-
Tiredness/no energy after radiation therapy
Original post created by member @cathMor moved to own thread in ‘Now what? The highs and lows of survivorship’ category:
-
Mongrel disease. Warning, this may be distressing for some
Well, my dear friend, the spectacular Ms M, has reached the end of the road and will be checking out after a final party in early December. Diagnosed in 2017 having just turned 89, M has been an absolute inspiration. Whenever I start feeling a bit sorry for myself, I consider the dignity and humour that I have witnessed…
-
4th Melanoma found after skin check
Hi everyone, so pre my bc journey I have had 3 melanoma. I had my first melanoma at 38, 2nd one at 39 and 3rd at 49. These were caught reasonably early so no further treatment but pretty big scars. I also have had about 30 odd other skin biopsies. I have both parents who have had melanoma as well as other skin cancers like…
-
So Tired of not being heard
At the moment i am just tired all the time, everything just seems to be an effort. I emailed the admin at work a week ago regarding an up coming roster. A month ago i pre warned them that November for me was full of appointments in the first 3 weeks. So today after a lot of discussion i now know what’s happening from next…
-
Genetic test Now after nearly 5 years
Well here i go again. This will be a bit long winded The woes of the waiting game. Saw the Oncologist this time round Told her the guy I saw last time was a bit unhelpful. now because so many siblings and a parent having suffered cancer it appears its worth looking into. 2 brothers, dad plus 2 paternal cousins. When i was…
-
Counterpart - Webinars - HUGE number of BC topics to check out
There are a HUGE number of BC Webinars on Counterpart ...... you can check them out here - everything from Sleep, to Mets, Fertility Preservation, Treatment Options for all stages of BC, Mindfulness, medicinal cannabis .... and MUCH MORE .... I'd actually signed up to watch their latest one on Medicinal Cannabis Workshop…
-
You just have to live with it.
My doctor says, 5 years post breast cancer, you just have to live with it. My fingers and toes are still numb in places and I tend to drop things- you just have to live with it. If I walk too much (which is very little nowadays) my toenails start to lift- you just have to live with it. My heart went off on an Atrial fib…
-
Hot flushes & Venlafaxine
Ok 18 months of broken sleep from the dreaded hot flushes & I’m now starting to wonder if I should take this scary drug. Onc says low dose is fine but the side effects are worrying. Does anyone have any experiences to share of how Venlafaxine or any other medications prescribed for us on hormonal therapy have been?…
-
Has anyone taken 'Before' and 'After' pics?
Just wondering if anyone has taken 'before' and 'after' pics - focussing on the actual boob rather than 'me' ....... I took a couple of 'selfies' at the suggestion of my brother .... and then a few during the healing stage after removing the bandages ..... Do you think we should have a private group, to actually show our…
-
New test in USA that identifies BC recurrence much earlier ..... up to 2 years
A new Blood test is available in the USA for detecting cancer recurrence up to 2 years in advance of current testing methods (it is not suitable for ALL cancers tho - only some of those presenting as solid Tumours, such as in Lung, Colon, Bladder & Breast) .... called Signatera ... which identifies CT-DNA (circulating…
-
Free online wellbeing support programs
Posting here because the cancope programs are ending soon and I really recommend others check it out (I was in the "Mind" program and it was very helpful): copied and pasted from their online site and instagram: "CanCope is an Australian mental health study running free online wellbeing programs for cancer survivors. The…
-
Triple Negative preventative medications of reoccurence
Hi everyone I was diagnosed with triple negative breast cancer December 2020. My oncologist mentioned an injection I could have to stop reoccurence in my bones for the next 5 years, I also have read about this The use of bisphosphonates to prevent bone metastases remains experimental. Last, bisphosphonates in addition to…
-
Scars, cording & swelling: recovery after breast cancer surgery - a webinar
Here is a webinar on scars, cording (usually in the armpit) & swelling, post op - and some exercises to help recover range of movement from cording. I haven't watched all of it - but it looks good. https://counterpart.org.au/information/past-webinars/scars-cording-swelling-recovery-after-breast-cancer-surgery/ Lots of…
-
Life after breast cancer
I went through treatment 2016 2017 And still struggle with the will it come back anyone else
-
Applying for compasionate grounds to release superannuation
Hi everyoneJust wanted to ask if anyone has any tips on applying for compassionate grounds for release of superannuationI am in the process of having the three pecialists fill in my forms as part of the medical requirements. I am on a centrelink benefit and unemployed and require some super to pay for my home loaan and…