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Otis Foundation Retreats
There will be many members who have joined since there was discussion if this wonderful non profit organisation that provides free retreats for those diagnosed with breast cancer . It is based in Victoria but has a number of retreats in other states too. They are popular so you may need to be patient /flexible. Just Google…
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10 Years Today
10 years ago I received the confirmation that I did indeed have breast cancer and that I would need a mastectomy and chemotherapy. As it turned out, I was extremely lucky to have discovered a dent in my breast and then to have made an appointment with my GP. After surgery I was told that the cancer was growing right up to…
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Was anyone NOT offered the Oncotype test - as recommendation was for no chemo?
Further to my previous post, I am starting to panic as I am learning more and I see many, many women offered the oncotype test to see if chemo or not. I was never offered this (& I didn't know about it). My oncologist advised no chemo due to my 'apparent' low risk of recurrence. Lobular, 8mm, grade 2, stage 1, no lymph…
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Second opinion - Oncologist - how to arrange/navigate
Wondering how I would go about obtaining a 2nd opinion from another oncologist? I have been trying to contact my breast care nurse but they are swamped at the moment :-( You may see from my previous posts that I have anxiety now as I learn more & more about lobular breast cancer, and am concerned I may not have been taken…
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Just feel like running away
Does anyone else just feel like running away. It's almost 2 months since I finished radiation, and getting close to 12 months since my diagnosis. I see my Breast Surgeon next week. I am grateful, and I have come through surgery, chemo etc, ok compared to others, so I think I should just be "getting on with it", I've…
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Charlotte Tottman speaking about hers (and others) cancer experience
Just found this today - well worth a 'watch' .... with Charlotte Tottman talking about her own experience with breast cancer, as a part of a 4 person panel ..... She was diagnosed with BC in 2019 - and amazed that it shook her so much, as she'd been treating patients with cancer for some years ..... Community Heart Media…
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Red hot scar - 1.5 years post surgery
Anyone got experience of an old scar (1 year, 3 months) suddenly becoming inflamed ? It’s just one surprise after another honestly 😡
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Wedding
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Things that Francis R. Croken wished he'd been told when diagnosed ...
I've copied the 'sources' at the bottom - but I thought you may like to read it below in one piece: Part 1 Cancer - things they don’t tell you about, at diagnosis …. Your relationships are about to change. All of them. Some will get stronger. They will probably not be with the people you would expect. The people you want…
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Awaiting results
Moderator moved @Michelle_Woriginal post from the 'Activity' section to the discussion page:
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Muscular cramp
Just curious to know if anyone post treatment has suffered really bad cramp? I had noticed a couple of times in the night I had calf cramps (nothing too severe) but I have just started aqua aerobics to try and help the range of movement in my arm due to full axillary clearance being done, but it seems every time I hit the…
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Motivation tips please
So here I am. Tired of having treatment. Eighteen months worth in 2018/19 and then mets diagnosis in 2022. Eight months in to a lifetime of treatment and I have already lost my motivation for going. It is only once every three weeks I keep telling myself, then a PET scan once every three months. I can do this. Easy. Side…
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Overseas Travel (with breast prosthesis, travel insurance)
Hello, Has anyone travelled with their breast prosthesis overseas? I read a tiny article ʻsomewhereʻ that going through security was a nightmare with the BPʻs. Second question - pre cancer, travel insurance was a must for the added security. With cancer being ʻa pre existing conditionʻ I see that travel insurance is not as…
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Letrozole - How long is too long?
Hi, I'm 56yrs old and I've had bilateral breast cancer (2001 & 2012) Lumpectomy x 2, chemo & radiation I've been taking letrozole for 10 years - I have osteoporosis (significantly improved with prolia injections) and my cholesterol levels have been slowly increasing with most recent results showing a very high level…
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Letrozole - Fracture in spine
Hi, a couple of weeks ago I posted about pain in my bones in my ribs and needing a bone scan. At the time the doctor was checking on bone mets. Well I don't have bone mets which is great but the bone scan revealed a fracture in T9 of my spine and osteoporosis. This is scary because I have not even injured myself. I do…