Follow-up screening post surgery

@Cobi while we wait for other members to share their own experience in follow-up care, I thought you may find out My Journey information helpful also:

Follow-up care after breast cancer treatment

When hospital-based treatment for breast cancer is over

 

Hi @Cobi, welcome to the blog!!

Like you, I was diagnosed with ILC that was missed both by Breast Screen NSW and the followup Mammogram/Ultrasound at a local radiology place .... tho they DID suggest a biopsy be performed, which confirmed the presence of Cancer cells in 2 lesions.  I also have reduced faith in the scans.

I had a Lumpectomy, followed by radiation & been on AIs for 6 years (I finish next year.)

Since my diagnosis, I've travelled to Port Macquarie every year to a Radiology place who has a dedicated female Mammogram and Ultrasounder who specialises in Breast Cancer.  I have total faith in her.

I hope you can find a similar place in Qld - as you may have ongoing Ultrasounds for the remaining tissue on your chest?  xx. Take care

Thanks Arpie for your response. Just managing becoming overly anxious. I am lucky that I have a great GP. But all of the medical service providers are reluctant or outright dismissive when I suggest an MRI. Glad  you found the right service provider that gives you peace of mind. My ILC was Her2 positive.  Warm regards Cobi.

Hello @Cobi.  You do not mention any reconstruction so I am guessing you are flat and fabulous ?  I had a single mastectomy (10 years ago this week) and had annual mammograms for the first few years, then the ultrasound of both sides was added.  My new GP is a bit slack but I request the annual referral and I still attend a private radiology place as that is where I have had all tests since surgery.  No-one has ever mentioned any other tests but there must be a balance between keeping us happy and over-servicing patients.  All the best.