Hi Judy _ M,
I have brain metastis. ( and lung/ bone) . It is not easy to deal with especially the roller coaster of emotions and coping with the side effects of treatment (e.g brain radiotherapy and brain surgery ) I wouldn't wish it on anybody, but I also want to let you know the advances in treatment are incredible. I am very grateful to my neurosurgeon and oncology specialists for their expertise and skills.
I have also felt the isolation you describe after finding out my metastatic breast cancer spead to my brain this year.
I am about to start another round of brain radiotherapy for new growths in my brain .. but this time I do not feel as worried. I still find it hard to deal with but I am trying not to focus on the " what if's" so much now and just try to make the best of each day ( especially the reprieve times inbetween treatments )
An online facebook support group I have really helpful :is called "Stage 4 Cancer Brain mets PATIENTS ONLY " . If you use Facebook you can search for this group and apply to join it. It has been great for me to find this group of people as they all hsve the same diagnosis and understand some of the fears, uncertainties and treatments that come with having brain mets .
All the best Judy_M 💕⚘💕