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Questions around removal of the primary in metastatic treatment
I am VERY new here so I hope this is not a silly question..... I have been diagnosed and one of my first shocks was they were no longer going to remove the primary cancer. I understand they say the data does not indicate significant impact on survival however this data is also questionable on integrity as its so old too.…
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Are you a member of the private Living With Metastatic Cancer group?
My name is Rachelle and I am based in Melbourne. I have MBC and joined the newly formed MBC Advisory Group to help BCNA, at this stage, with the revision of the Hope & Hurdles hardcopy guide and to inform BCNA of emerging issues affecting people with metastatic breast cancer. I have also put my hand up to be a group leader…
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S E QUEENSLAND SUPPORT GROUPS
If YOU live in SE Qld from Northern NSW to Mackay I have compiled a list of face to face support groups. I started local support group on the Gold Coast back in 2019 and we now have 630 members - We opened our support group to include Ovarian due to the BRCA gene then gradually to ALL cancers for women on the Gold Coast.…
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Ribociclib/Letrozole Combo - How long have you been on this plse?
Hi Everyone, I've been on the Ribociclib/Letrozole/Denosumab combo now, successfully since Nov 2018. I take only a low dose of Ribociclib, 200mg daily and so far so good. However, I'm heading towards the 18th month mark now and starting to get a little apprehensive about how much longer it will be effective for. I've read…
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New Diagnosis Shock - metastatic breast cancer
Moderator moved @SallyJ original post from the 'Activity' section to the discussion page:
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6 years cancer free...then I'm not
Hi all, just wanted to share a little about my journey and was also wanting some advice... My story begins in December 2016, found a lump in my right breast after running my first marathon (lost quite a bit of weight with all the training). fast forward 11 surgeries-lumpectomies, sentinel node biopsies, egg…
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Webcast: Food and movement when living with metastatic breast cancer
Good afternoon everyone, We have just launched our next webcast - Food and movement when living with metastatic breast cancer. The event will run on November 23, at 7.00pm AEDT. Register for the webcast now via: https://kapara.rdbk.com.au/landers/f0bdf1.html In a recent Issues Paper, Making metastatic breast cancer count,…
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Coming to terms about living with metastatic bc
Post by Ultrarunchick moved by moderator from activity section to the main discussion page: November 8 2022 Six years since my BC diagnosis and one year after being given the all clear (my 5 year anniversary) I was diagnosed with Metastatic Breast Cancer.. thankfully it's just in one place at this time my spine and it's…
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Metastatic Breast Cancer Awareness Day - 13th October 2022
Today is Metastatic Breast Cancer Awareness Day. Breast Cancer Network Australia (BCNA) will continue to advocate and be a voice for those diagnosed with metastatic breast cancer today and every day. BCNA announced today that there are over 10,000 people living with metastatic breast cancer in Australia. This figure is…
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Signs & Symptoms of Secondary Cancer
Nobody 'wants' to get a secondary cancer .... but if you know 'what to look out for' - if it does occur - you should be able to get it diagnosed and treated earlier, hopefully, with a better outcome. If you are experiencing ongoing pain/discomfort or any symptoms mentioned on this website ..... See your GP or Breast Care…
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Living well with breast cancer online Information Forum
BCNA will be hosting an online Information Forum for people living with breast cancer and their supporters - Living well with breast cancer online Information Forum (bcna.org.au) The Information Forum will cover a range of topics including the latest in breast cancer treatment, managing your emotional wellbeing after a…
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Webcast: Just diagnosed with metastatic breast cancer, what’s next?
Hello everyone! We have just launched our next webcast, which will be hosted online on the 11th of August. If you'd like to register, please click here. Please find below further information on the digital event.In 2022, it is projected that over 20,000 people will be diagnosed with breast cancer. Of those diagnosed, it is…
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Remembering Olivia Newton-John
We were all saddened by yesterday's news that Olivia Newton-John had passed away. She was an inspiration to many, as she very generously chose to open up her life and share her story to help others affected by breast cancer. We know it was a tough day for many in our network, but it was also an opportunity to celebrate…
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Ask the Expert: Managing side effects of hormone blocking treatment with Dr Michelle White
Hello everyone! We will be hosting our next Ask the Expert Digital Event on Managing side effects of hormone blocking treatment with Dr Michelle White. Click here to register for the event.Approximately two thirds of all breast cancers are a type called hormone receptor positive. This means they use the hormones oestrogen…