-
Brain Mets
It’s a long time since I posted here. Herceptin has been doing a great job as scans 6 months ago came back NED! In July I had a nasty fall and needed skin graft on right knee area, 3 weeks in public hospital, then another 3 in private hospital for wound care and rehab. All good until scan 14 Feb. new spots on a rib and…
-
Lived Experience Panel: Rockhampton Information Forum
Hi All, We recently created a video snippet of our lived experience panel from BCNA's Rockhampton forum for the Online Network. The video captures key discussion topics: 'Side Effects, 'Communication', 'Sexual health' and 'What I learnt'. Hope you enjoy hearing from BCNA members Michelle Peters and Tracey Barlett.…
-
Questions around removal of the primary in metastatic treatment
I am VERY new here so I hope this is not a silly question..... I have been diagnosed and one of my first shocks was they were no longer going to remove the primary cancer. I understand they say the data does not indicate significant impact on survival however this data is also questionable on integrity as its so old too.…
-
Are you a member of the private Living With Metastatic Cancer group?
My name is Rachelle and I am based in Melbourne. I have MBC and joined the newly formed MBC Advisory Group to help BCNA, at this stage, with the revision of the Hope & Hurdles hardcopy guide and to inform BCNA of emerging issues affecting people with metastatic breast cancer. I have also put my hand up to be a group leader…
-
S E QUEENSLAND SUPPORT GROUPS
If YOU live in SE Qld from Northern NSW to Mackay I have compiled a list of face to face support groups. I started local support group on the Gold Coast back in 2019 and we now have 630 members - We opened our support group to include Ovarian due to the BRCA gene then gradually to ALL cancers for women on the Gold Coast.…
-
Ribociclib/Letrozole Combo - How long have you been on this plse?
Hi Everyone, I've been on the Ribociclib/Letrozole/Denosumab combo now, successfully since Nov 2018. I take only a low dose of Ribociclib, 200mg daily and so far so good. However, I'm heading towards the 18th month mark now and starting to get a little apprehensive about how much longer it will be effective for. I've read…
-
New Diagnosis Shock - metastatic breast cancer
Moderator moved @SallyJ original post from the 'Activity' section to the discussion page:
-
6 years cancer free...then I'm not
Hi all, just wanted to share a little about my journey and was also wanting some advice... My story begins in December 2016, found a lump in my right breast after running my first marathon (lost quite a bit of weight with all the training). fast forward 11 surgeries-lumpectomies, sentinel node biopsies, egg…
-
Webcast: Food and movement when living with metastatic breast cancer
Good afternoon everyone, We have just launched our next webcast - Food and movement when living with metastatic breast cancer. The event will run on November 23, at 7.00pm AEDT. Register for the webcast now via: https://kapara.rdbk.com.au/landers/f0bdf1.html In a recent Issues Paper, Making metastatic breast cancer count,…
-
Coming to terms about living with metastatic bc
Post by Ultrarunchick moved by moderator from activity section to the main discussion page: November 8 2022 Six years since my BC diagnosis and one year after being given the all clear (my 5 year anniversary) I was diagnosed with Metastatic Breast Cancer.. thankfully it's just in one place at this time my spine and it's…
-
Metastatic Breast Cancer Awareness Day - 13th October 2022
Today is Metastatic Breast Cancer Awareness Day. Breast Cancer Network Australia (BCNA) will continue to advocate and be a voice for those diagnosed with metastatic breast cancer today and every day. BCNA announced today that there are over 10,000 people living with metastatic breast cancer in Australia. This figure is…