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I don't feel like myself
Hi, I'm new to the BCNA Online Network and have spent a little time today reading through some of your posts - just wanted to say thanks as I'm finding the posts useful, in some ways a little scary, but reassuring. I'm 54, I was diagnosed with early stage DCIS in late May this year - one week after starting a new contract…
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Recovery from Bilateral Mastectomy no recon. With Seromas. When does the pain end???
Hello. I am 53, and got diagnosed with dcis in October in right breast. We elected for a bilateral mastectomy and on pathology the right was 5x3.5x2.5 cm and the left surprise surprise had 2 patches of DCIS which didn’t show on Mammogram. I have been told I don’t need any further treatment - which I accept is ‘fortunate’.…
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I'm Boring
Well apparently I'm Boring (oncology wise) for the moment. Over the last 3 visits to clinic. My markers have held in the 30's the osteoblastic activity has stopped and the lesions haven't increased in size. Woohoo. No change to the medication as yet. So now in holding pattern. re cancer . Still have no update on Prolapse…
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Cancer was easy Tamoxifen is killing my life
Hi all, it's been awhile since I posted. As some of you may have read before diagnosed 2020, double mastectomy with recon, chemo finished and now Tamoxifen for almost a year. I got through everything realatively well and held it all together for so long. I'm now not in a great place. I feel i need a break from life.…
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Revolutionary Silicon Nipples now made in Australia.
The other day, I watched a segment on Studio 10 on an Australian woman who does Nipple Tattoos ... and she has recently branched out into Silicon Nipples - which are just AMAZING, they are so lifelike! The company is: https://www.procosmediq.com.au/siliconeprosthesisabout Check them out here:…
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Venting
Im sorry, but I'm tired out. Since I've told only a small handful of friends, it seems they're all unloading all their issues on me..I'm exhausted. I'd love it if they also asked how I am, but they don't, that's why I see a therapist, so I can unload. It doesn't seem right. It hurts
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Today
This is my new therapy.
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Drainage Tubes
Has anyone removed their own drainage tube? I would like it out. I can't go back to my surgeon because I've sacked him. I've also reported this hospital to the Authorities, yes I'm still distressed & angry.
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Feeling happy
I apologise in advance if this content offends anyone, but I will be writing blogs on FB about my journey. I feel free and good. Again if its too much just tell me to shut up........ OMG, what a day I’ve had. Sitting by myself in the back yard, quietness, then the songs of birds, oh and then, as I sat under the flowering…
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Can you add more suggestions re travel & accommodation schemes in Australia
NSW Gov is asking for comments re travel & accomodation schemes - but, really, it relates to ALL states .... If you live in rural/regional/remote areas, make your concerns KNOWN to the powers that be ..... and JOIN OUR PRIVATE GROUP to share/agitate for better reimbursements!…
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The use of Medicinal Cannabis Oil in Cancer Treatment - WEBINAR next Tues (Aus Time)
The use of Medicinal Cannabis Oil (MCO) in the treatment of Cancer is a much debated topic - yet it is still not readily available to Australians, even tho many countries in the world allow it's use for both quality of life in those with cancer, pain relief & some claim to be NED after using MCO ... many who've used it…
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Some regional patients having success with new trials ......
How good if these trials would be made available to ALL regional/rural & remote patients .... https://9now.nine.com.au/a-current-affair/regional-aussie-cancer-patients-speak-about-new-treatment-trial/f5e1b237-cd36-4808-8a07-357fa92a57c4?
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Pinkhope - another support group for those with BC ...
I've just found this group & it may suit some of our members .... breast and ovarian cancers Check it out ... https://www.pinkhope.org.au/be-supported/personal-support?gclid=CjwKCAjwv4SaBhBPEiwA9YzZvHlRRgzHkW802hpJ9Mx2_QZGn6jgrBNId4MTyF8yflya1mwGnzeDqhoCOfoQAvD_BwE They have upcoming events on the Gold Coast, Canberra,…
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Discouraged & Dissappointed
Im sorry, I need to vent. I have no one to unload too. I had my single mastectomy Friday. Yesterday was OK, BUT they refused me my medically prescribed cannabis oil, which I called the hospital 10 days ago, pharmacist who said it was OK even though it is Schedule 8. I have a registered TGA card. Then yesterday when I asked…
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Personal Injury Claim
Im &@#$@. I've had mismanagement of smx Still suffering. Had to discharge myself, due to safety. Been knocked back by 3 Lawyers. I'm gona fight this. Miscommunication, Breach of Duty of Care, Misconduct, incorrect medication, given meds with known side effects, denied my approved TGA CBD oil, discharged with cannula still…