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Reflecting
This has been a journey i never anticipated. It has been 7 christmases and new years since My BC journey started. I thought loosing hubby to cancer the year before was bad enough. Cancer has been annoying my family now for 9 years. A brother first he survived for 4 years hubby was a real shock in 2015 he only lasted 4…
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Metastatic Breast Cancer in the bones - lack of calcium
Hello, in September I got diagnosed with Metastatic breast cancer which had spread to my bones. My treatment is hormone injections and denosumab injection once a month, as well as taking the tablet Abemaciclib twice a day. Sadly I have only been able to have the denosumab (for the bones) once, as my body is struggling to…
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6 years cancer free...then I'm not
Hi all, just wanted to share a little about my journey and was also wanting some advice... My story begins in December 2016, found a lump in my right breast after running my first marathon (lost quite a bit of weight with all the training). fast forward 11 surgeries-lumpectomies, sentinel node biopsies, egg…
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Disability support pension
hello. Let me tell you a little bit about me. I am diagnosed with my 3rd breast cancer and am currently undergoing chemotherapy and have a rare syndrome called lfs. This syndrome has a much higher chance of getting cancer than the average person, and the risk of getting cancer increases with age. I first got cancer 6 years…
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Can I get tpd insurance if I have cancer third times?
Hello. I was first diagnosed with breast cancer in 2016 and am currently receiving chemotherapy after being diagnosed with breast cancer three times. In 2019, I found out through genetic testing that I have a very rare lfs syndrome. Women with this syndrome are said to be 100 percent cancer-free in their lifetime, and as…
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Coming to terms about living with metastatic bc
Post by Ultrarunchick moved by moderator from activity section to the main discussion page: November 8 2022 Six years since my BC diagnosis and one year after being given the all clear (my 5 year anniversary) I was diagnosed with Metastatic Breast Cancer.. thankfully it's just in one place at this time my spine and it's…
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Metastatic Breast Cancer Awareness Day - 13th October 2022
Today is Metastatic Breast Cancer Awareness Day. Breast Cancer Network Australia (BCNA) will continue to advocate and be a voice for those diagnosed with metastatic breast cancer today and every day. BCNA announced today that there are over 10,000 people living with metastatic breast cancer in Australia. This figure is…
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waiting game
Six months ago we were planning a move. Three days before the move I was diagnosed with metastatic BC and needed to wait for extra results which I received after we shifted. Yesterday we found out our next moving date which is three weeks away. Yesterday I received the news that I need more tests as there is increased…
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Adrenal mets - anyone?
Background info: Diagnosed TNBC in July 2021. Finished chemo in December 12/12 Tax and 4/4 Carbo. Also had 3/5 Immunotherapy (Nivomulab) which caused kidney injury so couldn't finish all 5 rounds. Currently taking 70mg/day of prednisone to get them working again. Lumpectomy found 6mm of tumor remaining and sentinel node…
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Still living with mbc
Hi everyone, it’s been awhile since I’ve posted but the recent loss of Olivia Newton John has had vulnerability hit me hard. I am nearly four years on Ribociclib and Anastrolze and my lung tumor is stable. Life has been good and I’ve been living my best. This week however has seen me spiral into a fragile and teary state….…
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Skin Rash Side Effect with Exemestane (Aromasin) & Everolimus (Afinitor)
Hi All, I'm on week 5 with this treatment combo now. This last week I've broken out in a pretty bad skin rash, starts of red/pimply look and evolves into joining up into large red blotches. Its just horrible - I'm sure people will start thinking I've got Monkey Pox now! :o :D :( I've been to my GP on Onco Nurse's advice as…
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Lump below collarbone Looking to others …
Hi ladies. I am waiting to get ct on lump I found just below my collarbone near sternum. Not a panicker but I’m almost certain it’s my cancer spreading … soooo…. Wondering who has had this and what were you’re treatments etc ? just trying to wrap my head around what I may be up for also have noticed pain in back but have…
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How to organise your support team any ideas
I have just been diagnosed with metastatic breast cancer as a first diagnosis 1 month post my husbands death from bowel/ liver cancer. I laos have an adult child with chronic fatigue who needs quiet and a schedule etc..... .Nil family in Australia but a whole group of amazing friends who want to help. I am waiting for my…
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Mets to stomach de novo
I was wondering if anyone has had Mets to stomach ? ILC Rec + .
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Hair loss / extreme thinning with bone Mets medication
Hello, I would really value some advice on if it is possible to overcome the hair loss side effects of medication. My hair has really thinned out in the scalp region. I have been taking both Verzenio and Letrozole for a year to manage the bone Mets. I am now starting to feel self conscious at work. I can feel the…