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Mastectomy bras
I’ve had a mastectomy with reconstruction on the left side (which is now smaller than my right breast) and I will eventually do the same on the right side but in the mean time I’m wondering if anyone knows of any good bras that will give my natural breast the support but also fit both sides. I’m finding I can only wear my…
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Discussion re Dragonfly (or other ) motif for members who've passed, (so other members know)
Hi guys With the sad passing of Wendy55 recently ... it was her desire to have the Dragonfly motif applied to her profile, so that all members who'd interacted with her over the last 10+ years, would know of her passing. Over the years, we build up really special friendships with members on BCNA and keep in touch both…
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Q&A – TRIPLE NEGATIVE BREAST CANCER on Tuesday 24th October from 4:30-6pm (AEDT).
Register for the Q&A on Triple Negative Breast Cancer (Submit a question.) https://www.breastcancertrials.org.au/news/qa-events/qa-triple-negative-breast-cancer/ Triple negative breast cancer accounts for approximately 15% of all breast cancers. As the name suggests, triple negative breast cancer does not have any of the…
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Any regrets after going flat?
I'm seriously considering having my other breast off, and going flat. I don't have a cancer gene, and have not had this recommended for that reason. But I am finding my remaining breast a nuisance. My bra is always twisting, and when bra less, I have one big boob. I'm considering no precise reconstruction and breast…
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Victoria is doing an Inquiry into women & pain - feel free to participate!
If you live in Victoria you may like to take part in this survey if you have/do experience pain of any sort - whether from your BC or anything else. .... The survey is open until 31st July 2024 ... The government wants to know what your experiences are with pain and accessing care for your pain condition. Understanding…
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Veoza for hot flushes
Hi, my GP gave me a call last week suggesting this new medication Veoza for my hot flushes. It was only approved by the TGA in February this year. It’s apparently safe for hormone positive breast cancer patients. Given we can’t take hormone replacement therapy it sounds like an interesting option. After 4 years of…
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10 years on - Survivor
It’s been such a long time since I’ve been on this chat and tonight I’m wanting to celebrate a milestone for me and give others hope- chemotherapy is definitely a great part of why I’m still here 10 years down the track from my diagnosis of stage 3 breast cancer but it takes away so much too. I was shattered to lose my…
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Risk of Lymphoedema following skin cancer punch biopsy?
I was diagnosed in June 2018. I had 6 months of chemo, then surgery, followed by 3 weeks of radiation. I have avoided needles and having blood pressure measured from the arm where the nodes were removed. I now have a suspected squamous cell carcinoma under my index fingernail and a suspected melanoma on that arm. I have…
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Old habits die hard
When am I going to learn to say no I have to try and remember I don’t owe my employers my health/ sanity had the scans blood test and see oncology tomorrow morning. Get an email and text from the boss can I work Friday. Instead of saying no straight up I left the answer open. After saying since last drs appointment that I…
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Work/grief/sadness
Hi all, apologies if this has already been discussed but I couldn’t find anything elsewhere. I’m 46, had a right mastectomy (Diep flap) and left reduction in early December for stage 2 invasive lobular carcinoma. My recovery went really well, no pain whatsoever. I still have another procedure to alter the flap and then…
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Finally brave enough to call BCNA helpline, and they are closed ...
So, sorry about this, but I have to have a verbal vomit. And I did have a laugh to myself when I heard the message on the BCNA answering machine..... but now it's tears. Does this ever end? I'm 2 years down the track, after mastectomy, chemo, radiation, and reconstruction, all during covid, via support-less "click and…
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BreastScreen Australia are seeking your views and feedback - survey closes 20 Feb 24
The BreastScreen Australia Program is undertaking a review. I've just completed this survey in the hope that it may assist participation and early diagnosis. Thought I would share it here so others can share their feedback and suggestions. Stakeholder: You can contribute and share your feedback as a 'Consumer/ person…
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Not take any hormone therapy medication…
I’ve just had a six week medication holiday as suggested by my oncologist as Anastrozole wasn’t agreeing with me; it was affecting my mood and mobility. I often felt stiff and achy and lots of other things. Anyway, I wrote her a long email explaining how I felt off the medication and what I hoped for going forward in terms…
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UTIs ...... Do you get them often? What do you use to 'fix it'?
I've not had a UTI for a while now, but I know that when I DO - it is always unpleasant and painful. In the old days, I used to use Ural sachets to help reduce the pain & symptoms .... ooooh they do cranberry Ural sachets now! It only used to be a weird lemony flavour! Are there any other 'newer' preparations that you've…
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Great Article in the Guardian Today
https://www.theguardian.com/commentisfree/2024/feb/14/im-an-oncologist-this-is-what-king-charles-and-my-cancer-patients-have-in-common I found this very interesting and very timely. Some of her comments really hit home.