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When is your birthday?
Hello everyone, Following on from the amazing birthday list that was started by @socoda, thank you very much! Im calling out to all our members to let us know your birthday. We love an online celebration and on the day you will receive a virtual birthday cake that we can all share! No need to include the year you were born…
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Travelling overseas with zoladex injections
Hello 🙂 I'm heading overseas for about 6 weeks to visit family, and I'm taking my zoladex injections with me. Will I be able to take them in my hand luggage? I'll be declaring them, and will have a letter from my oncologist, but qantas webpage isn't 100% clear about carrying them when I won't need to use them on the…
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New will
My Facebook page is coming up with wills done for free for over 60s. Are these legit? I don’t want to be scammed on what little I have for my family.
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Share your views: Artistic tattooing of breast-cancer mastectomy scars
Hi everyone! Following up on my previous post, I’d like to invite you to participate in a PhD research study being conducted by Tina-Maree Newlan of Charles Sturt University on artistic tattooing of breast-cancer mastectomy scars. The study aims to investigate the experiences of women who have had breast cancer mastectomy…
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DIEP Surgery
Hello Pink Sisters I had DIEP surgery late last year and will be undergoing phase 2 in a few months. I can’t help but be frustrated by the back fat pockets that have appeared since surgery. My diet is well balanced and I regularly exercise. I’m hoping it’s not because I’m getting old and saggy. My surgeon said he wouldn’t…
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What are your easiest, tastiest meals - quick to prepare when you can't think of anything!!
Hi guys I have a few 'standard' easy meals that I always have the ingredients handy, in case I seriously can't be bothered cooking a 'fancy' meal ....... feel free to add your own 'Favs'! ;) Last night, we had our winter favourite 'comfort food' - Lamb Shanks!! I cheat, and buy the Aldi FROZEN Lamb Shanks (2 for $12…
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Questions for your surgeon/medical team when diagnosed - ILC based but also relate to other BC types
This document has a huge number of questions that you may like go over - and put to your Surgeon, Onc, and/or Medical team at some stage of your diagnosis and treatment ..... Altho it is based on those with Invasive Lobular Cancer (ILC) .... many of these questions also relate 100% to all BC Types .... the more questions…
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Cold Capping and hair loss experience with TC chemo
I went for my first TC chemo session with cold capping on a Paxman. I've got wavy coarse hair, that's not particularly thick. Conditioner and water was applied with a focus on the top of the head. I was expecting a brain freeze but came nowhere near that in the 2.5 hours of the cold capping. I'm a skier so I'm comparing it…
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My right breast doesn't feel the same anymore ... Is this the new norm post lumpectomy, chemo & rad?
I had my lumpectomy in June 2017 and lymph nodes in right arm removed in July. Chemo stopped at Xmas and rad in March. Now I am just on Herceptin until Oct. I have been noticing changes over the past few months that are more apparent now. I see my breast physio regularly for massage and exercises for the scar tissue in my…
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Nerve pain with expander
Hi there, I had a mastectomy 3 weeks ago now and had my first saline fill last week, since then I have had terrible pain where my nipple should be like someone is squeezing it tightly. Has anyone else had this? if so what helped?
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Essaic Tea
Hi lovely people, I was diagnosed with early stage, Grade 3, Triple Negative Breast Cancer at the end of August 2024. I had a lumpectomy, four rounds of chemo and will have 15 x radiation treatments starting in two weeks. I have had the best of care and support from the health professionals at Tweed Valley Hospital and as…
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Tamoxifen
Well woo hoo is what I say! I had seen on the news last weekend that some drugs had been reduced in their end price to us the patients. Well to my surprise I needed to pick up my next pack of Tamoxifen (Sandoz brand) and instead of the usual $38.50 today's price was $19.50!! Woo hoo!! I hope that translates to other drugs…
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Adelaide-based members: Opportunity to participate in Breast Cancer documentary
Hi everyone! I'm sharing an opportunity to participate in a documentary being created as
part of a second-year film project at the Academy of Interactive Entertainment
(AIE). The focus of the documentary to share women’s experiences of breast cancer, including diagnosis and treatment with the goal to highlight resilience…
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BCNA calling out the government - failing to protect Australians from genetic discrimination
Breast Cancer Network Australia (BCNA) is calling out the government for failing to protect Australians from genetic discrimination while showcasing its new genomics framework. Cancer Australia launched the National Framework for Genomics in Cancer Control this morning, which aims to integrate genomics into routine cancer…
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How do I change my profile picture
Does anyone know how to add an actual photo to my profile picture? I upload a file but then what, how do I get it to become my profile image
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Share your views: Information and support needs of people following treatment of breast cancer
Hi everyone, Erana from BCNA here! I’d like to invite you to participate in a research study opportunity led by James Cook University. Please see details below. If you can't access the QR code you can also follow this link Qualtrics Survey | Qualtrics Experience Management. If you have any questions or concerns regarding…