podcasts: https://buff.ly/3FGumQs (Always exercise self-care when listening to podcasts as the content may be triggering or upsetting for some people). *Shared in 'Living with metastatic breast cancer' private group also*
ABC Global Alliance Webinar Covid-19 and breast cancer: Ask the experts 8 June 2020
Email from ABC Global Alliance Dear All, The COVID-19 is creating a status of unprecedent uncertainty also by disrupting the continuity and quality of care in other disease areas such as cancer. While measures to contain the disease are necessary, it is important not to forget of the needs of the cancer community and the challenges that those patients are encountering during the COVID-19 pandemic. The disruption of treatments and follow up, the higher risk of complications, the isolation and loneliness, all increase the burden of distress that breast cancer patients already experience due to their condition and raise questions that most of the time remain unanswered. To provide support to breast cancer patients, with a special focus on advanced/metastatic breast cancer patients, the ABC Global Alliance has brought together a multidisciplinary panel of experts who will answer questions posed by patients themselves during the webinar COVID-19 AND BREAST CANCER: ASK THE EXPERTS that will take place on 8 June 2020 from 13:00 until 14:30 CEST. We invite you to submit your question(s) in advance (deadline to submit questions 2 June). A committee of patient advocates will compile and revise the questions received and put them forward to the expert panel. Don’t miss this opportunity to have your doubts clarified and your questions answered. Link to register and submit questions: https://www.abcglobalalliance.org/events-initiatives/past-webinars/webinar-covid-19-and-bc/ Kind regards, ABC Global Alliance www.abcglobalalliance.org Cheers Giovanna
New city, New diagnosis, Looking for support
Hi everyone, this is my first post. I was diagnosed with MBC (to bone) about 4 weeks ago. I was initially diagnosed at 36 with IDC. It was a difficult time as my daughter was only 5yrs and my son was only 5 months. But after a very difficult period during and following treatment (the whole shebang), it took around 5 years for our little family to mend itself and move on from the trauma. So my partner found work in a new city (Canberra) and we moved, looking forward to a fresh start. After my initial diagnosis I lost many friends who found it too hard to be around me as I was going through treatment, and this has lead me to be somewhat of a loner. But in a new city I felt like it was a new start, new people who didn't know what my health history was... I was getting out and meeting people, doing physical activities, and enjoying life until I began to get aches. Being my first proper winter in 10 years, I put the pains down to the cold weather, but it just didn't get any better. My 12 month review came up in August and that's when my scans came back with mets to my C2, shoulders, pelvis, ribs and femur. Needless to say I'm feeling a little overwhelmed and helpless as I don't have any support here. I have spoken with the social worker and have lined up time with the psychologist, but there isn't really anything that is on offer for someone with a now, 11 year old and a 6 year old. I don't need a cleaner, or a nanny service so I can rest. I'm working from home as well which keeps me somewhat isolated, and my employer is very understanding. I'm also quite gun shy about trying to make new friends because having to divulge my health history at some stage may drive them away. So I guess, I would like to know if there are any Mets groups in Canberra for younger women with children. I can't seem to find anything in the Canberra region. I'm really quite desperate as I feel so alone right now. Thank you :)
