Why not join the Living with metastatic private group? Access group via the link here.
Rising tumour markers, and advice needed regarding breast care nurse
I am now 71/2 months along since my diagnosis, and it's been one hell of a ride. I was started on Ribociclin but it affected my liver so I had to stop that, then I was on Palbociclin which last month showed a positive response to treatment with visibility of the tumours basically undetected. Now my blood tests have shown a slight increase in the tumour marker, from 86 to 92, instead of going down. So now I have to have ct scans, MRI's, and a possible pet scan to see what's going on. So here comes the anxiety again, wondering what's happening. I was told that it would be very beneficial to have a breast care nurse that is trained in all of this, and who I can contact when it's all feeling overwhelming. My oncologist works out of the Olivia Newton John centre, so I would preferably want a nurse who works from there. Does anyone know who I can contact about this, and has anyone been through something similar that could possibly reassure me about my situation. You were all so wonderful and so helpful when I was first diagnosed, and I'm hoping I can ask for your help one more time.