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Newly diagnosed with DCIS - starting the rollecoaster
Hi all, I live in Geelong. I'm 41. Single mum to a 13yo son, co-parent 50%. I was diagnosed with DCIS estrogen+ on the 14th Feb. Luckily is stage 0, which eases my worries a bit. My mum and sister had stage 2, and they are in remission. So this gives me hope and keeps me positive. I am not scared of the surgery or…
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Radiotherapy (5 weeks)
If you haven't been through it yet and are worried, please don't. It sounds much worse than it is. The receptionists, nurses and radiographers are really lovely. It doesn't hurt. It doesn't take long. I was in and out within an hour or less. My boob was a bit itchy throughout the treatment and became redder as the…
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Negative impact of radiation on Flap (autologous) reconstruction??
Hi all, will have mastectomy in a couple of months time, am considering to have an immediate breast reconstruction (IBC) using my own tissues/ flap (autologous). Unfortunately, I will have a series of radiation after the IBC. I am worried the radiotherapy will kill/destroy/ causing complications on the flaps. I did some…
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Radiation Fibrosis Syndrome
Hi everyone!!!! I was diagnosed with BC last year. I had DCIS and IDC......I had conserving surgery partial mastectomy with a flap reconstruction done......I had my yearly follow up in June this year and the mammogram and ultrasound picked up a mass....I had the biopsy straight away and it didn't contain any cancer…
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Update
Hi all, It's been a while since I post something. A lot has occurred since the last time I post something. Unfortunately, I was not doing well with the weekly chemo and Immunotherapy treatment. Spend all Easter break in hospital due to infection, I became hypersensitive to needles and got a PICC Line inserted which lasted…
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StratXRT - first use, not sure I’m doing this right?!
Hi all Invasive lobular carcinoma (Grade 2, ER+ PR+). Breast conserving surgery completed 4/9 (after a wide excision open biopsy on 6/8). Started the first of 15 radiation treatments today and have opted to use StrataXRT. Have only used it once and it doesn’t feel like I expected. Everything talks about a ‘gel’ ‘drying’…
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High Dose Radiation to Chest Wall. Long-Term Side Effects?
Hello, My radiation oncologist has recommended a 20% higher than normal dose of radiation to the chest wall due to close posterior margin. I am keen to know what long-term side effects anyone has experienced from this type of radiation. Thank you for sharing.
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New here...my story so far
Hello, I’m new the group and haven’t shared my story yet. It’s taken
me a little while to be able to read some of your stories and not have ‘freak out’
moments. Thank you to all of you for sharing your stories. It is important to
see the full gamut of what is happening and what is to come. In my initial
moments I was…
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High Grade DCIS - radiotherapy
Hello, I have been diagnosed with a small 4mm high grade DCIS. I am very anxious about Radiotherapy and was keen to avoid it, so took the DCSIONRT test. The results can back with a rating of 5 out of 10 (so not low risk and not high risk) and now I am having a hard time trying to figure out what to do. I am trying to…
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Radiation - Is Moo Goo enough?
Hi everyone, I am currently undergoing a 6 week radiation treatment, two weeks in. I am using Moogoo 3 - 4 times a day and my skin is healthy to start with. I am having underarm, left breast and left lower neck. Due to the large area, I have been advised to use Moo Goo 3 - 4 times a day rather than Strata XRT and our…
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Avoiding radiotherapy
Hi, are there any community members here that have avoided radiotherapy and then regretted it later? or vice versa. I had a very small pre cancer, which was non-invasive and I'm in my 40s. I am anxious about radiotherapy (long term effects) and though its the standard treatment (because the precancer was high grade), I am…
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Radiation
I finished Radiation about a month ago but I am still tired and I had real problems with losing skin and burns which has improved now but it is still very itchy? Anyone else have similar experience after breast radiation.
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small steps forward
Hi everyone, just a little hello as I’m joining you on this journey and now feel brave enough to say hello. I was diagnosed June 28th, following a random self check, two weeks before a planned 5 week trip overseas; and since then I have commenced the journey of small steps through appointments and surgery, cancelling…
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Radiotherapy burns
Hi everyone. I’m new here & wondering if someone has gone through something similar. I was diagnosed with grade 1 breast cancer & had a lumpectomy in June 2024. I finished 15 sessions of radiotherapy two & a half weeks ago. I’m quite shocked how severe my burns are near my arm pit. The burns peaked around 5 days ago. I’ve…
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Newly Diagnosed - Diabetes & Treatment Side Effects
Moderator moved @Dee8855 comment to dedicated discussion in 'Newly Diagnosed':