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Surgery Decision
Hi, I'm 40 years old and was diagnosed with Stage 2 Triple positive cancer in my left breast in December last year. The core biopsy showed an invasive carcinoma associated with solid DCIS with lobular cancerisation. Both breasts are quite dense which has made each imaging study very tricky report. The actual tumour itself…
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TC chemo 4 vs 6 cycles
Hello I’d like to hear from anyone who has had more than 4 cycles of adjuvant TC. I’m coming up to cycle 4 next week and I still don’t know whether that will be it or whether I will have to do more, because my oncologist has been on leave since straight after my first cycle. I’ve had a different oncologist and he has been…
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A MUST READ IF FACING MASTECTOMY EARLY BREAST CANCER DIAGNOSIS DCIS LCIS
I am writing this letter in the hope that the following story will help anyone facing a mastectomy or an early diagnosis of breast cancer. Women are being diagnosed with breast cancer every day and not all of them are provided with the information required to make informed decisions. A 42 year old mother of one is…
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Ca 125 test
Hi all - after finding a lump in my armpit I have gone to see a GP (not my usual one) to get a referral for an ultrasound. I was given the ultrasound referral and blood test referral (including for Ca125 which I don’t think I have been tested for before). Has anyone else had this Ca125 test before? My background in HR…
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Oncotype DX testing
Hi. I was diagnosed with her2 negative oestrogen and progesterone positive LC in early Oct 24 and have had two surgeries to remove a 9cm tumour and lymph clearance with one lymph node having 9mm of tumour in it. Im planning to do oncotype dx testing to inform if I should do chemo and wondered if anyone had any tips for…
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Belly button after DIEP
Hi Network, I’m 8 weeks post-mastectomy and DIEP reconstruction following a DCIS diagnosis. Overall, recovery is going well—except for my belly button. I developed an infection 10 days post-op, which landed me back in the hospital, and since then, it just hasn’t felt right. It pulls and hurts when I move, especially on one…
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Joint pain, muscle stiffness
Hi all I am 5 weeks post radiation for invasive lobul ar carcinoma. 6 lymph nodes removed. I am on letrizole. I started getting joint pain and muscle stiffness in my knees shoulders hips and muscle tightness. When I mentioned it to radiation doc she said it would not be from radiation to breast area. Has anyone experienced…
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fat transfer
Hi there, has anyone tried fat transfer for breast reconstruction ? is it a possible alternative ?
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Struggling with Tamoxifen side effects
Hi All , My name is Christine, I have been on Tamoxifen now for 2 years and have always struggled with the side effects of Tamoxifen...I get them all! I have had 1 breast removed after being diagnosed for a second time with breast cancer 2 years ago.The first time 10 years ago I underwent radiotherapy ... I'm 48 yrs old. I…
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I was diagnosed at 40 with ILC on right breast er+pr+ Her2- in early December
I was diagnosed at 40 with ILC on right breast er+pr+ Her2- in early December and going through Maroondah Hospital. routine mammogram only showed 2 lesions, Mri picked up 5 with largest being 3cm, lymph node was clear on pet scan and mri and ultrasound. Waiting for sentinal node biopsy. A single mastectomy with immediate…
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Abemaciclib Verezenio side effects
Hi Ladies, I have recently started on Letrizole/Hormone Therapy, and Verenio / Abemaciclib and am struggling with the side effects. I am in the fortunate position in that both these drugs are being given as a preventative measure. I don’t have Mets, but am at very high risk of re-occurrence. Originally diagnosed with…
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Radiation burn treatment solution
Hi everyone! I just finished 3 weeks radiation. Breast care nurses gave me sorbolene which I trusted would help heal and keep my breast moisturised. The redness became redder after each time I applied the cream and I thought this is how it's obviously meant to be. A few days after my last treatment, I met some people at a…
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Duration of endocrine therapy in premenopausal Australian patients
Hello all Very long time since I’ve poked my head into this discussion forum. I’d like to hear what other younger pre-menopausal patients around the country are being recommend regarding duration of total endocrine therapy. I myself am now onto year 6 of ovarian suppression and AI, a choice I have continued although I…
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Tamoxifen and dizziness
Hi, I have a question about dizziness and tamoxifen. I have been on Tamoxifen for 19 months now and at first I didn't really have any side effects. But for the past few months I have noticed an increase in the hot flushes and night sweats but my main concern are the dizzy spells. They are now pretty consistent and have…
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Neuropathy in feet - any advice? TNBC
Hi everyone I've TNBC and am 6 treatments down with the first Carbo/Taxel/immunotherapy regime. For part of my infusions, they put cold gloves on my hands to reduce the risk of neuropathy there, but didn't offer anything for the feet. They suggested I go online and purchase my own cold socks to wear during treatment. Last…