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Happy Birthday to @Trikki for 2 August :o)
Dear @Trikki2 Wishing you a very happy birthday for today <3
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Ascites
Hello I have Metastatic breast cancer (Hert2-)which spread to my liver (amongst other organs!,though the cancer is under control , but due to cancer scarring on my liver I developed Ascites - initially the chemo had it under control but we had to change to Verzio which isn’t helping- the specialist say it’s due a mixture…
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Astra Zeneca vaccine while on Herceptin Perjeta
I just had the Astra Zeneca jab and the dr told me it wouldn’t work as well for me because I’m on immunotherapy (Herceptin Perjeta). I was surprised by this but went ahead anyway. Has anyone else on this been told that? Or that you had to get it at a certain time in the 3 weekly cycle?
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Rising tumour markers, and advice needed regarding breast care nurse
I am now 71/2 months along since my diagnosis, and it's been one hell of a ride. I was started on Ribociclin but it affected my liver so I had to stop that, then I was on Palbociclin which last month showed a positive response to treatment with visibility of the tumours basically undetected. Now my blood tests have shown a…
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Webcast: New and emerging treatments for metastatic breast cancer 23 March 2021
Hi All, BCNA will be hosting a webcast on Tuesday 23 March about new and emerging treatments for metastatic breast cancer with Dr Nick Zdenkowski, Medical Oncologist and Kim Parish, BCNA Consumer Representative. You can find more information on the webcast or register to attend…
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Metastatic breast cancer
Hi everyone I’ve been living with this since 2017 and I’m having treatment which is herceptin and perjeta every three weeks! Lately I’ve developed itchy skin on my arms but no visable rash, I’ve tried so many different creams etc but it hasn’t helped! I’m frustrated to say the least! I use QV wash and moisturiser and my…
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Everolimus and Exemestane combo
De novo 4 years ago. Been on Ribociclib and Anastrozle past 2 years . Progression so oncologist has suggested Everolimus and Exemestane. Any feedback would be great thanks. Side effects manageable?
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Brain Mets
had a seizure on Friday get ambo to hospital, brain CT reveals one of the skull Mets is now in brain. Radiation starts tomorrow. Alternating between Panadol and Endone. Time to make end of life decisions. I be 58 in June Mind blown
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Treatment
I have recently been given the diagnosis we all dread, metastatic her2+++ in my liver I started treatment with Pacitaxel with pertuzumab and trastuzumab. I had a reaction after 7 minutes of pacitaxel so it was stopped the next week when I went for next treatment I was informed that they were changing the treatment to…
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Kisqali
Hi everyone, sad day today just found out I have spread to my liver now 😩 as well as already in spin and pelvis, what I’m wanting to know is when your on kisqali and letrozole combo and it stops working so well and spread happens what was the next step for anyone it happened too? Tia enjoy your day
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Endone
Is anyone taking Endone (for pain) and what side effects are you experiencing? My Oncologist prescribed me Endone for shoulder blade pain. I didn’t take it because a friend who had hip surgery had hallucinations when she was on it. As it so happened, the pain went away when I had T11 tumour ‘radiated’. That was last July.…
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Metastatic Breast Cancer & avoiding weight gain while on Letrozole ?
Metastatic Breast Cancer & avoiding weight gain while on Letrozole. Is it possible ? Has anyone been successful in losing weight that was gained while taking Letrozole ? What have you find helpful ? I have only met two other women with metastaic breast cancer who are also talking Letrozole and their response to my question…
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2 years - Ribociclib/Anastrolze
Hi Everyone, I just wanted to share some positivity and hope for any of you that are on the Ribociclib & Anastrolze combo.I have just completed 2 years and feeling pretty good. Hair is thinning at crown, the feet are disgustingly dry and the hands and nails are peeling BUT ... who cares, I can live with it... I’m well and…
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What do bone Mets feel like?
Hi Gals I was diagnosed almost a year ago with stage 3C DCIS - (Beryl for those in the know!) Beryl was pretty busy and managed to have 13 not so darling babies (lymph nodes). So a mastectomy was on the table and as I was awaiting test results for BRAC gene I decided to go for gold and do two for the price of one - I do…
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Suspicious Bone Lesions
After having diep flap reconstruction in Feb 2019 my plastic surgeon sent me for an abdominal CT scan to check a few things out. This appointment was in August 2020. Had the scan. The report also sent to my GP (who is wonderful). The last line on the report commented on suspicious areas on my spine. He then contacted the…