🗣️ Share your views: A survey of Australian cancer patients regarding current patient education practices
You can participate in this study if you have received treatment for a cancer diagnosis in the past 24 months. Researchers from Monash University are conducting a survey that aims to identify the current practice of oncology nursing education in Australia. It intends to identify if a consistent and holistic approach to education is being provided and what factors may prevent this from occurring. The survey will explore your experience in relation to the education you received by oncology nurses prior to commencing your initial treatment for your cancer diagnosis. At the conclusion of the survey, you will be taken to a second survey to register your interest to participant in a focus group to discuss your experiences. If you decide to leave your contact details, the researchers will follow up with you and provide further information on what is involved in the focus group. You would then need to provide written consent to participate. For more information and to participate in the study please click the link below: Click here to participate
Do you have lymphoedema?
The ALERT (Australian Lymphoedema Education, Reseach and Treatment) team at Macquarie University are looking for people living with primary or secondary lymphoedema to complete an online survey which will help them to develop appropriate patient information resources. You can complete the survey via this link: https://mquni.au1.qualtrics.com/jfe/form/SV_721VztSK5hUBU8K
Share your views: Information and support needs of people following treatment of breast cancer
Hi everyone, Erana from BCNA here! I’d like to invite you to participate in a research study opportunity led by James Cook University. Please see details below. If you can't access the QR code you can also follow this link Qualtrics Survey | Qualtrics Experience Management. If you have any questions or concerns regarding this research, please contact the research lead Tracey Ahern at tracey.ahern@jcu.edu.au This study has been approved by the James Cook University Australia Human Research Ethics Committee (#H9326).Introduction - Erana from BCNA
Hi everyone! My name is Erana, and I am the Consumer Engagement Coordinator at BCNA. I work with our wonderful Consumer Representatives and oversee our Review and Survey Group. In the coming months, you may notice a few posts from me highlighting external research and survey opportunities that you can participate in. These opportunities have been thoroughly reviewed and approved by BCNA to ensure it is of high quality, relevant to our Policy & Advocacy Strategy, organisational priorities and will lead to tangible benefits for those affected by breast cancer. While we typically share them through our Review and Survey Group communications, we thought it would be beneficial to also share them here for those who aren’t currently part of the Review and Survey Group. If you'd like to join the group, feel free to sign up here Review and Survey Group. If you have any questions, please don’t hesitate to send through a comment or message and we'll do our best to respond as quickly as possible. Thanks, Erana :)
What the heck is going on with this BC thing????????
Ok, so I know the figures are 1 in 8 or 1 in 7 depending on which article you read but honestly. When I was diagnosed I knew one of my friends sister had had breast cancer and my family history 3 generations ago. That was it. I would see the bookings come through at work averaging one or two breast surgeries a week and sometimes there would be a few weeks with none at all. Now. WOW! 4 - 6 a week with the majority being 45-55yrs and a definite rise in under 40's. One of my friends mother in law diagnosed last year and now her mother last week. my daughters friends mother, a close work collegue a couple of months ago, a collegues sister a week after that, a collegues daughter around the same time. One of the senior medical consultants. A client drops a horse off to me and has to run or she'll be late for radiation! Bugger me. I get in to work today and ask where so and so is. "Oh, haven't you heard" She's been diagnosed last week and is off for bilat mx and ax clearance. All of these people I know in my little circle diagnosed within the last 12 months. Seriously what the heck is going on?
