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Pharmaceutical Benefits Advisory Committee (PBAC) - Enhertu for HER2-low Metastatic Breast Cancer
The Pharmaceutical Benefits Advisory Committee (PBAC) has recommended the drug Enhertu (trastuzumab deruxtecan) for people with HER2-low metastatic breast cancer (MBC) to be subsidised on the Pharmaceutical Benefits Scheme (PBS). We now call on the Australian Government to work with the pharmaceutical company to list…
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Long term Herceptin
Hi was just wondering how long people have been on Herceptin and how they are doing? I have celebrated 14 years this January and will have my 238th infusion next week. I have had a mastectomy and am waiting to have the other one removed as I hate the lopsided feel and having all my clothes moving to the left very annoying…
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goodbye xeloda hullo to navelbine
Hi to everyone, just thought I would drop by and say that after 34 months of xeloda its time for a change, I had scans last week and went back to my oncologist yesterday, he had been discussing with me the gradual change in my markers and now with one of my tumours growing slightly its time to make the decision to change…
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Inavolisib vs Alpelisib
Hello Thrivers I was diagnosed last September stage 4 de-nova. The cancer had spread from my breast to lymph nodes, to spine and right hip. Pr,er positive her2 negative. I started on Tamoxifin, then Lextrozle with Riboclicib, progression more in my spine, rib and liver. I was tested for the pik3ca mutation. I then went on…
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MBC found 1st May 2023 and as of 25/12/2023 .... no pet scan.
Its seems the local hospital has no protocols in place to deal with a patient with claustrophobia. They have continually delayed giving me the scan and I will not consider any treatment until I am fully aware of the spread of the mets. From day one I have had nothing but drama and stress with the hospital, getting a call…
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Kisqali, blood tests and scans
I just started on Fulvestrant and Kisqali. First round of Kisqali at 600mg. Bloods show liver enzymes up so oncologist dropped to 400mgs for second round. Oncologist said my blood tests are ineffective at showing tumour markers and this happens sometimes and it's just unlucky for me and one of those unusable things. So the…
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New metastatic diagnosis
I’m new to this group. I’m 43 years old and today I was told I have ER, PR negative, HER2 positive metastatic breast cancer. I have mets in lymph nodes, bones and liver. No symptoms- only had a mammogram as my Mum was diagnosed with breast cancer 2 months ago. I’m married with an 8 year old son and 11 year old daughter. It…
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Vale Peta Murphy MP
It is with much sadness that Breast Cancer Network Australia
acknowledges the death of Peta Murphy MP. In Peta’s maiden speech to Parliament in 2019, after she was
elected to represent the federal seat of Dunkley, Victoria, Peta told our
country that she had been diagnosed with metastatic breast cancer. In this
speech she…
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Scar tissue pain
Hi 3 years on from a mastectomy and a metastatic cancer diagnosis (in my bones) I’m experiencing pain and soreness under my arm, in the chest wall and around the surgery site which seems to be related to scar tissue issues. Can’t seem to find any answers from the medical world. Just wondering if this is normal and what…
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pain and fatigue and having a whinge
hi everyoneI've come online to have a whinge. My femurs are aching a lot in the last couple of days. I have nails inserted in both of them. Recently had radiation to the left femur and pelvis to help with pain. Now my right femur seems to be giving me heaps of jip now. I think I overdid it the other day - did all the…
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Prosthetics slipping in bras
Hi Everyone, I've haven't been on this site since January after my double mastectomy. Dealing with the healing, I also lost my husband in April and haven't felt like doing anything or seeing many people. So today I feel a bit better and need to get more energy into my body and start doing things again. I bought a pair of…
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Enhertu now on PBS list for MBC patients
GREAT NEWS BCNA welcomes the listing of Enhertu (trastuzumab deruxtecan) on the Pharmaceutical Benefits Scheme (PBS) for those with metastatic breast cancer. BCNA supported the process for Enhertu to be considered for listing on the PBS and we welcome the government subsidy for this exciting new drug. “This is a…
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Spread to tummy lining and adrenal gland
Hi everyone, had a Petscan on Saturday results today, spread to my stomach lining and adrenal gland now very small but there, has anyone else been in this position? If so how was it treated? I have to have a biopsie done to confirm same cancer then possible infused chemo again,
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New member - Question re oral chemotherapy capecitabine
Original post created by member @Brondocs - moved to Metastatic breast cancer discussions
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On herceptin and perjeta , stage 4 , itchy skin and now itchy scalp -anyone treated itch sucessfully
I’ve been on H&P for over 12 months -experiencing itchy skin for last 4 months or so. Mostly red spots on chest and shoulders/back Told oncologist and am using cortisone cream on chest and shoulders; also getting DEX with each three weekly H&P infusions . NOW have developed itchy scalp - last night I ended up getting a…