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MBC Brain Mets

Judy_MJudy_M Member Posts: 13
Hi. I’ve recently been diagnosed with extensive small brain mets, additional to mets in multiple other organs and bones. I’m currently almost half way through whole brain radiotherapy. I’d like to connect with others who are going through, or have experienced, WBRT. I feel a bit isolated in this, as no one in our local MBC support group has experience of brain mets. Thanks, Judy

Comments

  • LocksleyLocksley Macedon Ranges, VictoriaMember Posts: 629
    Hi @Judy_M sorry to see you here.   Sending you a hug.  @Mez_BCNA are the moderators able to join Judy up with the mets group please.
  • arpiearpie Mid North Coast, NSWMember Posts: 5,180
    So sorry to hear of your diagnosis, @Judy_M .... 

    Message sent, xx
  • Cath62Cath62 Brisbane Member Posts: 358
    Big hugs 🌻
  • Judy_MJudy_M Member Posts: 13
    Thanks Cath. And to you 🤗🌼
  • Mez_BCNAMez_BCNA Administrator, Staff, Member, Moderator Posts: 31
    Hi @Judy_M

    The living with metastatic group can be found here https://onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancer. This is a private group so you will need to apply and one of the BCNA mods will accept you. If you have any questions, please let me know.

    @Mez_BCNA
  • ChevvyChevvy Member Posts: 24
    Sending virtual hugs 🤗🤗🤗🤗... I hope you find support so you dont feel so isolated in your journey. X
  • Judy_MJudy_M Member Posts: 13
    thank you 🙏 
    I have a great support network but no one close by who’s had experience of brain mets, apart from a couple here and on Facebook. I wonder how rare brain mets are? Best wishes to you Chevvy x
  • arpiearpie Mid North Coast, NSWMember Posts: 5,180
    edited September 18
    Sadly, @Judy_M - it is not all that rare. :(   I've read that up to 20% of those with mets may develop brain mets.  :(   

    That is great that you have good family & friend support xx

    Where abouts are you (roughly - town/city) .... members may know of local services that are available to you (You can add your town to your profile.) 

    take care xx

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