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Anyone noticed Ear infections on perjeta ?
Question for those who may be on perjeta treatment I’ve just come back from GP again - three ear infections now in 6 months ( first perforated ear drum , now on 3rd lot of antibiotics )Ear infections listed as a 1 in 10 side effect of perjeta when you Google side effects If you’ve had them , how did you manage them ?I’ll…
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Accessing super while still working
Does anyone have experience with accessing their superannuation on terminal illness grounds while continuing to work in a reduced capacity? Is this allowed within the super rules, or do you need to give up work? Or are there no defined rules around this? Thanks for your input.
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Questions around removal of the primary in metastatic treatment
I am VERY new here so I hope this is not a silly question..... I have been diagnosed and one of my first shocks was they were no longer going to remove the primary cancer. I understand they say the data does not indicate significant impact on survival however this data is also questionable on integrity as its so old too.…
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Are you a member of the private Living With Metastatic Cancer group?
My name is Rachelle and I am based in Melbourne. I have MBC and joined the newly formed MBC Advisory Group to help BCNA, at this stage, with the revision of the Hope & Hurdles hardcopy guide and to inform BCNA of emerging issues affecting people with metastatic breast cancer. I have also put my hand up to be a group leader…
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Ribociclib/Letrozole Combo - How long have you been on this plse?
Hi Everyone, I've been on the Ribociclib/Letrozole/Denosumab combo now, successfully since Nov 2018. I take only a low dose of Ribociclib, 200mg daily and so far so good. However, I'm heading towards the 18th month mark now and starting to get a little apprehensive about how much longer it will be effective for. I've read…
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Trial drug.
Hi there i have recently been diagnosed with secondary breast cancer and have had radiation on my spine and leg. November 2022. Has anyone started a trial drug called OP1250 please? It’s in conjunction with palbociclib. Or any information about palbociclib would be appreciated also as I start that this week. Kind regards.
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Enhertu still,not on pbs 2023
Just caught channel,7 news last night about ms Sarah Lee and her battle with stage 4. She has it in her bones and liver and was given six months to,live originally . It’s costing her family $12000 every treatment now, every 3 weeks (she’s personally written a letter to AZ asking for it on comapssionate grounds but was…
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New Diagnosis Shock - metastatic breast cancer
Moderator moved @SallyJ original post from the 'Activity' section to the discussion page:
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Question for wise ones!!
Please note, I have copied this across from the private group as I only had one response so thought I'd post it here too! :smile: Hi there everyone, Merry Xmas, happy new year and all that jazz! I've got a couple of questions and thought I'd head straight to the experts! I was diagnosed with metastatic bc (bones only) in…
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Reflecting
This has been a journey i never anticipated. It has been 7 christmases and new years since My BC journey started. I thought loosing hubby to cancer the year before was bad enough. Cancer has been annoying my family now for 9 years. A brother first he survived for 4 years hubby was a real shock in 2015 he only lasted 4…
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Metastatic Breast Cancer in the bones - lack of calcium
Hello, in September I got diagnosed with Metastatic breast cancer which had spread to my bones. My treatment is hormone injections and denosumab injection once a month, as well as taking the tablet Abemaciclib twice a day. Sadly I have only been able to have the denosumab (for the bones) once, as my body is struggling to…
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6 years cancer free...then I'm not
Hi all, just wanted to share a little about my journey and was also wanting some advice... My story begins in December 2016, found a lump in my right breast after running my first marathon (lost quite a bit of weight with all the training). fast forward 11 surgeries-lumpectomies, sentinel node biopsies, egg…
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Disability support pension
hello. Let me tell you a little bit about me. I am diagnosed with my 3rd breast cancer and am currently undergoing chemotherapy and have a rare syndrome called lfs. This syndrome has a much higher chance of getting cancer than the average person, and the risk of getting cancer increases with age. I first got cancer 6 years…
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Can I get tpd insurance if I have cancer third times?
Hello. I was first diagnosed with breast cancer in 2016 and am currently receiving chemotherapy after being diagnosed with breast cancer three times. In 2019, I found out through genetic testing that I have a very rare lfs syndrome. Women with this syndrome are said to be 100 percent cancer-free in their lifetime, and as…
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Coming to terms about living with metastatic bc
Post by Ultrarunchick moved by moderator from activity section to the main discussion page: November 8 2022 Six years since my BC diagnosis and one year after being given the all clear (my 5 year anniversary) I was diagnosed with Metastatic Breast Cancer.. thankfully it's just in one place at this time my spine and it's…