Whats going to happen next
as the heading states what next.
I want to be the mum I was before metastatic BC came along tonight I just want to find somewhere to roll up into a ball and cry with the unfairness of it all. If i...
Forum Discussion
Just a quick update
Still seeing the Psychologist with so much happening in my own life and family.. Just to add to the mix I am now under the care of the Respiratory Rapid access team, ran a temp so got sent to ED my Oxygen levels were crazy low. I've always suffered horrible hay fever and cough in spring and autumn. Antihistamines have usually helped but not his time I'm afraid. I don't understand any of the discharge report because it says refer to scan. Having a lung function test on the 13th. yet another chest CT on the 17th. then back to cancer clinic on the 24th. Don't see the Lung Specialist till February. For now I have a preventer inhaler. I am to try stay out of the wind and if they are doing any back burning in my area to stay indoors.
On a positive my sons shoulder surgery went well, my daughters shoulder surgery is booked for the 30th (she has in layman's terms laxity of the joints.) and needs her tendons tightened up in her shoulder. daughter in law seems to be over the worst of her kidney stones. The daughter with the Crohn's is nearly on top of the latest flare up.
Now to concentrate on me getting better. And back to the boring stable state.
Hi! Hope you are feeling a little better today!
Have you had a Lung Function test before? I am a full-time carer for my sister. She has these on a regular basis and are a good guide as to where she is at. At her worst she was 25%, now 3 years on with perseverance with the Physio and us she is at 55% - probably as good as it will get! We have eliminated her cause however the damage to her lungs won't change. It's the exercise, mainly walking, sit to stand exercises, light weights that have made the big difference! Her Oxygen levels vary but sit around 93% sometimes a little better!
Hopefully for you it is more about the seasonal changes at present, lots of pollen in the air et cetera
Take care
iserbrown Never had one before never got this bad. But the wind and pollen seem to be worse this year. Hopefully it turns out to allergy based. Ive been sitting at 91% to 95% depending on what ive been doing. it was the high temperature that got the Drs worried but when my neutrophils st at about 1.3 when jot on Palbo any infection is not great
cranky_granny
I hope that you have an Oxygen Meter Reader on hand (most chemists have them available to purchase) ..... as it is surprising how 'high' the number is 'showing' .... but you still need immediate attention!A 'normal' reading is between 95-100%, an 'acceptable' reading is between 90- 95% (take warning, anything below 92% is considered 'alarming' ....)
Yep, the High Temp (with or without the 'readings' is always of most concern xx
Take care, & I hope your levels remain stable xx
arpie its certainly been an interesting couple of weeks thats for sure. We do have a meter, having asthmatics in the house we have all sorts of breathing aids as well. I thought it was reading wrong. My apple watch was not quite accurate enough. It does say not to rely on the results as an accurate reading. I should have realised that I wasn’t just having more re hot flushes than normal had to hunt down the thermometer. It was when i started shivering that i twigged to it being not normal.
