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Progression Update - Good News!
Hi Everyone, just thought I'd share some good news, having seen some good news stories myself, they did make me feel better, so I just want to pay it forward :) I was diagnosed with de novo Stage 4 with bone/spine mets last Oct 2018. I underwent every scan and test possible and results were coming back…
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Xeloda working or not? The end?
For people taking Xeloda at some point, when did your doctor make the call that it was no longer working? And if it was deemed not to work, what did you get put on next? On Xeloda for 9 months with amazing results after been sent home to die. Xeloda was a last ditch effort and remarkably it reversed liver mets and got the…
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Bloating and Iberogast??
Hi Wondering if anyone has tried Iberogast for bloating and if it can be taken with Tamoxifen and Prednisone , my chemist doesn't know and neither does my GP ?? I feel like a balloon and not really nausea but that kind of feeling ??
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Kisqali
So just dropped my script for Kisqali off at my local chemist they tell me they can’t get, so where do I get it from? Where does everyone else get it from?
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Just been told I have mets in my liver
This discussion was created from comments split from: Back to work.
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Back to work
hi all, after 3 months off work, diagnosed with metastatic breast cancer, first cycle on Kisqali done, bloods came back as good, neutrophils were 1 so on the boarder so seeing my oncologist in 3 weeks to see how were going, but was give all clear to return to work yesterday, today was my first shift in, wow was I tired…
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Second Brain Tumour in 5 months
Hi everyone, I posted about secondary breast cancer which spread to the brain 5yrs after a mastectomy, hysterectomy, chemo & radiation. I had an MRI on Monday & have been told that this second tumour has grown in the last 8 weeks, I'm seeing the Radiologist tomorrow & the Surgeon on Tuesday. Apparently chemo is out due to…
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Low white blood cell count
Hi Everyone, I’m still relatively new at this Stage 4 journey. I’m on Ribociclib and Anastrolze and commenced this combo end of 2018. I have a tumour on my lung and the results from treatment have been positive to date. My latest visit to my Oncologist has resulted in a very low white blood cell count and a temporary break…
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Xeloda
As some of you may have read I have recently been diagnosed with stage 4 after just 2.5 years from my initial diagnosis. It is contained to my Lymph nodes and a small spot at the base of my neck. My original cancer was stage 3 grade 3 triple positive but also had an oestrogen + Hert 2 - tumour, this is the one that has…
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reaching out to Chris in Sale, Vic
A friend told me about an MBC support group starting up in Sale. As I’ve recently started a group on the Bellarine Peninsula and found great local support, I’d be happy to share that experience with another person starting out with a new group.
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New Study for Stage 4
I was really heartened to read about this study in the metastatic area of breast cancer. "Stage Four Needs More" is a phrase I've heard a lot and I know several members here have voiced concerns about the number of studies being done. Hope it's of interest. K xox…
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oncologists so worried about cost of treatment that they are not giving options to patients
Did you see the story on Susie Krimmer in the Australian. It makes me sooooo mad that there is testing available that might provide treatment options and patients don't even know about it because the oncologists are so worried about the cost of treatment that they are not even explaining the testing or possible treatment…
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Dysphagia
Hello all. So over christmas and new years i was in hospital again. I have been having some swallowing issues for about 6 months now and its seem to have got worse as the weeks go bye, when i mentioned it to my oncologist she said it could be a mixture of chemo, body being so weak, radiation to breasts and just the cancer…
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Second brain tumour in 5 months
I was coming up to 5yrs clear & booked a trip to the UK on 3rd December, then was diagnosed on 11 October with a brain tumour. Had it removed & was paralysed on the left side but spent 6 weeks in hospital and rehab working hard & made my trip just in time (albeit with a broken rib I didn't know about). I had a full body…
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Ibrance on the PBS
Does anyone know any details about Ibrance (palbociclib) being put on the PBS? Will it be made available only to newly diagnosed women as well, not those that have had prior treatment? Cheers.