-
Immunotherapy Atezolizumab (Tecentriq) Metastatic Triple Negative Experience
I just wanted to share my experiences with accessing the immunotherapy drug Atezolizumab (Tecentriq) that is currently not on the PBS (but hopefully will be soon!). In 2017 I was treated for TNBC stage 3 breast and lymph nodes, had 3 amazing years of good health, family and travel, then in March 2020 found an enlarged…
-
Peritonial lesions
After doing so well I have just found out my liver mets have increased and lesions in my perit6. Anyone have more knowledge about this
-
Diagnosed Metastatic BC August 2020/nab Paclitxel (chemo) & Atezolizumab (Immunotherapy)
I just want to share my story. High risk R side breast cancer diagnosed in August 2016. oestrgon + progestrone/HER2 neg. Treated with surgery/chemotherapy x 2 and on Letrozole daily. Four years of good health and back to work. Come August 2020 found hard lump right base of neck. GP ultrasound organized. Referral was then…
-
Newly diagnosed
So very scared advice greatly appreciated I had mammogram as have inverted nipple yes cancer so went through testing good news is not in lymph nodes so had ct scan for other body parts good news no cancer in them but had to have another scan with dye only to find out it’s extensive in spine so very scared bout dying my…
-
Possible lung mets shock
Hi, At my 1 year check up for a Phyllodes tumour ( mastectomy and radiation ) they have found a 7mm lung node. PET scan on Thursday. Day off work today....how do you get through this?
-
Tumour markers
My ca13 5 have tripled in a month. I have been doing so well for nearly 2 years. Anyone have this happen
-
Newly diagnosed - Just need some positivity and hope
Hi Everyone. This is my first post. I am trying to navigate this network, because I know I need help. I was diagnosed with metastatic breast cancer only 5 days ago. I have many tests coming up, and treatment options. But for now, I can't seem to find the strength. I just need to hear some positive stories, some good…
-
Newly diagnosed with mets
Hi everyone, yesterday I got the bad news that my early breast cancer diagnosis of 4 years ago has spread, I was devastated, I have changes in my pelvis and lower spine and a growth push against my kidney tube hence that kidney not working correctly and a stent is going to be inserted and a biopsie of the growth to see if…
-
it's been a while
Hello, everyone. It has been a while since I posted here. Hope you are all going along ok. i'm just ticking along with my treatment, ibrance and letrozole which seems to be going well for me at the moment. l'm a Melbourne girl - so the challenges of lockdown are ongoing for us still, but we are hanging in there. I have…
-
Herceptin 11 years on
hi everyone long time since I have been on here as things were going as well as can be expected but now I have this cough which I have now had for approx 10 months that just won't go. My GP says my lungs (which is where my mets are) sound fine but the cough is heavy and loud with a high pitch - it even scares my dog lol.…
-
Newbie with pain
Hi, Would appreciate advice on coping with pain continually getting worsening. Diagnosed in Feb this year with small mets in thoracic and lumbar verebrae and since then 1 dose of palliative radiotherapy and monthly denosumab. My concern is how quickly my oral targin and fentanyl patch have had to be increased to cover my…
-
Mum's first chemo session
Hi, my mum will be having her first ever chemo session early next week. The oncologist will treat her with Paclitaxel and treatment will be once a week for 4 weeks followed by 1 week break each cycle. I would appreciate any tips on how to prepare mum before treatment and what do do after treatment to minimise side effects…
-
Triple negative metastic breast cancer
Hi all, first diagnose of cancer (no family history) already is stage 4 breast cancer that went to lungs and brain. Is there anybody here with success stories so that I can feel inspired and hopefully learn tips for recovery? Pretty please and thank you
-
Video re Mets BC .... EVERYONE needs to watch it
My sister just shared this video on Facebook - this video went viral in 2015 in the USA and around the world, currently with 54,000,000+ views on Facebook alone. Holley Kitchen passed away in January, 2016, from Mets BC, age 43. 30% of those diagnosed with 'early, treatable, non spread' BC who have been told there is NED…
-
Good news
Hi all i just had my recent pet scan and I am NED!! I can not believe it. I’ve had breast cancer, skin, liver, lower sacrum bone and extensively in my pleural lining. I thought I’d share my news to give hope to others and reading positive news really helped and inspired me. sending love
