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Mum recently diagnosed
Hey all, I've joined this forum in the hopes of connecting with others. My mum is 69, diagnosed with breast cancer 2 months ago and now has been diagnosed with metastatic BC in spine and possibly lungs (they arent 100% sure on the lungs) as the spots are so small. Shes started oral chemo and hormone therapy today and will…
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Metastatic breast cancer diagnosis
Original post from @Arleene copied across from the Activity section. Good afternoon everyone, I had BC in 2015 and finished treatment in 2016 and did everything asked of me, in December last year I found a lump in my neck and over Christmas/New Year I underwent tests to find out in January I have MBC in my Lymph Nodes and…
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4th Covid jab?
Sorry if this has already been discussed, but I haven't been on here for a while. Are any metastatic people getting 4th Covid jabs? I'm 42, 3 jabs done
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Abemaciclib and Provera
Hi @hellosunrise and @wendy55. I was just about to reply to your post Wendy on the general site which I only recently joined but when my membership of this metastatic group came through and I saw @hellosunrise sunrise's post I thought I should reply to you both. My name is Penny and I have been on Abemaciclib for just over…
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New member
Hi all and thank you to those who welcomed me! I was waiting for some news on my next treatment before I posted. I was disappointed to find out I cannot have any more radiation but glad the team came up with Provera as an alternative to last resort chemo, even though I have just had a year on CDK inhibitors thanks to…
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Radiation On Lesion
Saw the Radiation Oncologist today. She feel that the radiation will help. Have staging on Thursday then I’m to have 5 zaps over 5 days. It could take up to 4 weeks to know what the full benefit will be. Its worth a try reay liked this rad oncologists the last one had no bedside manner at all. Didn’t explain anything. And…
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CT scan results
Hi. I'm into my 6th year after having surgery, chemo and radiation treatment for estrogen positive breast cancer. My recent scan says that I have sclerotic changes in my ribs consistent with Paget's disease. I don't get to see my oncologist for about 6 weeks and I was wondering if anyone really understands what that means…
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Inspiration from Nightbird
For those of you who need some inspiration. This link takes you to a segment of America's Got Talent where a beautiful 30 year old woman sings her own song about her MBC journey over the last 12 months. The song, her voice, and her attitude is truly beautiful and inspiring (although a little bit sad).…
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Triple Negative Breast Cancer Stage 4
Hi everyone, I just joined as I got diagnosed officially yesterday with triple negative breast cancer with Mets in chest wall, liver and a few on lungs. I had back pain, which is apparently not really related as no Mets in my bones showed up on the PET. So it’s a shock. I am 36yrs old and have a beautiful 2 year old…
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Trple neg mets bones and lungs
Hi, my BC is now triple neg, mets in bones and lungs, have had 15 rounds of chemo which was to be ongoing but canceled this week due to ca markers jumping from 72 to 360, anybody else had such a jump, l dont know what if any my next treatment options are. Having a very anxious week waiting for my next round of scans…
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COVID 19 jab
Hi everyone just wondering what everyone is doing about get the COVID 19 jab? I’m booked in for my first dose but having second thoughts with the blood clotting that’s happening, I am over 60 so I’m ok to get it but unsure.
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Capecitabine
Hi everyone, I’ve been on the kisqali/letrozole mix of medications since April 2019, they are starting to not fully work now so they are putting me Capecitabine (chemotherapy) tablets, is anyone else on these if so how’s things on them, side effects ect
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Breast Cancer Trials Q&A with Annabel Crabb - Metastatic Breast Cancer. Feb 7, 2022
This link came thru my emails today and may be of interest to you. In this upcoming Q&A event, moderated by TV presenter Annabel Crabb, we will be discussing the latest in research for metastatic breast cancer with leading researchers, as well as the psychological impacts of this disease and participating in clinical…
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Is anyone under Professor Arlene Chan Onc (WA)? Mets BC treatment
The Annabel Crabb Q&A on Metastatic Breast Cancer is on tonight - starting 5pm East Coast time (I've just received the link.) https://www.breastcancertrials.org.au/qa-registration? On the FB page, lots of other Top Mets BC Oncs are being mentioned too - as having 'turned around Mets BC' ..... giving hope to many of…
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Trying to Stay Positive my journey
"You look so well, lost weight" comments from people l may have not seen for a little while. Thank you l say with a beaming smile, they don't know, should I tell them or not, I don't. l have stage 4 metastatic breast cancer incurable and aggressive l've been told, the little devils have been having a great road trip…