Forum Discussion

cranky_granny's avatar
3 months ago

Whats going to happen next

as the heading states what next. 

I want to be the mum I was before metastatic BC came along tonight I just want to find somewhere to roll up into a ball and cry with the unfairness of it all. If i could  Just get life to stand still or at least for once be nice.

It seems the whole family is falling apart.

1st daughter is waiting for shoulder reconstruction she has in layman’s terms laxity of the joints  already had a knee reconstruction  this surgery Dr cant say its going to completely successful  

2nd daughter is having major health issues (she has chrons  disease, a heart problem plus other complicated health problems  all of which are acting up at the same time. She carries a letter for emergency so they don’t have to ask so many questions  

My Only Son is now on short list for surgery for a shoulder that’s hanging on by a thread of just 1 tendon. ( came off his bike). His wife got admitted to hospital yesterday with several Kidney stones  that are not going to pass so she’s in there  waiting for a stent then follow up surgery to have them blasted. 

I’m back on my palbociclib  and trying to adjust to the side effects again after such a long break. To top it off I have a new lump on a different rib which wasn’t painful before but now is hot to touch and radiating pain around it. Oncologist had a feel and immediately wrote up a referral for a bone scan asap and I am still trying to recover from the GB surgery 


Its a bit of where do I go, how do I spread myself around to them all,  I want to divide myself into pieces so I can help them all. 
then my body reminds me I’m not 100% fit either. 

10 Replies

  • I am so sorry you've had such a tough time of it cranky_granny​  xx. I hope you've managed to get that pain under control & able to chat with a counsellor as well xxx. Thinking of you & sending healing hugs xx

  • I now have an appointment with psychologist organised thanks to my McGrath nurse. Who has been keeping in touch with me. 
    turns out my daughter has influenza A. plus a crohns flare up. Which means I have to keep my distance. Masks all round.  Just another thing this sh&tty MBC restricts me from doing. Daughter in law has had the stent done and been released she can now enjoy her birthday. 
    laying in bed trying to get through the pain atm till I can take the top up relief.
    I know I’’m allowed down days. Been told not to unpack my bags and stay there ~ doing my best not to. 
    thanks for letting me unload love this place no judgment just caring people who can relate.

    • Beginner's avatar
      Beginner
      Member

      Good news about the appointment with the psychologistcranky_granny​. I hope it helps to talk things through. I also hope your bone scan provides some clarity. You do not have to be strong all the time. Good to remember not everyday will feel like this. I hope things improve soon 💐

  • ThanksMez_BCNA​  im actually laying on my bed scrolling for distraction trying to ignore my physical and mental pain. Can’t take my targin and have to drive today 

    • Mez_BCNA's avatar
      Mez_BCNA
      Community Manager

      I'm sure the preference on any drive to distract would be good music or a podcast. However, if a Helpline chat is preferred we are here all day

  • Mez_BCNA's avatar
    Mez_BCNA
    Community Manager

    Hi cranky_granny​ - we always value your support of others in this community and its good to see you recognise when its time to reach out for yourself. When you list out all those things happening in your life, its fair to say its alot and not something one person can figure out on their own.

    Glad you were able to connect with your friend last night and maybe connecting with others in your local support group too? 

    You know the Helpline 1800 500 258 is always here to lend an ear and listen to you.

    In the meantime, we also like to remind everyone including yourself of great clinical services that may be worthwhile to unpack everything and come up with strategies to help you on days like yesterday.

    Take care and again, reach out anytime

  • Sending a virtual 🫂 

    It is certainly hard yards and talking with the Helpline would be beneficial 

    Take care

  • I am very sorry to hear things are so difficult at the moment. I can understand you feeling overwhelmed in those circumstances. Thinking of you. When things are hard I feel that it is important to look after yourself as much as you can and not overextend (not always easy). I hope things stabilise with you and your family’s health soon. In case it is helpful, you may wish to ring the support line - https://www.bcna.org.au/resources/articles/emotional-wellbeing/#:~:text=Contact%20BCNA's%20Helpline%20on%201800,can%20talk%20to%20by%20phone

    • cranky_granny's avatar
      cranky_granny
      Member

      ThanksBeginner​ I had a long chat with a dear friend by the time we finished our messaging the tears stopped. I’m on a promise to ring the chat/help line in the morning.