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eddiek's avatar
eddiek
Member
20 days ago

Capecitibane

Hi there 

I now have secondary breast lung cancer nodules. My oncologist has trialed me on Pablociclib and Abemaciclib however nodules have continued to grow and increase in number. They are now suggesting a few other options, one of them being Capecitibane. Again symptoms sound awful, especially hand foot syndrome 😞 

I would appreciate any accounts of personal experiences with symptoms and results after use. 
Thank you in advance 🙏🫶

chemotherapy
progression
recurrence
side effects

2 Replies

  • Whatnext's avatar
    Whatnext
    Member
    19 days ago

    I have been on capecitibine since November last year. Initially the results were very good with my CA125 quickly dropping from 200 to 97. They have been stable since and I have another PET scan next week, so we will see. I haven't had any problems with hand foot syndrome but I put that down to the fact that I religiously use Oukeya 40% Urea cream. It's available from Amazon for about $14.00 per tube. 

    My biggest problems are exhaustion, weakness and sleep difficulties. We have adjusted my dosage from 6 tablets per day down to 5 but I am still struggling with these side effects. Next week we will discuss a further reduction to see if we can find a dosage sweet spot.

    A friend has made up some kombucha for me to try. She has also given me broccoli sprouts to sprinkle on my salads. I will let you know how I fare with these. She also has metastatic cancer and has found these useful. 

    Good luck!

  • arpie's avatar
    arpie
    Member
    20 days ago

    eddiek​  .... My husband was on Capecitibine/Xeloda & had peeling of hands & feet ... 

    It is important that you get checked out by a podiatrist regularly and even start moisturizing your hands & feet before you even start the tablets, if possible .... as the podiatrist  can examine your feet (in particular) as there are some great creams that can minimise the dryness/splitting of skin.  I bought some cotton gloves for his hands & rubbed the cream on of an evening & put the gloves on, so they 'worked their magic' overnight. ....  and cotton socks for his feet, with the cream on them.

    Our podiatrist suggested NS21 skin repair treatment (and gave us lots of free samples to try out) before I purchased the actual tubes/potions - and it really helped.   Ask your ONC (and GP) to sign up for samples asap!   

    https://plunketts.com.au/products/ns-21-skin-repair-treatment-sample-sachets

    Our Onc (we shared the same Onc) also reduced the dose of Capecitabine to reduce side effects - but that may (or may not) happen with you. 

    Take care & Wishing you all the best for you continuing treatments xx