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Struggling through Chemo
Hi all, My nurse has just introduced me to this group. I’m hoping to connect and share my story and hopefully somehow feel better. After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it! Ive got another 2 months of chemo…
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Chemo tips / hacks?
Hi, lovely ladies is update from me I done my pet scan and have good results and I got a call from my day oncologist today and they already set my treatment dates.Starting next week with paclitaxel weekly for 12 around and carboplatin. Pertuzumab,trastuzumab three weekly so 4 round Is there anything I have to bring during…
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Cold Cap availability in public centres in Sydney/Newcastle
Hello everyone I was recently diagnosed with T2 (2.5cm), grade 2, HR+, with micrometastases in one sentinel node, which officially put chemo on the radar for the treatment plan. I pushed for the Oncotype DX but the advice from my treatment team was that as I had a couple of red flags (I'm premenopausal, have a slightly…
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BYO Cold Cap?
Hi all, I have just found out that my hospital (Monash) doesn’t offer the cold cap for chemo. The breast care nurse I spoke to was very disparaging of them, saying there was no evidence they worked, which surprises me as they seem relatively common in better hospitals. She said the only option was to BYO frozen caps in an…
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More information about Elle MacPherson's breast cancer treatment
For anyone who wants to know more about why Elle may have decided not to have chemotherapy. https://theconversation.com/elle-macphersons-breast-cancer-when-the-media-reports-on-celebrity-cancer-are-we-really-getting-the-whole-story-238231
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Chemo whilst travelling
We are about to start chemotherapy soon but am also wanting to travel around the east coast as much as possible during the next 6 months Has anyone had their chemo administered in different locations/states? Is this even practical?
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Stage 2 HER2+ undergoing AC chemo
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Sorry if TMI but genital pain with chemo...
Currently undergoing 4 dose dense AC and cannot find anyone else mentioning this side effect maybe due to intimate nature? My genital area is inflamed and feels swollen and sore. It's painful. Surely I am not alone with this side effect? Does anyone have experience with it and how long till it becomes less painful?…
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Hair Loss Advice
Hi beautiful people. I have just commenced chemo a few weeks ago and I am just starting to lose my hair. I have bought some hats and scarves but I would appreciate some advice on wigs. Looking at the possibility of a real hair wig? Would really appreciate your opinions. I live in the the Wollongong area. Thanks ☺️
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Update
Hi all, It's been a while since I post something. A lot has occurred since the last time I post something. Unfortunately, I was not doing well with the weekly chemo and Immunotherapy treatment. Spend all Easter break in hospital due to infection, I became hypersensitive to needles and got a PICC Line inserted which lasted…
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First 4 cycles of AC/DC done. One step at the time makes me feel like a Winner.
Hi All, Hope everyone is doing great here and managing the side effects well. I completed my 4 cycles of the AC/Dc combo package and will start with the 12 cycles of weekly taxol from mid September. Luckily for me the red devil was not too bad apart from I have lost complete taste Nd my hair is gone . The nausea and minor…