Trodelvy - any info to share?

Hi, I am reaching out to see if anyone else has commenced Trodelvy chemotherapy and if yes, what are your side effects experiences. I am only in 1st cycle, 2 weeks on/1 week off. Main reaction has been some insomnia and bad fatigue.
Wondering about hair loss and at what stage, if anyone has experienced this? Does fatigue get worse? Any other lurking side effects to be aware of?
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out. I will monitor l, but expect I will lose it completely.
Nausea has been fine. I start round 2 next week. So far, it's very manageable.
All the best, ladies xx
I have had 5 doses ( 2 weeks on, one week off) of Trodelvy.
The side effects seem to keep changing for me. The fatigue is always there but over the last week I have also had dizziness and insomnia is an ongoing problem.
The week before that I suddenly got a rash over my lower legs and feet - very itchy - Initially I thought I had been attacked by mosquitos but the tiny red spots were very small and definitely a side effect. I have a constantly dry mouth and my hair fell out within two treatments.I never know how it will be so I try not to plan anything and have given up work because I feel wiped out most of the time.
I started Trodelvy after a year of trying three other types of chemo - none of which worked. I think it is a prerequisite to have tried other drugs before you can access It. My oncologist calls it a 'game changer' for triple negative met patients.
I had to pay for the first two doses and then the drug company decided they would pay the rest. A huge relief as it is very expensive.
I try to stay positive though it's hard when you feel so wrecked. I have scans in a few weeks which will determine my fate.
Thankyou very much to Arpie for posting that excellent article from the Sunday telegraph which gives me hope.
Best wishes to you all
And this drug is a 'game changer' for me. I just had pet scan last week and my 5 tumours and now inactive! Such amazing and quick results.
So I encourage all to either a) try to get on Trodelvy if you have TNBC, and if you have started: b) to stick with it. I'm happy to answer any other questions. I feel incredibly lucky and blessed.
PS - will do 4 more infusions and then have a break for 6+ months whilst I travel overseas.
Thanks for your great news jgameau, I too have had good news about Trodelvy. After 8 treatments, my scans showed that my lung mets have shrunk and most of my brain mets are gone. It is not clear about my bones but I am very happy to know that the Cancer has not progressed. Also, I feel bit better because my oncologist reduced my dose by 25 % two weeks ago to try to ease my exhaustion and this has worked. Still tired but have a bit of energy.