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Metastatic Breast Cancer Awareness Day - 13th October 2022
Today is Metastatic Breast Cancer Awareness Day. Breast Cancer Network Australia (BCNA) will continue to advocate and be a voice for those diagnosed with metastatic breast cancer today and every day. BCNA announced today that there are over 10,000 people living with metastatic breast cancer in Australia. This figure is…
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waiting game
Six months ago we were planning a move. Three days before the move I was diagnosed with metastatic BC and needed to wait for extra results which I received after we shifted. Yesterday we found out our next moving date which is three weeks away. Yesterday I received the news that I need more tests as there is increased…
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Adrenal mets - anyone?
Background info: Diagnosed TNBC in July 2021. Finished chemo in December 12/12 Tax and 4/4 Carbo. Also had 3/5 Immunotherapy (Nivomulab) which caused kidney injury so couldn't finish all 5 rounds. Currently taking 70mg/day of prednisone to get them working again. Lumpectomy found 6mm of tumor remaining and sentinel node…
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Still living with mbc
Hi everyone, it’s been awhile since I’ve posted but the recent loss of Olivia Newton John has had vulnerability hit me hard. I am nearly four years on Ribociclib and Anastrolze and my lung tumor is stable. Life has been good and I’ve been living my best. This week however has seen me spiral into a fragile and teary state….…
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Skin Rash Side Effect with Exemestane (Aromasin) & Everolimus (Afinitor)
Hi All, I'm on week 5 with this treatment combo now. This last week I've broken out in a pretty bad skin rash, starts of red/pimply look and evolves into joining up into large red blotches. Its just horrible - I'm sure people will start thinking I've got Monkey Pox now! :o :D :( I've been to my GP on Onco Nurse's advice as…
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Lump below collarbone Looking to others …
Hi ladies. I am waiting to get ct on lump I found just below my collarbone near sternum. Not a panicker but I’m almost certain it’s my cancer spreading … soooo…. Wondering who has had this and what were you’re treatments etc ? just trying to wrap my head around what I may be up for also have noticed pain in back but have…
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How to organise your support team any ideas
I have just been diagnosed with metastatic breast cancer as a first diagnosis 1 month post my husbands death from bowel/ liver cancer. I laos have an adult child with chronic fatigue who needs quiet and a schedule etc..... .Nil family in Australia but a whole group of amazing friends who want to help. I am waiting for my…
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Mets to stomach de novo
I was wondering if anyone has had Mets to stomach ? ILC Rec + .
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Hair loss / extreme thinning with bone Mets medication
Hello, I would really value some advice on if it is possible to overcome the hair loss side effects of medication. My hair has really thinned out in the scalp region. I have been taking both Verzenio and Letrozole for a year to manage the bone Mets. I am now starting to feel self conscious at work. I can feel the…
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Mum recently diagnosed
Hey all, I've joined this forum in the hopes of connecting with others. My mum is 69, diagnosed with breast cancer 2 months ago and now has been diagnosed with metastatic BC in spine and possibly lungs (they arent 100% sure on the lungs) as the spots are so small. Shes started oral chemo and hormone therapy today and will…
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Metastatic breast cancer diagnosis
Original post from @Arleene copied across from the Activity section. Good afternoon everyone, I had BC in 2015 and finished treatment in 2016 and did everything asked of me, in December last year I found a lump in my neck and over Christmas/New Year I underwent tests to find out in January I have MBC in my Lymph Nodes and…
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4th Covid jab?
Sorry if this has already been discussed, but I haven't been on here for a while. Are any metastatic people getting 4th Covid jabs? I'm 42, 3 jabs done
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Abemaciclib and Provera
Hi @hellosunrise and @wendy55. I was just about to reply to your post Wendy on the general site which I only recently joined but when my membership of this metastatic group came through and I saw @hellosunrise sunrise's post I thought I should reply to you both. My name is Penny and I have been on Abemaciclib for just over…
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New member
Hi all and thank you to those who welcomed me! I was waiting for some news on my next treatment before I posted. I was disappointed to find out I cannot have any more radiation but glad the team came up with Provera as an alternative to last resort chemo, even though I have just had a year on CDK inhibitors thanks to…
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Radiation On Lesion
Saw the Radiation Oncologist today. She feel that the radiation will help. Have staging on Thursday then I’m to have 5 zaps over 5 days. It could take up to 4 weeks to know what the full benefit will be. Its worth a try reay liked this rad oncologists the last one had no bedside manner at all. Didn’t explain anything. And…