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Everolimus and Exemestane combo
De novo 4 years ago. Been on Ribociclib and Anastrozle past 2 years . Progression so oncologist has suggested Everolimus and Exemestane. Any feedback would be great thanks. Side effects manageable?
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Brain Mets
had a seizure on Friday get ambo to hospital, brain CT reveals one of the skull Mets is now in brain. Radiation starts tomorrow. Alternating between Panadol and Endone. Time to make end of life decisions. I be 58 in June Mind blown
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Treatment
I have recently been given the diagnosis we all dread, metastatic her2+++ in my liver I started treatment with Pacitaxel with pertuzumab and trastuzumab. I had a reaction after 7 minutes of pacitaxel so it was stopped the next week when I went for next treatment I was informed that they were changing the treatment to…
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Kisqali
Hi everyone, sad day today just found out I have spread to my liver now 😩 as well as already in spin and pelvis, what I’m wanting to know is when your on kisqali and letrozole combo and it stops working so well and spread happens what was the next step for anyone it happened too? Tia enjoy your day
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Endone
Is anyone taking Endone (for pain) and what side effects are you experiencing? My Oncologist prescribed me Endone for shoulder blade pain. I didn’t take it because a friend who had hip surgery had hallucinations when she was on it. As it so happened, the pain went away when I had T11 tumour ‘radiated’. That was last July.…
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Metastatic Breast Cancer & avoiding weight gain while on Letrozole ?
Metastatic Breast Cancer & avoiding weight gain while on Letrozole. Is it possible ? Has anyone been successful in losing weight that was gained while taking Letrozole ? What have you find helpful ? I have only met two other women with metastaic breast cancer who are also talking Letrozole and their response to my question…
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2 years - Ribociclib/Anastrolze
Hi Everyone, I just wanted to share some positivity and hope for any of you that are on the Ribociclib & Anastrolze combo.I have just completed 2 years and feeling pretty good. Hair is thinning at crown, the feet are disgustingly dry and the hands and nails are peeling BUT ... who cares, I can live with it... I’m well and…
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What do bone Mets feel like?
Hi Gals I was diagnosed almost a year ago with stage 3C DCIS - (Beryl for those in the know!) Beryl was pretty busy and managed to have 13 not so darling babies (lymph nodes). So a mastectomy was on the table and as I was awaiting test results for BRAC gene I decided to go for gold and do two for the price of one - I do…
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Suspicious Bone Lesions
After having diep flap reconstruction in Feb 2019 my plastic surgeon sent me for an abdominal CT scan to check a few things out. This appointment was in August 2020. Had the scan. The report also sent to my GP (who is wonderful). The last line on the report commented on suspicious areas on my spine. He then contacted the…
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Metastatic cancer
God I’m over feeling the way I do started Letrozole and Palbociclib tablets this morn and have t been sick but god it’s taking toll on body feeling bit buggered ... stomach is full nerves as suffer from anxiety and panic so get feeling of word and scared like u want to b sick then it goes ... is this normal will it get…
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Immunotherapy Atezolizumab (Tecentriq) Metastatic Triple Negative Experience
I just wanted to share my experiences with accessing the immunotherapy drug Atezolizumab (Tecentriq) that is currently not on the PBS (but hopefully will be soon!). In 2017 I was treated for TNBC stage 3 breast and lymph nodes, had 3 amazing years of good health, family and travel, then in March 2020 found an enlarged…
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Peritonial lesions
After doing so well I have just found out my liver mets have increased and lesions in my perit6. Anyone have more knowledge about this
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Diagnosed Metastatic BC August 2020/nab Paclitxel (chemo) & Atezolizumab (Immunotherapy)
I just want to share my story. High risk R side breast cancer diagnosed in August 2016. oestrgon + progestrone/HER2 neg. Treated with surgery/chemotherapy x 2 and on Letrozole daily. Four years of good health and back to work. Come August 2020 found hard lump right base of neck. GP ultrasound organized. Referral was then…
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Newly diagnosed
So very scared advice greatly appreciated I had mammogram as have inverted nipple yes cancer so went through testing good news is not in lymph nodes so had ct scan for other body parts good news no cancer in them but had to have another scan with dye only to find out it’s extensive in spine so very scared bout dying my…
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Possible lung mets shock
Hi, At my 1 year check up for a Phyllodes tumour ( mastectomy and radiation ) they have found a 7mm lung node. PET scan on Thursday. Day off work today....how do you get through this?