Share your views: Information and support needs of people following treatment of breast cancer

Erana_ BCNA
Erana_ BCNA Member Posts: 4 ✭
edited January 30 in General discussion
Hi everyone, Erana from BCNA here!

I’d like to invite you to participate in a research study opportunity led by James Cook University. Please see details below. If you can't access the QR code you can also follow this link Qualtrics Survey | Qualtrics Experience Management. 

If you have any questions or concerns regarding this research, please contact the research lead Tracey Ahern at tracey.ahern@jcu.edu.au

This study has been approved by the James Cook University Australia Human Research Ethics Committee (#H9326).


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Comments

  • Tri
    Tri Member Posts: 279 ✭
    Done! 
    This survey asks questions about what information we might seek and how we think we might best receive it - it’s a broad inquiry about information beyond about chemo and radiation therapy, extending to information about emotional support and other treatments like aromatase inhibitors and allied health treatments and therapies. 
    Good chance to have your information needs heard 🌻🌸 
  • AllyJay
    AllyJay Member Posts: 960 ✭
    I don't know that I qualify...time wise. I had neoadjuvant chemo in 2016/7 and surgery mid 2017, but am still on letrozole, so I'm not sure if that means I'm still on treatment, or if I've finished 'active' treatment more than 30 months ago. I'm not sure why there's a time cap of two and a half years...surely my experience of treatment eight years ago is as significant as those more fresh off the conveyer belt?
  • arpie
    arpie Member Posts: 8,267 ✭
    edited January 30
    I reckon you qualify, @AllyJay as you are still on Letrozole, so haven't completed your treatment yet xx.

    If you do do the survey, can you please whack up the actual link from the QR code?  ;)

    (Maybe copy & paste it into your post above?)   

    It really annoys me that I have to get my phone out, open the QT code to get the link, copy it - then email it to my computer, then go to my emails so I can open it up!!!! 

    6 steps ... instead of 1!! 

    They just need to put the link up for immediate access!!!  (END OF RANT!  LOL) ;) 

    Many thanks xx
  • Erana_ BCNA
    Erana_ BCNA Member Posts: 4 ✭
    Hi @arpie I have also included the link in the post as I know how frustrating QR codes can be! Let me know if the link doesn't work and I can edit :) . 
  • Tri
    Tri Member Posts: 279 ✭
    Hi I went through this direct link (thx @Erana_ BCNA !) 🌻🌸
    @AllyJay great question if you have time the person to ask is Tracey Ahern at tracey.ahern@jcu.edu.au
  • arpie
    arpie Member Posts: 8,267 ✭
    Thank you so much @Erana_ BCNA  :)   I think I must be getting old & grumpy!  LOL

    Doing it now

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