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Ongoing side affects post treatment.
Hello, My first time on here, so thank you! I was diagnosed with high grade DCIS in July 22 and had a lumpectomy in August, a further 7 days later had another surgery to clear margins. (My left breast cut just under my nipple) Followed by 4 weeks of radiation therapy. I’m interested to know if any of you lovely people have…
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Sex after Double Mastectomy no Recon.
I am surprised by the lack of comments about recommencing intimate relationships after mastectomy.Sex can be such a positive and wonderful part of a relationship, maintaining connectedness, expressing longing and desire, and intimately knowing each other. The release of feelings. But even in a close, and long term…
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Lost and struggling
2012 I was diagnosed with DCIS had 3 lumpectomies and Radiation and all seemed good. On my 5 year check I was again diagnosed with DCIS. Now I am 5 years post double mastectomy and recon, and be signed off by all my specialists. Which is a good thing, I know. BUT, a year after my surgery I had to see a specialist for an…
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I don't feel like myself
Hi, I'm new to the BCNA Online Network and have spent a little time today reading through some of your posts - just wanted to say thanks as I'm finding the posts useful, in some ways a little scary, but reassuring. I'm 54, I was diagnosed with early stage DCIS in late May this year - one week after starting a new contract…
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Recovery from Bilateral Mastectomy no recon. With Seromas. When does the pain end???
Hello. I am 53, and got diagnosed with dcis in October in right breast. We elected for a bilateral mastectomy and on pathology the right was 5x3.5x2.5 cm and the left surprise surprise had 2 patches of DCIS which didn’t show on Mammogram. I have been told I don’t need any further treatment - which I accept is ‘fortunate’.…
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Insulting and Judgmental Comments
Something I was not prepared for post breast reconstruction, are the judgmental comments the scar on my belly is attracting. I have been undergoing abdominal ultrasounds to try and figure out the problems I am having with my period. The ultrasound people keep referring to the scar on my belly as a "tummy tuck". I've even…
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I'm Boring
Well apparently I'm Boring (oncology wise) for the moment. Over the last 3 visits to clinic. My markers have held in the 30's the osteoblastic activity has stopped and the lesions haven't increased in size. Woohoo. No change to the medication as yet. So now in holding pattern. re cancer . Still have no update on Prolapse…
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Cancer was easy Tamoxifen is killing my life
Hi all, it's been awhile since I posted. As some of you may have read before diagnosed 2020, double mastectomy with recon, chemo finished and now Tamoxifen for almost a year. I got through everything realatively well and held it all together for so long. I'm now not in a great place. I feel i need a break from life.…
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Revolutionary Silicon Nipples now made in Australia.
The other day, I watched a segment on Studio 10 on an Australian woman who does Nipple Tattoos ... and she has recently branched out into Silicon Nipples - which are just AMAZING, they are so lifelike! The company is: https://www.procosmediq.com.au/siliconeprosthesisabout Check them out here:…
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Venting
Im sorry, but I'm tired out. Since I've told only a small handful of friends, it seems they're all unloading all their issues on me..I'm exhausted. I'd love it if they also asked how I am, but they don't, that's why I see a therapist, so I can unload. It doesn't seem right. It hurts
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Today
This is my new therapy.
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Drainage Tubes
Has anyone removed their own drainage tube? I would like it out. I can't go back to my surgeon because I've sacked him. I've also reported this hospital to the Authorities, yes I'm still distressed & angry.
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Feeling happy
I apologise in advance if this content offends anyone, but I will be writing blogs on FB about my journey. I feel free and good. Again if its too much just tell me to shut up........ OMG, what a day I’ve had. Sitting by myself in the back yard, quietness, then the songs of birds, oh and then, as I sat under the flowering…
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Can you add more suggestions re travel & accommodation schemes in Australia
NSW Gov is asking for comments re travel & accomodation schemes - but, really, it relates to ALL states .... If you live in rural/regional/remote areas, make your concerns KNOWN to the powers that be ..... and JOIN OUR PRIVATE GROUP to share/agitate for better reimbursements!…
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The use of Medicinal Cannabis Oil in Cancer Treatment - WEBINAR next Tues (Aus Time)
The use of Medicinal Cannabis Oil (MCO) in the treatment of Cancer is a much debated topic - yet it is still not readily available to Australians, even tho many countries in the world allow it's use for both quality of life in those with cancer, pain relief & some claim to be NED after using MCO ... many who've used it…
