Home Metastatic breast cancer



Ribociclib/Letrozole Combo - How long have you been on this plse?

elisewjkelisewjk BrisbaneMember Posts: 44
Hi Everyone, I've been on the Ribociclib/Letrozole/Denosumab combo now, successfully since Nov 2018. I take only a low dose of Ribociclib, 200mg daily and so far so good. However, I'm heading towards the 18th month mark now and starting to get a little apprehensive about how much longer it will be effective for. I've read studies that have indicated to up to between 20 months and 30 months success for some lucky people. How long have you had success for? Cheers :)

Comments

  • LouweezerLouweezer Member Posts: 19
    Hi @elisewjk I am on the same combo as you but 600mg daily for three weeks/one week off. I was diagnosed in Dec 2018 with de novo stage 4 with spinal mets.  I had a great PET scan result in Jan 2020 so steady as she goes. I feel the same as you, how long can keep this going for. It would be interesting to know when it was first prescribed in Australia and how those ladies are doing today. Are you out there ladies? Please let us know! X
  • wokeupthismorningwokeupthismorning Member Posts: 3
    Hi, I've been taking Ribo 400mg + letrozole since August 2018. Combo is working great to halt progress of bone and lung mets. Hoping it keeps working... Experiencing some annoying skin problems and painful nerve issues that I will talk to oncologist about at next visit.
  • LucyDeeLucyDee Member Posts: 88
    Yes me too @elisewjk,  but like @Louweezer, 600mg 3/1. Since June 2018 I had a very itchy arm initially but that didn’t last. Last bone scan showed some progress re bone mets. Radiation of T11 is an option but it could crack the bone so Oncologist is hesitant
  • DeebsDeebs Langwarrin Victoria Member Posts: 11
    Hi everyone 
    23 months and stable 600mg mets bones 
  • AngeloAngelo PerthMember Posts: 29
    Hi Everyone , I’m on my 18th cycle / 600mg daily and doing ok. Mets lung . Thinking of you all xxx
Sign In or Register to comment.