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Long term Herceptin
SueRi
Member Posts: 40 ✭
Hi was just wondering how long people have been on Herceptin and how they are doing?
I have celebrated 14 years this January and will have my 238th infusion next week. I have had a mastectomy and am waiting to have the other one removed as I hate the lopsided feel and having all my clothes moving to the left very annoying would much rather be flat. So far everything is stable and the Herceptin is what they call maintenance dose to keep me stable.
hope everyone is coping as well as they can
❤️❤️
I have celebrated 14 years this January and will have my 238th infusion next week. I have had a mastectomy and am waiting to have the other one removed as I hate the lopsided feel and having all my clothes moving to the left very annoying would much rather be flat. So far everything is stable and the Herceptin is what they call maintenance dose to keep me stable.
hope everyone is coping as well as they can
❤️❤️
Tagged:
7
Comments
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Hi @SueRi I was on herceptin for a year in 2018 and then started again with herceptin/perjeta nine months ago. Congratulations on doing well. I have a number of reactions to the combo but am perservering for now. I too am monoboobed and have that same annoying thing with my clothes but am happy to just readjust.5
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Wow that's good to hear. I was diagnosed Feb 22 and was told I should have years - you are a great example!2
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Hi all, in 2012 I was Her2Positive and stage 4. Had a single mastectomy but wish they took the other one the same time as I'm sick of the neck pain and the clothing thing. I was on Herceptin every 3 weeks until Aug 2021, when I went into remission. I always had side effects with intravenous but never with the subcutaneous. Good luck ladies x
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I was on Herceptin and Perjeta for 6 years, I am on a break. they finally changed the rules allowing a break and my doctor had talked of stopping it after 5 years, I managaed to drag it out to 100 doses which ended up being the 6 years due to a few delayed or missed doses over the years. I have had 2 scans that have been ok and I am due for a PET scan in February so fingers crossed. My secondaries were in the 3 different lymph nodes so after Chemo, raditaion and the time on Herceptin he felt it was worth having a break. It is a worry none the less but at least I do have the option to go back on it. I didn't have too may side affects
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