Whats going to happen next
as the heading states what next.
I want to be the mum I was before metastatic BC came along tonight I just want to find somewhere to roll up into a ball and cry with the unfairness of it all. If i...
Forum Discussion
Just a quick update
Still seeing the Psychologist with so much happening in my own life and family.. Just to add to the mix I am now under the care of the Respiratory Rapid access team, ran a temp so got sent to ED my Oxygen levels were crazy low. I've always suffered horrible hay fever and cough in spring and autumn. Antihistamines have usually helped but not his time I'm afraid. I don't understand any of the discharge report because it says refer to scan. Having a lung function test on the 13th. yet another chest CT on the 17th. then back to cancer clinic on the 24th. Don't see the Lung Specialist till February. For now I have a preventer inhaler. I am to try stay out of the wind and if they are doing any back burning in my area to stay indoors.
On a positive my sons shoulder surgery went well, my daughters shoulder surgery is booked for the 30th (she has in layman's terms laxity of the joints.) and needs her tendons tightened up in her shoulder. daughter in law seems to be over the worst of her kidney stones. The daughter with the Crohn's is nearly on top of the latest flare up.
Now to concentrate on me getting better. And back to the boring stable state.
Hey there. Wondering how you are going 3 months later?
Hiparkrunner9973 thanks for asking
Been a bit slack on here lately. My me time is greatly reduced at the moment. My psychologist has been great. She lets me ramble on about anything and everything. I come away from each session a lot lighter
She does give me advice. But I think she knows I just need to unload to someone. I don’t really have anyone left in my life that I can do that with in person.
Sometimes I will get on here and start to unload then delete it all.
I was Hoping 2026 would come with better times can’t see much beyond March before thing ease up health wise.
if my minor surgery goes ahead on the 5th February I’ll be missing our first mets group meeting for the year on the 6th. Oh well someone else will have to do the morning teaUnload away cranky_granny xxx. That's what we are here for, to help each other out when needed xx.
That is terrific that your Psychologist understands your need to ramble & that you get on well with her xxWishing you all the best for your surgery in early Feb. xxx
Hi! Hope you are feeling a little better today!
Have you had a Lung Function test before? I am a full-time carer for my sister. She has these on a regular basis and are a good guide as to where she is at. At her worst she was 25%, now 3 years on with perseverance with the Physio and us she is at 55% - probably as good as it will get! We have eliminated her cause however the damage to her lungs won't change. It's the exercise, mainly walking, sit to stand exercises, light weights that have made the big difference! Her Oxygen levels vary but sit around 93% sometimes a little better!
Hopefully for you it is more about the seasonal changes at present, lots of pollen in the air et cetera
Take care
iserbrown Never had one before never got this bad. But the wind and pollen seem to be worse this year. Hopefully it turns out to allergy based. Ive been sitting at 91% to 95% depending on what ive been doing. it was the high temperature that got the Drs worried but when my neutrophils st at about 1.3 when jot on Palbo any infection is not great
cranky_granny
I hope that you have an Oxygen Meter Reader on hand (most chemists have them available to purchase) ..... as it is surprising how 'high' the number is 'showing' .... but you still need immediate attention!A 'normal' reading is between 95-100%, an 'acceptable' reading is between 90- 95% (take warning, anything below 92% is considered 'alarming' ....)
Yep, the High Temp (with or without the 'readings' is always of most concern xx
Take care, & I hope your levels remain stable xx
Golly Gosh - SO much going on there, cranky_granny xx. I hope your breathing/lung issues come good asap .... you certainly don't deserve all this xx. In Vic recently, the Health Dept has been warning of 'asthma' storms that may severely affect those with lung issues .... either pollen or fine dust being blown in the winds ...
I've just been struck with 'something' just now and I am barking like a dog ... so off to the chemist today to get 'stuff' to deal with it! Usually some cold/flu or antihistamine stuff with cough mixture as well .. I'll cook up a heap of chicken soup for easy meals ... and just rest up.I am So glad the kids' issues are coming good - & all the best for your daughter's shoulder surgery. xx
Take care xx
Thanks for sharing your update. Sounds like it’s still a bumpy road ahead but it’s good to hear some positives in amongst it. You’re so generous with your support to everyone - wishing you the very best.
