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Some neat programs available on Counterpart ..... you can sign up to them
There are some programs on Counterpart (which is based in Vic, but hopefully members in any state should be able to sign up) - on Scanxiety (particularly for those with Mets) ... Lymphoedema, you can do Yoga, even belly dance - and meditative painting ... and also peer support. Check the programs & events here - and…
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Post TNBC: cope and hope
Hello all, It has been a good solid 12 months since I posted on this forum. Have jumped on a few occasions but didnʻt quite feel that I was ready to contribute anything meaningful. An enormous warm hug to all the women with a TNBC diagnosis; I also am part of this camp. Diagnosed Aug 2020, had AC/Paclitaxel until Jan 2021…
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Breast Cancer Recurrence Prevention - An Illustrative Tutorial - Oster Oncology
A very interesting tutorial on reducing the chances of recurrence thru the use of surgery, chemo, Rads, Tabs and natural 'evidence based' factors such as sleep, diet & vitamins .. (I am a bit concerned that it indicates a 30% chance of recurrence if no other treatment is undertaken, which of course was the decision made by…
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I made it to the 5 year mark. Please help me avoid my period!
Hello all you amazing ladies, (Long one, will summarise quickly - Need help with shutting off my period safely somehow.) I was here ages ago when I was still very much in the deep end of treatment and recovery. I've been through a billion different stages of psychological/physical/emotional/traumatic evolution since then,…
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Ongoing side affects post treatment.
Hello, My first time on here, so thank you! I was diagnosed with high grade DCIS in July 22 and had a lumpectomy in August, a further 7 days later had another surgery to clear margins. (My left breast cut just under my nipple) Followed by 4 weeks of radiation therapy. I’m interested to know if any of you lovely people have…
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Sex after Double Mastectomy no Recon.
I am surprised by the lack of comments about recommencing intimate relationships after mastectomy.Sex can be such a positive and wonderful part of a relationship, maintaining connectedness, expressing longing and desire, and intimately knowing each other. The release of feelings. But even in a close, and long term…
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Lost and struggling
2012 I was diagnosed with DCIS had 3 lumpectomies and Radiation and all seemed good. On my 5 year check I was again diagnosed with DCIS. Now I am 5 years post double mastectomy and recon, and be signed off by all my specialists. Which is a good thing, I know. BUT, a year after my surgery I had to see a specialist for an…
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I don't feel like myself
Hi, I'm new to the BCNA Online Network and have spent a little time today reading through some of your posts - just wanted to say thanks as I'm finding the posts useful, in some ways a little scary, but reassuring. I'm 54, I was diagnosed with early stage DCIS in late May this year - one week after starting a new contract…
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Recovery from Bilateral Mastectomy no recon. With Seromas. When does the pain end???
Hello. I am 53, and got diagnosed with dcis in October in right breast. We elected for a bilateral mastectomy and on pathology the right was 5x3.5x2.5 cm and the left surprise surprise had 2 patches of DCIS which didn’t show on Mammogram. I have been told I don’t need any further treatment - which I accept is ‘fortunate’.…
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Insulting and Judgmental Comments
Something I was not prepared for post breast reconstruction, are the judgmental comments the scar on my belly is attracting. I have been undergoing abdominal ultrasounds to try and figure out the problems I am having with my period. The ultrasound people keep referring to the scar on my belly as a "tummy tuck". I've even…
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I'm Boring
Well apparently I'm Boring (oncology wise) for the moment. Over the last 3 visits to clinic. My markers have held in the 30's the osteoblastic activity has stopped and the lesions haven't increased in size. Woohoo. No change to the medication as yet. So now in holding pattern. re cancer . Still have no update on Prolapse…
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Cancer was easy Tamoxifen is killing my life
Hi all, it's been awhile since I posted. As some of you may have read before diagnosed 2020, double mastectomy with recon, chemo finished and now Tamoxifen for almost a year. I got through everything realatively well and held it all together for so long. I'm now not in a great place. I feel i need a break from life.…
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Revolutionary Silicon Nipples now made in Australia.
The other day, I watched a segment on Studio 10 on an Australian woman who does Nipple Tattoos ... and she has recently branched out into Silicon Nipples - which are just AMAZING, they are so lifelike! The company is: https://www.procosmediq.com.au/siliconeprosthesisabout Check them out here:…
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Venting
Im sorry, but I'm tired out. Since I've told only a small handful of friends, it seems they're all unloading all their issues on me..I'm exhausted. I'd love it if they also asked how I am, but they don't, that's why I see a therapist, so I can unload. It doesn't seem right. It hurts
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Today
This is my new therapy.