Forum Discussion
eddiek
6 months agoMember
Capecitibane
Hi there I now have secondary breast lung cancer nodules. My oncologist has trialed me on Pablociclib and Abemaciclib however nodules have continued to grow and increase in number. They are now sug...
Whatnext
6 months agoMember
I have been on capecitibine since November last year. Initially the results were very good with my CA125 quickly dropping from 200 to 97. They have been stable since and I have another PET scan next week, so we will see. I haven't had any problems with hand foot syndrome but I put that down to the fact that I religiously use Oukeya 40% Urea cream. It's available from Amazon for about $14.00 per tube.
My biggest problems are exhaustion, weakness and sleep difficulties. We have adjusted my dosage from 6 tablets per day down to 5 but I am still struggling with these side effects. Next week we will discuss a further reduction to see if we can find a dosage sweet spot.
A friend has made up some kombucha for me to try. She has also given me broccoli sprouts to sprinkle on my salads. I will let you know how I fare with these. She also has metastatic cancer and has found these useful.
Good luck!