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Hello and liver
hi all thought id introduce myself. 43 with 3 kids I had bc 10 years ago. 2 years ago back pain and a scan showed Mets to sacrum. On xgeva and femara and in remission after radiation. Then most recent scan showed a met in my liver. Anyone else on a similar shitty path with the liver. I did a silly thing and looked at dr…
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Back off please
How do I tell a someone to ease up on the questions, especially when I don't even have the answers myself Its a close friend so I don't want to hurt her. but it feels like a million and one questions every day. I know this is never going to go away but I would like a day where can at least put it in the background.
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Help please
I don't know if I am allowed to ask this as I have only just joined the community. Does anyone have a link to a list of medical oncologists specialising in metastatic breast cancer?
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Game Changers Living with Advanced Breast Cancer
Hi everyone, here is a story I wrote a couple of years ago. m I feel it is still very relevant and seeing its Advanced Breast Cancer day on Sunday I felt it appropriate to post it again. I am sure many of you can relate to parts if not all of the content. I am grateful that I am able to post this again because I still have…
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Recurrence in rib
Hi I have recently found that my cancer has spread to one of my ribs. I was diagnosed with stage 3a in Feb 2018. Had double mastectomy, chemo, radiation, and reconstruction in May this year. How does this happen?I have just completed radiation to the rib, and started on letrozole. I will start Kisqualis soon aswell. Very…
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Second opinion
Hi all Long story but the shorter version is my oncologist did not act on my increasing ca15.3 blood marker levels which had been steadily rising over 6 months. So i , bothered by their increase got a second opinion. Well thank goodness I did. Firstly, My new oncologist could not believe my bloods levels were not acted…
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Happy metastatic breast cancer awareness day
The forum in Queensland today was very good. Not much new information, but well presented.
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Thank you for the MELBOURNE webcast of the the Gold Coast conference !
Hi Kellie and the BCNA Team Thank you for hosting the inaugural “watch party” of the Gold Coast Metastatic BC awareness day in Melbourne this afternoon. While our numbers were small it was a really good event. The technology was simply excellent - not a single technical hitch. A warm welcome and a great opportunity to…
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Work
Hi everyone I'm sure this has properly been asked before but not sure so here goes. I'm 60, have metastatic breast cancer in 3 spots, 2 in spin and 1 in pelvis it's stable on the medications, the medications I take are kisqali, letrozole, blood pressure meds, and cholesterol meds, I also have a kidney stent in. Seriously…
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Cancer Australia and Metastatic BC
Cancer Australia has just updated their statement on MBC. This is good news--they have some serious clout in the research world. https://www.youtube.com/watch?v=Y8QU_Z_SaLY https://canceraustralia.gov.au/publications-and-resources/cancer-australia-publications/metastatic-breast-cancer-summary
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Kisqali - an opportunity to influence the drug company
I have the opportunity to talk to the manufacturers of the newly listed drug, Kisqali. I would love it if it if you could think about anything you’d like the company to provide you when you take Kisqali. For example - I’d like smaller tablets and I think a phone helpline to answer questions about the drug would be good.…
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Joining metastatic online group
I’ve tried unsuccessfully to join this group. I even tried sending an email requesting assistance without success. I was diagnosed with metastatic Breast cancer weeks ago.
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Haematona after mastectomy
Hello. Your site has been very helpful in the past and I am hoping it will be again. Diagnosed in April 2018 with breast cancer , I have had chemo, bilateral mastectomy and radiotherapy. 10 months after surgery I have just had an echogram that shows a large 10cm haemotoma in the right breast area. Will talk to my GP and…
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Problems with neck, jugular,ear and throat area
Hi, I have some problems with throat area since spring this year but now it is getting worse. I have the feeling that someone is choking me, especially in the mornings till noon. Also a pressure in my left ear, I feel that I have a swollen area under my left jaw and ear. Have seen an ORL dr but he said that there is…
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Oncologist visit
Hi everyone, well today was my visit to oncologist for two months, I'm taking kisqali and letrozole and my results were great and she told me everything was stable I'm so pleased everything is doing what's it's suppose to be doing. Enjoy your day everyone I know I will be now 🙂🙂