Are you a member of the private Living With Metastatic Cancer group?

My name is Rachelle and I am based in Melbourne. I have MBC and joined the newly formed MBC Advisory Group to help BCNA, at this stage, with the revision of the Hope & Hurdles hardcopy guide and to inform BCNA of emerging issues affecting people with metastatic breast cancer.

I have also put my hand up to be a group leader of the private ‘living with metastatic breast cancer’ group to encourage people to share their experiences and support one another. I will also keep you informed of the advisory group activities and welcome your thoughts on the good things and gaps in care that you may experience in your local areas to share at committee meetings.

I see that people are more active in this forum but I was hoping, along with BCNA, that we can transfer the activity to the private group, where people may feel more comfortable to be open with their posts/comments yet feel reassured that all posts remain private.

If you are not yet a member, please consider joining. If you are a member, perhaps you would like to post your story under the Stories announcement.
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Comments

  • DaffyDDaffyD Sydney Member Posts: 9
    I've just put a request in to join thanks for bringing this group to my attention
  • Rachey73Rachey73 Member Posts: 54
    I have written a little speel to join, but when I pressed ok to submit, nothing happened....    It has been a while since I have been on the website.  First diagnosed in 2011 and the sucker came back last year. Grrrr   So am a little rusty and which groups I am in and not it.  
  • iserbrowniserbrown Regional VictoriaMember Posts: 3,791
  • Riki_BCNARiki_BCNA Administrator, Staff, Member, Moderator Posts: 262
    Hello @Rachey73 and welcome back to the online network. I have sent you an invite to the metastatic breast group. 
  • DeebsDeebs Member Posts: 7
    Not sure how to join this group could someone please invite me? diagnosed bc in June 2013 now Mets to bones July 2018 on Ribociclib letrozole and denosomab 
  • DaffyDDaffyD Sydney Member Posts: 9
    Deebs if you go to the groups section and click on join
  • Giovanna_BCNAGiovanna_BCNA Administrator, Staff, Member, Moderator Posts: 1,213
    Hello @Deebs I have sent you an invitation to join the private Living with metastatic breast cancer group.
  • DeebsDeebs Member Posts: 7
    Thanks guys 
  • PalmbeachprincessPalmbeachprincess Member Posts: 14
    Hi, so rusty too. 
    How do I join this group? 
  • iserbrowniserbrown Regional VictoriaMember Posts: 3,791
    @Palmbeachprincess ;

    Hi!  In response to your question here is the link

    https://onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancer

    on the right hand side of the banner you will see a button that says Join

    Best wishes as you work your way through where you are at and hopefully it all settles soon
  • BenmamyBenmamy Member Posts: 16
    Hi @Giovanna_BCNA ;
    i know it’s been a while since this thread has been active but I have trouble to join the group too. Would you mind helping me as well?  Thank you in advance💖
  • MoiraCMoiraC SydneyMember Posts: 173
    Hi @RachelleRachelle -this is great to see you taking up this role. Thank you so very much and for your advocacy for us all. I haven't been on line for awhile as this group didn't seem to be getting much traction. I did try sometime ago. So thanks and will try to contribute a bit more from now on 😎
  • HD4873HD4873 FNQMember Posts: 6
    I, too, am appearing to have problems joining this group.  Hit the JOIN button, complete the question, but some days later, still nothing.
  • RachelleRachelleRachelleRachelle Member Posts: 29
    @Giovanna_BCNA have there been more people that have requested to join the group but are yet to be approved? Is anyone here still having trouble joining the group after visiting the link: https://onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancer and clicking on the Join button?
  • Riki_BCNARiki_BCNA Administrator, Staff, Member, Moderator Posts: 262
    Hello @Benmamy and @HD4873 I have sent you an invitation to join the private MBC group. I will follow up on this tomorrow @RachelleRachelle ;
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