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Trials of new Mets Drug at Duke Cancer Institute - Bone Mets
This sounds promising .... This trial comes from a leukemia background and is now being tested on BC patients with HR+ Mets - hopefully even preventing cancer cells getting into bone marrow on patients who are currently NED (but may still have cancer cells circulating in the body.) Up to 30% of NED patients may go on to…
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What is up with the bell???
Okay, so it took me four years to notice the damn thing, but now I can’t unsee the bell. And I wonder who on Earth thought that was a good idea??? Just putting it out there that I am irrationally annoyed by that stupid bell. Is it just me??
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Verzenio now available on PBS for Metastatic Breast cancer
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Metastatic Mess: Self employed, no super, life or income protection, expired health insurance
Firstly, I hope everyone is feeling the best they can, and keeping positive... or doing whatever works for you if you're sick of people always saying "be positive" :) I feel really silly (and irresponsible) finding myself in this situation of being self-employed, with no super, life/income protection, and to top it…
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A rock and a hard place
New to this type of thingy but here goes... Metastatic BC 12 years ago. Liver, lungs and bones. Given 12 months. Following chemo liver and lungs.. all good. Bones, different story! Been on herceptin and letrozole from day one. Also receiving bisphosphonates. Diagnosed with ONJ (Osteonecrosis of the jaw) just over 2 years…
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Anyone had Faslodex?
Post from @Hoping
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Lymph nodes
Hi there, I’m a newbie here, great to meet you all. Can anyone shed some light, had a mastectomy 12 days ago and 4 SN lymph nodes taken out. Results came back 3 clear 1 has a 3mm deposit...should I be writing my will? I’m 46 Yrs old. Thanks folks and Merry Christmas 🎄
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Kisquali and Xgeva
Hi everyone, I’m starting Kisquali tablets and Xgeva injections next Tuesday. I’m already having Zoladex injections and take Aromasin 1 x day. I was wondering what side effects anyone has experienced with Xgeva and Kisquali? My oncologist told me that Kisquali could cause sore hands and feet, nausea and low blood counts.…
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Primary cancer
Can someone please tell me how they know what the primary cancer is? A lady had an anx clearance and mx but they told her none of the cancer found was the primary source. How do they know? They have not yet been able to find any other cancer in her body.
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New city, New diagnosis, Looking for support
Hi everyone, this is my first post. I was diagnosed with MBC (to bone) about 4 weeks ago. I was initially diagnosed at 36 with IDC. It was a difficult time as my daughter was only 5yrs and my son was only 5 months. But after a very difficult period during and following treatment (the whole shebang), it took around 5 years…
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Fulvestrant Injections
Hi to the ladies that have recently started on Fulvestrant Injections. How are you going ? I have been having the injections since October and my tumour markers have more than halved. My oncologist is very happy with the results and she feels that my liver mets may have shrunk. I'm due for scans early January, so all will…
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How do you know if its progressing?
Hi Everyone, just a bit of a dumb question... I'm Stage 4 De Novo with bone/spine mets. I've been on Letrozole/Ribociclib/Denosumab for about 7 months now. I'm having restaging scans every 3 months... The first set of restaging scans showed "significant improvement" in my breast tumour and no further commentary re lymph…
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Recent MBC - sternum
I was diagnosed with MBC on 5 November, (first diagnosed with BC in August 2016). I have been told that it's detained in the sternum and no other areas of the body and it is thought that it was there when the breast tumour was removed in Sept 16. The suggestion is that I stay on Tamoxifen or as I am premenopausal that I…
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Guided Meditation for chemotherapy
Hi everyone, I was diagnosed a month ago, had a lumpectomy and am about to have my 3rd round of chemo. I found this guided meditation on You Tube specifically for chemo. It's been wonderful and I do it morning and night. It's helped me cope with anxiety and worry and taught me how to change my thinking so that I view chemo…
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how to accept the diagnosis?
I was diagnosed with metastatic breast cancer in May. I had radiation treatment on my spine and wasstarted on Kisquali and Letrozole (was previously on Arimidex). My original diagnosis was in 2017, when I had a mastectomy, chemo and radiation and went on Arimidex. The Kisquali is now not working and I am being assessed for…