🩺LeaN On Program: reducing the risk of lymphoedema
LeaN On - a research initiative led by Professor Bogda Koczwara and developed by Flinders University in partnership with BCNA, was developed in response to a long‑standing gap in survivorship care. Lymphoedema is a chronic condition affecting the arm or hand that can develop weeks, months or even years after breast cancer treatment, yet many people report receiving little guidance about early warning signs, risk reduction or when to seek support. LeaN On is an evidence‑based digital platform designed to support people who are living with, or concerned about, lymphoedema after breast cancer. The platform guides users through a simple 12‑step online journey, with each step offering small, manageable and practical information to help people: understand what lymphoedema is recognise early signs and symptoms take actions now to reduce risk know when and how to seek professional support The platform is currently being trialed through a research study, evaluating how lymphoedema support can be delivered online, including both self‑directed and nurse‑supported options. Its online design allows people to access guidance regardless of where they live, including in regional and rural areas where access to specialist care can be limited. Consumer perspectives have been embedded throughout the project. Participants for co‑design activities were recruited through the Review and Survey Group, and BCNA supported the research by appointing a trained Consumer Representative to the project team. This ensured lived experience informed both the development of the platform and the research approach. Both the platform and the study underpinning its development have now been published, and people affected by breast cancer are invited to trial LeaN On by contacting info@mylean.online Learn more about the LeaN On project: BCNA overview article Flinders University article and trial information Published study💻Online event: VCCC Alliance Breast Cancer Grand Round
Breast Cancer Grand Rounds are designed primarily for healthcare professionals and focus on clinical research, case discussions, and advances in treatment. They provide an opportunity to hear directly from experts working at the forefront of breast cancer research, and to better understand how new knowledge is being translated into care. Breast Cancer Grand Round with Dr Julia Dixon-Douglas: Making sense of senescence: Impact of CDK4/6i on early-stage breast cancer biology. 📅 Date: 6 May 2026 🕐 Time: 1.00 pm to 2.00 pm AEST 📍 Format: Hybrid event, with options to attend online. 👉 Register for this event here🗣️ Invitation to share your voice: Understanding Cancer Related Stigma Through Lived Experience
BCNA’s Consumer Engagement team is inviting members of our Online Network to share their experiences of stigma and shame following a cancer diagnosis. Cancer related stigma is not only about visible changes. It can be social, cultural, emotional, and systemic. It can affect how people see themselves, how others respond to them, and how safe they feel seeking care or support. These experiences are often deeply personal, and they can vary widely across communities, cultures, and healthcare settings. 🌏 Why your perspective matters In June, a BCNA trained Consumer Representative will be presenting at the Multinational Association of Supportive Cancer Care Australia Conference. This presentation will bring consumer voices into an international conversation about whole person care, supportive care, and the importance of patient partnership in addressing stigma. To ensure this presentation truly reflects the diversity of experiences across Australia, we are gathering insights from our broader network of members. 📝 Take part in the survey By completing this short survey, you will help shape the content of the presentation and strengthen the messages shared with clinicians, program leaders, policy makers, and researchers. Your voice will help ensure lived experience remains central to conversations about stigma, care, and support. 👉 Take the survey here 🗓️ The survey closes on Friday 8 May 2026 📩 If you have any questions, please contact satt@bcna.org.au Thank you for considering sharing your experience and helping amplify the voices of people affected by cancer.🔬 Upcoming Online Event: How pregnancy affects breast cancer risk
The VCCC Alliance is hosting an upcoming Monday Lunch Live exploring new research into the relationship between pregnancy and breast cancer risk. Emerging evidence shows that women who have had multiple full‑term pregnancies have a lower risk of developing breast cancer. This session will explore new findings on how pregnancy‑induced tissue‑resident memory T cells may play a protective role, helping to build our understanding of breast cancer prevention and immunology. 📅 Date: Monday 20 April 2026 ⏰ Time: 1.00–2.00pm (AEST) 💻 Format: Online 🎤 Speaker: Associate Professor Kara Britt, Peter MacCallum Cancer Centre This session may be of interest to researchers, clinicians, health professionals and consumers with an interest in breast cancer prevention and emerging science. 👉Register and learn moreAI Breast Cancer Risk Tool Back in the Spotlight 🧠
A topic that's come up in our Online Network in recent times is making headlines again - the use of artificial intelligence (AI) to better predict breast cancer risk. ABC News has reported on the new Australian research showing that an AI tool called 'BRAIx' can identify women at high likelihood of developing breast cancer even when their mammograms show no signs of cancer. Read more via the link Artificial intelligence detects high breast cancer risk in women given all-clear According to the study, 1 in 10 women who fell in the top 2% of risk scores did go on to develop breast cancer, despite having been given the “all clear” at screening. The team behind the project says the tool could be ready for wider use within about five years, potentially opening the door to more personalised screening rather than the current one‑size‑fits‑all approach.👣 CanSTEP Study – Share Your Views! (Sydney/Brisbane/Adelaide Residents)
Are you a cancer survivor living with tingling, numbness, or burning pain after chemotherapy? Researchers want to know: Can fun stepping games help reduce these symptoms and improve your quality of life? Join the CanSTEP study – a 6-month research project by Prince of Wales Hospital and Neuroscience Research Australia. What’s involved? ✔ Home-based step training using a wireless mat (just 80–120 mins/week for 16 weeks) ✔ Questionnaires & assessments on symptoms, balance, and cognition ✔ Random allocation to training or usual care (with option for training later) Who can join? ✅ 18+ years old ✅ Living in Sydney, Brisbane, or Adelaide ✅ Finished chemo at least 6 months ago ✅ Experiencing neuropathy symptoms affecting walking ✅ Able to walk 10m without an aid ✅ Have internet access 📞 Call 02 9399 1734 📧 Email canstep@neura.edu.au Approved by South Eastern Sydney Local Health District Human Research Ethics Committee. 👉 Interested? Comment below or reach out today!📢 Help Us Advocate for Better Access to Day Chemo & Day Procedures 🌟
We’re looking to connect with patients who are currently stuck on public waiting lists, especially those waiting for day procedures or who are travelling long distances just to receive day chemotherapy. If this sounds like you (or someone you know), we’d love to hear from you. 💡 Why we’re gathering volunteers We’re working on an initiative to highlight how shifting more elective procedures (including all day chemotherapy) into day hospitals could make a meaningful difference. Day hospitals can perform these treatments at around half the cost of overnight hospitals. If more care moved into this setting, it could help reduce pressure on private health insurance premiums and create a more efficient system overall. At the same time, we believe public patients shouldn’t be left waiting months when many of these procedures could be done safely and promptly in day hospitals. Your stories can help demonstrate why this matters. 🤝 How you can help We’re seeking volunteers willing to share their experience (big or small) to support this advocacy work. Your voice could help drive change toward a system that is fairer, faster, and more affordable. If you’re interested in being involved or would like more information, please get in touch with Jannette at 0419 204 059 or admin@executivecounsel.com.au Together, we can push for solutions that truly put patients first. 💙🔬 Current Research Exploring the Role of AI in Breast Cancer
There’s been a bit of buzz lately about artificial intelligence (AI) and how it might play a role in breast cancer screening and risk prediction. For many of us, AI can feel a bit mysterious or even intimidating - so let’s explore it! 👀AI Might Help Spot Breast Cancer Breastcancer.org explains that AI programs are being trained to look at mammograms (sometimes millions of them) to learn what typical breast tissue looks like and what might be a sign of cancer. The idea is that AI may pick up tiny changes or patterns that are easy for the human eye to miss. Researchers hope this could help radiologists detect cancer earlier or decide which images need to be reviewed first. AI is also being tested on other scans like ultrasounds and MRIs. It’s already being used in some parts of Europe, though it’s not standard everywhere yet. At this stage, it’s not about replacing radiologists but supporting the - almost like having an extra pair of very detail‑focused eye. Read more here 🧬Using AI to Understand Personal Risk Another interesting development is happening here in Australia. The VCCC Alliance is sharing early work from the BRAIx project, which uses AI to help predict a person’s risk of developing breast cancer. The system looks at mammogram images from more than 95,000 women and uses advanced computer models to estimate who might be at higher risk in the future. The hope is that AI could help create more personalised screening, meaning people who need extra monitoring might be identified earlier, while others might avoid unnecessary tests. The project is also exploring how AI might help reduce false alarms and missed cancers, two challenges in current screening processes. Read more here ✨Why This Is Interesting (and Why We’re Still Watching Closely) All of this raises some very natural questions: Could AI one day help detect cancers earlier? Might it offer more tailored screening for individuals? How do we make sure it’s safe, fair, and reliable? Researchers are excited about the possibilities, but they also emphasise caution. AI needs ongoing testing and real‑world evaluation before it becomes part of everyday care. For now, it’s simply an area worth watching with curiosity. It may one day become another useful tool in breast cancer screening and risk prediction but like all medical advances, it will take time, evidence, and thoughtful conversation. 💬Let us know your thoughts on this in the comments!📝Survey: Were you Diagnosed with Breast Cancer Between Screens?
Breast Cancer Network Australia is inviting women in our network to share their experiences of being diagnosed with breast cancer soon after receiving a BreastScreen Australia “all clear” result , often called an interval cancer. ✨ In March, a BCNA‑trained Consumer Representative will be presenting at the BreastScreen Australia Conference, bringing real women's voices directly into discussions about screening, communication, and care. To ensure the presentation truly reflects these experiences from across Australia, we’re gathering insights from our Online Network community who have received an interval cancer diagnosis. 📝By completing this short survey, you’ll help shape the presentation and strengthen the messages delivered to clinicians, program leaders, policymakers, and researchers. Your voice matters – help shape a national conversation 💬 👉 Take the survey: https://www.surveymonkey.com/r/DXXGBZW 🗓 Closes: Friday, 06 February 2026 Thank you for sharing your experience and helping to shape the future of breast cancer healthcare🙏📝Survey: Were you Diagnosed with Breast Cancer Between Screens?
Breast Cancer Network Australia is inviting women in our network to share their experiences of being diagnosed with breast cancer soon after receiving a BreastScreen Australia “all clear” result , often called an interval cancer. ✨ In March, a BCNA‑trained Consumer Representative will be presenting at the BreastScreen Australia Conference, bringing real women's voices directly into discussions about screening, communication, and care. To ensure the presentation truly reflects these experiences from across Australia, we’re gathering insights from our Online Network community who have received an interval cancer diagnosis. 📝By completing this short survey, you’ll help shape the presentation and strengthen the messages delivered to clinicians, program leaders, policymakers, and researchers. Your voice matters – help shape a national conversation 💬 👉 Take the survey: https://www.surveymonkey.com/r/DXXGBZW 🗓 Closes: Friday, 06 February 2026 Thank you for sharing your experience and helping to shape the future of breast cancer healthcare🙏
