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pain and fatigue and having a whinge
hi everyoneI've come online to have a whinge. My femurs are aching a lot in the last couple of days. I have nails inserted in both of them. Recently had radiation to the left femur and pelvis to help with pain. Now my right femur seems to be giving me heaps of jip now. I think I overdid it the other day - did all the…
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Prosthetics slipping in bras
Hi Everyone, I've haven't been on this site since January after my double mastectomy. Dealing with the healing, I also lost my husband in April and haven't felt like doing anything or seeing many people. So today I feel a bit better and need to get more energy into my body and start doing things again. I bought a pair of…
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Enhertu now on PBS list for MBC patients
GREAT NEWS BCNA welcomes the listing of Enhertu (trastuzumab deruxtecan) on the Pharmaceutical Benefits Scheme (PBS) for those with metastatic breast cancer. BCNA supported the process for Enhertu to be considered for listing on the PBS and we welcome the government subsidy for this exciting new drug. “This is a…
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Spread to tummy lining and adrenal gland
Hi everyone, had a Petscan on Saturday results today, spread to my stomach lining and adrenal gland now very small but there, has anyone else been in this position? If so how was it treated? I have to have a biopsie done to confirm same cancer then possible infused chemo again,
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New member - Question re oral chemotherapy capecitabine
Original post created by member @Brondocs - moved to Metastatic breast cancer discussions
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On herceptin and perjeta , stage 4 , itchy skin and now itchy scalp -anyone treated itch sucessfully
I’ve been on H&P for over 12 months -experiencing itchy skin for last 4 months or so. Mostly red spots on chest and shoulders/back Told oncologist and am using cortisone cream on chest and shoulders; also getting DEX with each three weekly H&P infusions . NOW have developed itchy scalp - last night I ended up getting a…
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Starting Letrozole & palbociclib tomorrow
This discussion was created from comments split from: Metastatic Breast Cancer & avoiding weight gain while on Letrozole ?.
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pain & metastatic Breast Cancer
@Mez_BCNA and everyone involved in putting the webcast together That was a very helpful discussion tonight I particularly liked the how to measure pain part 1to 10 never really been sure how to answer that one it has always confused me. that needs to shown to me each time I'm asked and then tell me to pick which one best…
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Mestatic breast cancer
Hello ive forgotten how to get on this site nothing unusual for me lately goin through lot ok here goes I’m on Kisqali / Letrozole and injection once month mine is extensive mestatic disease in my bones plus very mild emphysema need to stop smoking so in the last 9-12 months me and my daughter have been homeless bout five…
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Kisquali
FYI - I did post in private group last night but no response so thought I'd try here as well. :-) Hi there all, Strange question for you all for a Sunday night - I'm on my 13th round of Kisqali, still on 3 tablets which is highest dose. I'm taking in combination with Letrozole and the bone strengthening injection every 2-3…
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Possible growth of liver tumour
Had scans recently and results come through on Thursday 8/6 with oncologist appointment. I was at the doctor the other day for other stuff and she had received my results, she brought them up on screen and said from what she could see it looked alright, something about a shadow and also deterioration of something. (I had…
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Call out to all members in Ballarat and Western Victoria
I read the response from @Ktre to a post re metastatic BC. In that she mentions her fundraiser so I have looked it up. Well worth your consideration: https://fundraise.nbcf.org.au/fundraisers/katetreacy Love your pink hair Kate ! Wish I was that brave !!! 💖💖
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Palbociclib -new side effects from tablets
I have MBC and have been on Palbociclib (Ibrance) and Letrozole for 30 months. I have tolerated it fairly well aside from some fatigue. Last month the Ibrance capsules were replaced by tablets. I have had severe nausea and stomach cramps with dizziness and hot flushing since changing to the tablets. Has anyone else…
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Calling out to MBC's beyond 5 years!
Hello :) I am keen to connect in person with other women in their 40's in Brisbane who are travelling well with MBC beyond five years. I find myself only with older ladies when attending MBC support groups, which is lovely, but I feel the need to form friendships with others closer to my own age who are doing well(ish) and…
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tracy alsop
good afternoon everyone, I haven't been on here for a while but I wanted to let everyone know we lost one of our pink sisters Tracy Fearnley- Alsop on the 6th of April, I first got to know Tracy in 2015 and we fought our 1st journey together and then we both got a reocurrence in January 2022 and she fought hard for 8 years…