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Things that Francis R. Croken wished he'd been told when diagnosed ...
I've copied the 'sources' at the bottom - but I thought you may like to read it below in one piece: Part 1 Cancer - things they don’t tell you about, at diagnosis …. Your relationships are about to change. All of them. Some will get stronger. They will probably not be with the people you would expect. The people you want…
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Awaiting results
Moderator moved @Michelle_Woriginal post from the 'Activity' section to the discussion page:
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Muscular cramp
Just curious to know if anyone post treatment has suffered really bad cramp? I had noticed a couple of times in the night I had calf cramps (nothing too severe) but I have just started aqua aerobics to try and help the range of movement in my arm due to full axillary clearance being done, but it seems every time I hit the…
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Motivation tips please
So here I am. Tired of having treatment. Eighteen months worth in 2018/19 and then mets diagnosis in 2022. Eight months in to a lifetime of treatment and I have already lost my motivation for going. It is only once every three weeks I keep telling myself, then a PET scan once every three months. I can do this. Easy. Side…
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Overseas Travel (with breast prosthesis, travel insurance)
Hello, Has anyone travelled with their breast prosthesis overseas? I read a tiny article ʻsomewhereʻ that going through security was a nightmare with the BPʻs. Second question - pre cancer, travel insurance was a must for the added security. With cancer being ʻa pre existing conditionʻ I see that travel insurance is not as…
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Letrozole - How long is too long?
Hi, I'm 56yrs old and I've had bilateral breast cancer (2001 & 2012) Lumpectomy x 2, chemo & radiation I've been taking letrozole for 10 years - I have osteoporosis (significantly improved with prolia injections) and my cholesterol levels have been slowly increasing with most recent results showing a very high level…
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Letrozole - Fracture in spine
Hi, a couple of weeks ago I posted about pain in my bones in my ribs and needing a bone scan. At the time the doctor was checking on bone mets. Well I don't have bone mets which is great but the bone scan revealed a fracture in T9 of my spine and osteoporosis. This is scary because I have not even injured myself. I do…
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Bone Scan along with 3yr mammogram and ultrasound
By way of a little background I have been getting pain in my ribs off and on for a couple weeks so I was sent for an xray which didn't reveal much. The pain started on the right side in a rib bone directly under my right breast which had the cancer. The last couple of days the left ribs and muscles are sore. I really felt…
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Questions to ask 'Post Surgery' of yourself - to your Specialists - Tick Sheets - Self assessment
I know that after my own surgery, I didn't always quite know what questions to ask of my surgeon and 'the team' that we all see regularly for the first 5 years following our treatment - so I set about looking for 'tick sheets' that would help me, as these appointments approached! I came across some really interesting…
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5 years today since my surgery ....
Celebrating my 5 year anniversary (today) since my surgery .... This would be the first year that I didn't 'remember' my 5 year 'diagnosis date' of January 5 as well! Up til 'that' phone call, I'd still convinced myself it was just cysts ..... LOTS of water under the bridge since then - and many thanks to those on BCNA…
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The last treatment and feeling cut loose and lost
I had my last treatment on the 30th of December which in my mind was supposed to be the happiest day after a long road with bc. I have to admit the lead up to that day I found so hard to handle, I was scared, I felt lost like I was losing my security blanket and what perhaps was keeping me alive. I almost dreading going in…
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Interesting article on Keto Diet, specifically re Breast Cancer
A friend was interested in trying a Keto diet (high fat, low carb) & its relevance, specifically, to Breast Cancer - and whether it would even be 'safe' to do so ....... She asked her Onc if it was OK to try. Onc said FINE. So far, she has lost 5kg and feeling much better in herself - she was diagnosed Stage 4 a few years…
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Some neat programs available on Counterpart ..... you can sign up to them
There are some programs on Counterpart (which is based in Vic, but hopefully members in any state should be able to sign up) - on Scanxiety (particularly for those with Mets) ... Lymphoedema, you can do Yoga, even belly dance - and meditative painting ... and also peer support. Check the programs & events here - and…
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Post TNBC: cope and hope
Hello all, It has been a good solid 12 months since I posted on this forum. Have jumped on a few occasions but didnʻt quite feel that I was ready to contribute anything meaningful. An enormous warm hug to all the women with a TNBC diagnosis; I also am part of this camp. Diagnosed Aug 2020, had AC/Paclitaxel until Jan 2021…
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Breast Cancer Recurrence Prevention - An Illustrative Tutorial - Oster Oncology
A very interesting tutorial on reducing the chances of recurrence thru the use of surgery, chemo, Rads, Tabs and natural 'evidence based' factors such as sleep, diet & vitamins .. (I am a bit concerned that it indicates a 30% chance of recurrence if no other treatment is undertaken, which of course was the decision made by…