-
An amazing lady who has had BC Mets for 40 years ..... they want to know about her longevity!
How amazing is this woman? (BTW, This article is 6 years old now - and as at 2021, she was 85 and was still going strong.) Margaret “Peg” Geisler, has now been living with breast cancer for 40 years, and with metastatic disease for 36 of those years. Peg’s records showed she originally had breast cancer in 1978, it…
-
'Getting on with life' tips
Moderator moved @Batjam to the main discussion section of forum:
-
Allergic reaction to chemo
Hi All, I'm interested to hear if anyone has had an allergic reaction to their an intravenous chemo infusion and how this affected their treatment plan? What symptoms did you experience? and did you continue to try another chemo treatment? Thanks in advance 🙂
-
BCNA Leads First National Roadmap to Collecting Metastatic Breast Cancer Data
A roadmap to finally count the number of people diagnosed with incurable and life limiting metastatic breast cancer (MBC) is a step closer thanks to the $1.5 million announced over the weekend by Prime Minister Anthony Albanese to fund a cancer data alliance. Almost two years ago a group of Breast Cancer Network Australia…
-
Trodelvy - any info to share?
Hi, I am reaching out to see if anyone else has commenced Trodelvy chemotherapy and if yes, what are your side effects experiences. I am only in 1st cycle, 2 weeks on/1 week off. Main reaction has been some insomnia and bad fatigue. Wondering about hair loss and at what stage, if anyone has experienced this? Does fatigue…
-
Tribute
Hi everyone I recently went through some of my photos and marvelled at a photo on my phone that I had downloaded from the forum sometime ago. It was painted by Tracey_B I double checked with the Mods today and yes poor Tracey is no longer with us and they have respectfully given her a Dragonfly. Tracey was a good scout -…
-
Pharmaceutical Benefits Advisory Committee (PBAC) - Enhertu for HER2-low Metastatic Breast Cancer
The Pharmaceutical Benefits Advisory Committee (PBAC) has recommended the drug Enhertu (trastuzumab deruxtecan) for people with HER2-low metastatic breast cancer (MBC) to be subsidised on the Pharmaceutical Benefits Scheme (PBS). We now call on the Australian Government to work with the pharmaceutical company to list…
-
Long term Herceptin
Hi was just wondering how long people have been on Herceptin and how they are doing? I have celebrated 14 years this January and will have my 238th infusion next week. I have had a mastectomy and am waiting to have the other one removed as I hate the lopsided feel and having all my clothes moving to the left very annoying…
-
goodbye xeloda hullo to navelbine
Hi to everyone, just thought I would drop by and say that after 34 months of xeloda its time for a change, I had scans last week and went back to my oncologist yesterday, he had been discussing with me the gradual change in my markers and now with one of my tumours growing slightly its time to make the decision to change…
-
Inavolisib vs Alpelisib
Hello Thrivers I was diagnosed last September stage 4 de-nova. The cancer had spread from my breast to lymph nodes, to spine and right hip. Pr,er positive her2 negative. I started on Tamoxifin, then Lextrozle with Riboclicib, progression more in my spine, rib and liver. I was tested for the pik3ca mutation. I then went on…
-
MBC found 1st May 2023 and as of 25/12/2023 .... no pet scan.
Its seems the local hospital has no protocols in place to deal with a patient with claustrophobia. They have continually delayed giving me the scan and I will not consider any treatment until I am fully aware of the spread of the mets. From day one I have had nothing but drama and stress with the hospital, getting a call…
-
Kisqali, blood tests and scans
I just started on Fulvestrant and Kisqali. First round of Kisqali at 600mg. Bloods show liver enzymes up so oncologist dropped to 400mgs for second round. Oncologist said my blood tests are ineffective at showing tumour markers and this happens sometimes and it's just unlucky for me and one of those unusable things. So the…
-
New metastatic diagnosis
I’m new to this group. I’m 43 years old and today I was told I have ER, PR negative, HER2 positive metastatic breast cancer. I have mets in lymph nodes, bones and liver. No symptoms- only had a mammogram as my Mum was diagnosed with breast cancer 2 months ago. I’m married with an 8 year old son and 11 year old daughter. It…
-
Vale Peta Murphy MP
It is with much sadness that Breast Cancer Network Australia
acknowledges the death of Peta Murphy MP. In Peta’s maiden speech to Parliament in 2019, after she was
elected to represent the federal seat of Dunkley, Victoria, Peta told our
country that she had been diagnosed with metastatic breast cancer. In this
speech she…
-
Scar tissue pain
Hi 3 years on from a mastectomy and a metastatic cancer diagnosis (in my bones) I’m experiencing pain and soreness under my arm, in the chest wall and around the surgery site which seems to be related to scar tissue issues. Can’t seem to find any answers from the medical world. Just wondering if this is normal and what…